If you have not been confirmed with "chronic" sarc, this should be something you perhaps ignore for the time being.
Also nothing in these studies are 100%, you may indeed have a different outcome. Most studies show most of those who get sarc will go into remission for it within 2 years, those who do not move into the "chronic" group.
I'm not trying to be negative, this isn't my data nor my studies, they are from people trained in doing research. I hope you are open minded enough to just take this as information about a topic that can be sobering.
I have chronic sarc, I've been on a couple of sarc drug treatment programs over the last 3 yrs, currently I'm not on any drug therapy for sarc. I have two 1st cousins who also have sarc, each of us has a different set of parents. Of the 4 siblings in our parent's household, 3 out of 4 of brothers produced children with sarc. However, we were all also born in the same area in SE Ohio back in the 1950's, however I left that area when I was 5yrs old and never returned. Thus it appears there is a genetic or environmental link in our family.
Our doctors give us advice and treatment, however getting information (current info) from other sources, getting 2nd and 3rd opinions is also good. The internet is full of quackery, trying to pull our hope and thus $$ in all kinds of directions.
This link .....
says the expected life expectancy for people with chronic sarc is age 50-60 yrs old, with 75% dying before age 60 due to sarc related complications.
I bought this book, its pretty steeply priced, and its 100% studies and papers from sarc dr's and researchers to other dr's and researchers, however if your as anal as I am and like working thru data, it's a very useful book.
In the above book, the last paper is on "Outcome of Sarcoidosis" it is several pages long and it examines how several treatment programs have affected or not affected the outcome. It backs up every statement with another study. The abstract is here, however the abstract is nothing of the entire article. http://www.ncbi.nlm.nih.gov/pubmed/18539245 However, the following is one statement I thought was enlightening "it remains unclear whether immunosuppressive therapies delay the process that resolve this condition. There also have been on going debates as to whether the therapies influence the outcome of sarcoidosis positively or negatively."
This article "supports" the use of corticosteroids in treating sarc ....
Other abstracts regarding sarc are here .... http://www3.interscience.wiley.com/journal/119643374/issue
this is an excellent article providing a general overview of sarc .....
a site that is biased towards one treatment, but they look at the ACCESS study, the largest study ever done on sarc.
Another link sites data that 2/3 of a study group saw no improvement, or that any improvement "was not statistically related to whether patients did or did not receive therapy".
So much data, so little info we can count on, so the bottom line after you've done your own reseach and made your own choices, live life well, the best you can. Many people who have come back from death experiences say, "I now live each day with all I have and make the best of it." Sounds like good advice to me, and just in case, my will is done up to date.
Edited June 3, 2010 at 11:15 am