Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Never give up!

0 Recommendations

HI All,

I subscibed here few months after my diagnosis.
I had a terrible episode of sarc which involved joints (both legs and arms swallowed suddently - in 10 days I simply could't move and walk anymore), eyes, lung, lymph nodes, endocrine sistem, with symptoms you are all familiar with (fever, tiredness, swallow...).

I have been for 6 months on low dose of prednisone (5mg/day) as my body seemed to react particularly well to it. I am off any medication since july 2008. And I am in remission.

Since I have developed sarc I changed my diet naturally - my body started refusing sugars and carbs and in the last 2 years I have been on a low carb and very healthy diet (no processed food, no bad fats, lot of vegetables, seeds and nuts). I have always been a sporty person and I keep excercise 4-5 times a week. Not much, just 40-50 minutes per day, just to remind my body that I care about it;)

At that time I was living in Italy and in december 2008 I had an offer from UK.
I knew my remission was not definitive - and still is not definitive - but I had the choice to decide what to do: wait for sarc to come back in italy doing a job I didn't liked or take the chance to realize one of my dreams and accept a position I was looking for for years.

Well, I moved to UK.
I didn't wanted sarc to interfere with my life and my dreams! If it wants to get back, it'll get back anyway, regardless where I am or what I do.
I have found nice and hepful perople here. I do my checks here and I am happy.
Still in remission.
Always on a very halthy diet and lifestyle.
I take a number of vitamins and supplements (1gr C vit, Omega 3, zinc and Glucosamina on regular basis) and have learned to listen to my body.
It's not easy, but our body gives us clear signs of which are its needs, we just need to be able to listen to this signs. Self-awareness comes with time, but it is essential.

I am just writing this to inspire you: do whatever you can to help yourself, listen to your body, care about it, pay attention to your diet and exercise... and do not let sarc be stronger than you!
Live your life as normally as you can, do not be a victim of sarc, learn how to live together with it!

Good luck to all of you.
And never give up - life is great:)

Hilsen

Explore topics in this discussion:

Exercise Prednisone Fever

2 replies

Your story and words are very inspiring.
I admire how brave you are to go after your new job. It takes alot of courage to make such changes, let alone when you are faced with an illness.
I agree with you on every level.

Thanks,
Doreen

Thank you, Hilson. I am so glad you are doing well!!

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

Group leaders

You