Losing my Voice

Ozzie5
  • By Ozzie5 · September 15, 2012 at 10:38 am · 21 replies
  • In Living with sarcoidosis
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Hello everyone, Just thought I would ask if anyone else has had a problem with their voice. It doesn't happen all the time but I can go really hoarse 3 - 4 times during the day. Today at work everyone kept asking if I had a sore throat which of course I didn't. I could barely be understood on the phone.

Any thoughts on whether it could have something to do with the flixotide puffer I am taking. I have been on it for about a year and always rinse my mouth but it has only been the past 1 - 2 weeks this has been happening.

I'm just having a whinge cause I haven't had a good day. My hands, wrist and legs have been aching and the headaches have started coming back last couple of days as well as blurred vision.

That's my little whinge for the day, thanks for listening :)

Ozzie

Edited September 15, 2012 at 10:52 am

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21 replies   

sunshine17

When I'm very tired my voice will go hoarse

mland

"I'm sorry, couldn't hear you. Could you speak up?"
Yep, the voice strength comes and goes and I get that request a lot - especially over the phone. My situation is due to the Lisinopril.
Google your meds and look under "Symptoms." Maybe they can adjust your dosage. I had this done and it made a difference.
Also, if you use a Bipap or Cpap for sleep apnea, this can impact voice quality as well.
All the best,
ML

Ozzie5
  • By Ozzie5
  • Reply 3377593 · In reply to 3377557 by mland
  • September 15, 2012 at 12:33 pm
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lol and thanks for your reply mland - I thought I was the only one. I will take your advice and google the meds. The doc did tell me to take 1 puff twice a day but when I cough a lot I take an extra one. I also tend to sleep in on my days off because I am so tired and tend not to take meds at regular intervals. Thanks for your input sunshine 17. I too have been extra tired the last couple of weeks. Take care.
Cheers, Ozzie :)

DetroitGee

Yes, I get hoarse several times a day. A guy thought I was being sexy because I couldn't speak above a whisper.

Ozzie5
  • By Ozzie5
  • Reply 3377620 · In reply to 3377611 by DetroitGee
  • September 15, 2012 at 12:44 pm
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yeah, it can sound sort of sexy I guess

Ozzie :)

Brooklyn5

My voice is hoarse most of the day, no soreness. ENT didn't find anything, I'll have to check the side effects of my drugs also. Is that Ozzie in your pic? This is Brooklyn in mine, she's 6 now. :)

utubelite

I used to get a bit hoarse few times a day a year back when I got some sort of infection in chest that was thought to be Sarc. I was feeling a bit hoarse but none of the people around me noticed any difference in my voice even on my asking.
It went away in couple of months without any medications.
UTL

lorisue

I was hoarse all the time, still am. Went to ENT and I have a paralized vocal cord.

razorboy

YES !!!!! I have had that !!! My voice has not totally recovered, but it is 10x better than it was.....

I know you will not believe me, but it IS one of the things that recovered with the Marshall Protocol - that and my eyesight.
When I was doing it, strangely, it felt as if someone put a vibrating thing against my throat ( no jokes - lol) and it seemed to just recover fairly quickly. I can say with certainty that the MP did help this. I am still trying to figure some things out about it, still have some questions, but I really do feel that it did help my voice !!!!!

Ozzie5
  • By Ozzie5
  • Reply 3379122 · In reply to 3378240 by lorisue
  • September 16, 2012 at 1:40 am
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Hi lorisue, my husband has the same thing. His voice was hoarse and then he lost it completely. Had heaps of tests and was told he had a paralized vocal cord. With the help of a speach therapist his voice is back but still has some problems. He doesn't have sarc though, I have. weird
Ozzie :)

Ozzie5
  • By Ozzie5
  • Reply 3379131 · In reply to 3377866 by Brooklyn5
  • September 16, 2012 at 1:50 am
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Hi Brooklyn5, thanks for your reply and love the pic of your dog Brooklyn. No, my pic is not Ozzie - it is Ninja our 2 year old beautiful big 7 kg cat that was run over this year with multiple injuries. Unfortunately the vet was unable to do anything and he had to be put out of his misery. It has only been recently that I have been able to look at his picture. I miss him dearly. We also have two female kelpie cross staffies that are 11 yrs old. I love my animals. They give you unconditional love and are great company when one feels down.

The name Ozzie came about from Aussie as in from Australia. Stay well Brookly5

cheers, Ozzie5 :)

Ozzie5
  • By Ozzie5
  • Reply 3379137 · In reply to 3378703 by razorboy
  • September 16, 2012 at 1:57 am
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Hi Razorboy, I noticed you mentioned the Marshall protocol. I have researched this on the net. I live in Perth, Western Australia and don't know of any drs here that do the MP. I was interested the hear that it helped you and would like to know more about it and also how you are now? Did you do it for 2 years? Would be grateful for any other info that you can give me. Take care and stay well,
Ozzie5 from downunder Perth :)

Tawney

Voice is one of my biggest problems but it seems to be a vocal cord thing with me...partial paralysis. My voice is never very strong at the best of times and is frequently very diminished or completely gone for days/weeks/months. A few years back, I lost my voice for 5 months. Over the years my throat has become very painful and, as so many of us here find, the pain feels mainly left sided.

Brooklyn5

Hi Ozzie5, I am so sorry for your loss of Ninja. Yes, animals are the best comfort, I have 2 dogs and 3 cats, my husband calls them my entourage as they follow me everywhere! This is Brooklyn's "I hate it when you take my picture" look - priceless! Belly rubs and kisses to your entourage..K

Tawney
  • By Tawney
  • Reply 3379734 · In reply to 3379137 by Ozzie5
  • September 16, 2012 at 10:46 am
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We do have a few (brave) doctors who will try antibiotic therapies. That protocol has been somewhat modified by most Australian doctors to suit patients and to allow for what doctors have found in actual practice, and most prefer the term inflammatory therapy. Because I've never managed an actual diagnosis (despite the many abnormalities) and am caught between lyme and neurosarc, I went down the antibiotic path, with my neurologist's blessing by the way. He wrote to the relevant doctor months before I had the gumption to actually turn up. I have to agree with Razorboy in that antibiotics have lessened the severity of my voice issue, by which I mean I don't have episodes of loss lasting months these days but just weeks. It's terribly hard to track some things...everything is so changeable and various symptoms have degrees of awfulness. The pain in my throat won't subside no matter what I try or take. I'm starting to think it's a neurosurgeon I need, not medications or neurologists.

Really sorry about Ninja. He truly looks gorgeous. I had to have my 18 year old cat put to sleep not so long ago and I miss him enormously. I can't have another cat right now due to the current dogs...not the one in the picture, she's an angel...but a young, feisty red heeler who catches rabbits. I've never had problems with cats and dogs mixing before but I wouldn't trust our red and blue heelers with cats they weren't raised with. I think it's because they're too used to chasing rabbits and so small furry strangers that run round their land are fair game. Brutal and it distresses me. Look at me, digressing on dog issues!

ntrae426

Yes , I lose my voice too.

The Pulmonologist said it could be from the Advair. He said to make sure to gargle after using them, not just rinse. I don't believe it as its been happening for years, long before I started any of those meds!

Good luck.

Ozzie5
  • By Ozzie5
  • Reply 3380227 · In reply to 3379750 by ntrae426
  • September 16, 2012 at 2:38 pm
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thanks ntrae, I will gargle as well as rinse and maybe it might help,
Ozzie5 :)

Ozzie5
  • By Ozzie5
  • Reply 3380246 · In reply to 3379734 by Tawney
  • September 16, 2012 at 2:46 pm
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Thanks for you kind words Tawney and I am also sorry for the loss of your cat after 18 years. Also thanks to you too Brooklyn.

Tawney, I hope you get some answers. It seems that sarkies tend to become their own diagnostic doctors. Also Tawney, do you know of any drs in Perth (I don't know what state you are in) with regard to the MProtocol or something similar.
cheers, Ozzie5 :)

Shadowsfire

My voice is hoarse too. But oddly not all the time. It could be med related or reflux related for me. Haven't had any testing done, every time I go see the Dr it clears up. LOL

bundwd

Ozzie 5, I've had this same problem for over a year. I would lose my voice completely and then stay hoarse for weeks and weeks. Every time I get the least cold or cough it happens. Finally my GP sent me to an ENT and after an endoscope he still couldn't find a thing to cause it. He seemed to think the last bout of bronchitis I had with such a terrible cough for so long caused it. As of the last couple of weeks my voice is normal but I haven't had any bouts of coughing either.

Brenda

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