Just Wanted to Check In....

JenL
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Hi everyone its been a little while since i've posted and just wanted to say hello. And fill you in on my journey. First off today was a big day my sons 6th birthday party!!! It was awesome. I am begining to feel a little better since going off the pred and mtx. I am still having quite a few breathing issues,and some joint pain problems, but all together better. More like my self again. I even jumped in a bounce house with my son and neice today!!! Cant remember the last time i did something like that. I mean dont get me wrong my lungs burned something feirce, and now i am paying the price my legs are killing me, but i did it and i cant tell you how wonderful that makes me feel..
Well new rheum took me off pred and mtx. he tried to start me on tramadol and flexeril at bed time. the tramadol constipated me so bad that i almost needed to go to the ER. Stopped that but continued the flexeril. with that and the occasional pain med i am doing better and other people can see it too. I also have lost 20 pounds since stopping the pred, and today for the first time since february i fit back into a pair ofmy jeans (finally no more stretch pants!!!!!!!). These little things and i feel like i am conquerring this disease. I know thaat it may not last but atleast i know that there will be times when i will be closer to normal.
I hope that this post may give someone else hope. even just a little bit. this is my first timesince being diagnosed that i feel hope. What a spectacular feeling.

Also please wish me luck i am having a second surgery on my wirst two days before thanksgiving (same exact day it was done the first time last year weird huh) i figure get it done and over with and go into the new year with nothing waiting or looming ahead of me. we will just remember 2008 as a bad year - THE YEAR OF SARCOIDOSIS -
well all of you take care and know that you are never alone. you are all in my prayers and thoughts please let me know if i can do anything for any of you - you are all my extended sarc family.

Love,
JenL

2 replies

Bubs
  • By Bubs
  • Posted October 12, 2008 at 9:26 am

Hi JenL,
I am new and I am so happy about you feeling almost like yourself again. It is a great feeling to be able to get back into old clothes again. I put on 16 kg whilst on the preds I have lost between 8 and 9 so far and can not wait to be back to normal so that I can wear some of my clothes again. Stay happy and healthy love to hear more from you. I will keep you in my prayers with your wrist operation. Why did you have to have an op, very curious as I have extreem pain in my wrists.

Bubs

JenL
  • By JenL
  • Posted October 12, 2008 at 2:24 pm

well my hand issue started about 12 years ago when i broke it. it was never the same again. last year they found a torn tendon and a cyst on the thumb joint. they repaired the tendon and cleaned out my thumb joint however they said they may not have cured the thumb joint issue. since then it has gotten worse. so they are going to rebuild the thumb joint area with a ligament or tendon something like that from my forearm. not very pleasant but very excited to have it be all over.

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