Since being diagnosed in 2007, I have found myself slowly becoming a recluse. Not that I really hung out much previously but it just seems to take so much more of an effort to really do anything but relax and rest on weekends.
I missed my brother-in-laws wedding -- could not commit to a date 3 months down the road because I didn't know how I would be feeling that day. I missed the wedding but caught the video.
Was great his wife understood because she has Lupus and knows all to well about good days and bad days.
Does that happen to anyone else? Do you not accept invitations far in advance because you don't know how you will feel that day?
Edited May 18, 2009 at 2:44 pm