I have been taking Methotrexate & Prednisone since May 2007 and since then I have only felt better for 2 months. All the other time I feel like I'm always in a flare. Has anyone else gone years of feeling like your body is on fire?
My question is: shouldn't I be feeling better by now? I've had these severe symptoms for over 2 years. How long do most of you stay on Methotrexate & Prednisone? I know as long as my labs are okay I can stay on Metho for a long time but I was told that I really need to get off of the Pred. I take 20mg weekly of Metho. and I'm down to 10mg daily(was at 5mg) of Pred.
I have sarc of my skin, muscles and joints but not in my lungs. I have found out after last weekend that spending to much time outside in the sun can bring out a flare, at least it does for me.
I guess like everyone else I was hoping that it would burn itself out in a couple of years but that obviously isnt happening. I am still curious how long do most of you stay on meds. I am better than I was before I was first diagnosed, but my body just keeps flaring! Very frustrating!
Thanks for listening,