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Hospital visits

tishee
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Hi guys. After I was diagnosed with sarc. I have been in the emergency room over 9 times this summer. Mostly stomach issues, and usually because I am hypercalcemic. I am not sure I even understand what that means. Out of those nine times, I have been admitted about 5 times. They would put an IV on high speed to "flush" the calcium out of my blood. My original doctor that diagnosed me was irritated with the hospital visits. Has anybody been in a similar situation? I switched doctors, and the last time I was in the hospital the nurse treated me like I was a hypocondriac. Before this the only time I was ever hospitalized was for the birth of my son. Hospitals creep me out. I would like to turn the nurse in (she didnt get my proper meds ordered ect.) But that is the closest hospital. And god forbid I have to visit again. What to do?? Tish

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Prednisone

7 replies

rascalsmom

Tishee,
There have been a number of posts about Vitamin D and hypercalcemia that you will find helpful on this site. (Search Vitamin D and read the posts from Pris) You already have the idea - hyper means to much, and calcemia refers to calcium so hypercalcemia means you have too much calcium. This is dangerous, and you need to understand how to prevent it from happening. Have you spoken to your doctor about how to prevent these episodes from occurring? Are you on prednisone? That might help. Certainly if you are not on prednisone, you should probably avoid Vitamin D in food or any supplements. *Read* the labels on everything you eat.

Remember - we can share info and give advice here, but you are the one who has to work with your doctors. Rascalsmom

IreneMarie

Kudos Rascalsmom! well put. Hope others in a quandry over Calcium and Vit. D see this post - it's so important!

tishee

Thanks guys. I know hypercalcemia can lead to kidney failure. I wonder if once again if I get my spleen out it will help. But that is my last ditch effort. Irene Marie thanks for the advice before. Honestly, I get more info. from this site and take the info. you guys give me to my rheumatologist. Starting the humira next week. I am so happy to have this "sarc family." Take Care fello sarcies!! Tish

IreneMarie

Glad you found us - we are happy you are here! I have done the same - take info from here to my docs. it has made a big difference in the direction of my treatment.

Keep in touch,
I.

Boxerlover

It may help to see either an endocrinologist or nephrologist. I have kidney issues from calcium and they can run the tests and try meds to help.

Melissa

tishee

Ah, thats a good idea. Thanks boxlover.

tishee

Ah, thats a good idea. Thanks boxlover.

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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