New to Scaroid

My husband was diagnosed with Scaroid about 7 months ago. I am just learning about all the problems that come along with it. He has sarcoid in the lungs and I am not sure where else. His liver enzymes are extremely high, we are having a sonogram on Monday. My questiion is can anyone tell me about the Boston Medical Center's Scaroid Clinic. I have not done much research on any ot this until the past few weeks. We are seeing a primary care and a pulmonary specialist, but I am not feeling very comfortable. It seems when I ask questions and suggest we go to a "Scaroid Dr." I get the feeling that the Doc's think I am over reacting, which makes me feel the same way, that maybe I am trying to make a big deal out of something that's not. But when I read blogs, like the one I read the other day about Dan Stoddard Passing away, makes me think I should be more aggressive.I know my husband and he never sits still long, but lately he just does not feel well, looking back on health issues he has had, I am thinking he has probably had this for at least 2 years. He has been on 60 mg of prednizone, and has been cut back to 10 mg's a day. Does anyone have sarcoid of the liver as well? I would appreciate any input that someone might have.....

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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