HI All,
I subscibed here few months after my diagnosis.
I had a terrible episode of sarc which involved joints (both legs and arms swallowed suddently - in 10 days I simply could't move and walk anymore), eyes, lung, lymph nodes, endocrine sistem, with symptoms you are all familiar with (fever, tiredness, swallow...).
I have been for 6 months on low dose of prednisone (5mg/day) as my body seemed to react particularly well to it. I am off any medication since july 2008. And I am in remission.
Since I have developed sarc I changed my diet naturally - my body started refusing sugars and carbs and in the last 2 years I have been on a low carb and very healthy diet (no processed food, no bad fats, lot of vegetables, seeds and nuts). I have always been a sporty person and I keep excercise 4-5 times a week. Not much, just 40-50 minutes per day, just to remind my body that I care about it;)
At that time I was living in Italy and in december 2008 I had an offer from UK.
I knew my remission was not definitive - and still is not definitive - but I had the choice to decide what to do: wait for sarc to come back in italy doing a job I didn't liked or take the chance to realize one of my dreams and accept a position I was looking for for years.
Well, I moved to UK.
I didn't wanted sarc to interfere with my life and my dreams! If it wants to get back, it'll get back anyway, regardless where I am or what I do.
I have found nice and hepful perople here. I do my checks here and I am happy.
Still in remission.
Always on a very halthy diet and lifestyle.
I take a number of vitamins and supplements (1gr C vit, Omega 3, zinc and Glucosamina on regular basis) and have learned to listen to my body.
It's not easy, but our body gives us clear signs of which are its needs, we just need to be able to listen to this signs. Self-awareness comes with time, but it is essential.
I am just writing this to inspire you: do whatever you can to help yourself, listen to your body, care about it, pay attention to your diet and exercise... and do not let sarc be stronger than you!
Live your life as normally as you can, do not be a victim of sarc, learn how to live together with it!
Good luck to all of you.
And never give up - life is great:)
Hilsen





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