Gastritis

This may sound crazy to you guys and gals but it caught my attention. Years ago (1991) to be exact I was diagnosed with gastritis. Never gave it much mind...I was younger and REALLY who did they think was gonna leave caffeine and chocolate alone. Not that 18 year old!!!! you know when we were younger we thought we would live forever...eat what we want without any conquences.
Anyway enough of that I am beginning to sound old...lol...but recently I have been having some unwanted and unexplained situations. You know ya'll have to be my family for me to share this...I posted it on my own site but figured I would get more responses on here because I am really concerned. Well here we go...I can't fart without passing a terd with it.....I go to urine and I am whiping crap that I wasn't aware that was there...I have pissed in the bed on three occassions....oh yeah some more stuff was with it too....OMG...so embarrising..but anyway I started googling trying to find out WTH is happening to my body. And to my suprise there was a connection with sarcoidosis and gastritis!!!!

http://www.umm.edu/altmed/articles/gastritis-000067.htm
Check it out and tell me what you all think. I am 36 years old wearing depends to bed...and that is NOT acceptable....I am so ashamed. And I want answers...I stay constipated and bloated....ya'll I am loosing it here. Am I truly the only one????

By billsarc
Posted October 14, 2009 at 9:57 am
Report post

I went for an endoscopy/colonoscopy about 4-5 months ago and was diagnosed with eosinophil esophagitis and gastritis.

I can't remember but I believe the doctor said no connection to sarcoidosis.

I find that hard to believe.

I've had gnawing pain in my upper abdomen for a couple months almost constant.....knock on wood but the past 2 weeks or so has improved about 95%

By gonenatural
Posted October 14, 2009 at 10:12 am
Report post

Ok, I will share with you what I have been going through. I was dx'd with severe GERD some 10 yrs ago and it started some 3-4 yrs before that. When dx'd with GERD I was having bowel issues. I would have to dash to the wash room just barely making it, often direaha (sp). Dr did test aft test and all came back fine and of course during the 5-14 day test my stool was fine. My dr moved.
I get new dr 1-2 yrs later because now I am vomiting in my sleep, prilosec no longer working. Dr is peeved because in order to prescribe he had to do a repeat endoscopy. The test for the previous dr and him both came back with an inflammed stomach. Dr was pissed he had to prescribe meds due to my age. What the ....! So of course I had to move on.
Now I am pooping my pants and I was only some 38 yrs of age, max. So grateful bf was working so I could run in the house and change but one day there was NO hiding it. I was going down the street to get ice cream for us and got a pang suddenly in my gut only 2-3 blocks from the house and next thing I knew I was completely soaked. My pcp wouldn't even discuss this. I was wearing diapers often. And bed wetting, changing the sheets during the night, so grateful he didn't ask why and we had seperate beds but one time I did when we slept together and put a blanket between us so he wouldn't know and cleaned it up while he was at work.
In 2008 I became a lot worse. Saw another gastro, now dr 3 in this field. She did a colonoscopy and a small section of large bowel had partial restriction and dodeum (sp) slightly inflamed but no dr cared. Dr had enough of me and my complicated condition and said I should not have these issues till I'm in my 70's.
See another dr in Boston. She was extremely difficult to work with. I think she was disgusted because I saw too many drs before her. That is not my fault. I would go there with many issues that she could see and she refused to do any exams and put on paper that I claim I had an extended belly. Well, if she did her job she would have seen my very extended, extremely hard belly and I was overdosed on pain meds and imodiams and had a diaper on. So I left her. She wouldn't follow through on any testing she said I needed. She just did blood work and maybe a stool sample.
Get another dr. He is wondering if it is sarc. He does an endoscopy and my ?, the very bottom of your stomach, will not open as it is suppose to. He claims he thinks it is because I could not be sedated. He doesn't put on paper that issue or the issue that I could not be sedated. He refused to do any follow-up testing that he said that must be done and didn't take any biops. Some people here have been dx'd with stomach sarc with biops even though the lining looked fine, the biops came back bad.
How many drs are we at now?
So now I have a new dr. He dx'd me with very severe IBS as I am getting sicker and sicker just so I would have a label since I have had some testing and seen many drs. He is wondering if it is sarc himself. He thinks I need a repeat colonoscopy and endoscopy but I have to be put to sleep now for the procedures so he is not rushing into anything. He gave me a great med for my spazzing intestine along with imodiam to clog me. He keeps forgetting what my other test results where and doesn't bring in my folder so I am going to have to bring the results with me next time I go so he can take a look at what has been going on in the past. This dr also said the last dr is very incorrect in his dx about my stomach not opening. This dr said even with me being completely awake and gagging my stomach should have opened at the first touch. So this is something else he is thinking about. Why didn't it open.
A nero said I had 3 different issues going on and I needed an implant. It works like the heart implant. But it isn't available as of yet and they people that do have it is working wonders for them. The nero said one issue I had was a dumping syndrome.
Just today I was walking to the store 1/2 block from my house and rushed back and just made it only to walk back again and rush back and again just made it.
I have lost 30+ pounds. Not much I can eat. I miss my salads the most. Lettuce is a killer.
That is my story and I am sticking to it. My nerves just love to put me through hell, too sensitive.
Hugs
gn

By mrsbias
Posted October 14, 2009 at 10:26 am
Report post

Billsarc...thanks for the response. Did you check out the link because from my undertsanding sarcoidosis was stated as a cause for gastritir. Unless I read it wrong. But please check it out and tell me what you think.

By mrsbias
Posted October 14, 2009 at 10:30 am
Report post

Gonenatural...Hey my friend...thank you so much for all the information. It sounds like how my days been going...I just haven't seen a doctor about it yet. I have mentioned it to all the ones I see...and all I get is a "Oh I see". But I am gonna find me someone who cares enough and value their jobs.....Good Luck Right!!! I know...but I refuse to give up. This is very annoying...and not to mention my farts smell like some sort of toxic....I mean really...this can't be normal.

By DoreenC
Posted October 14, 2009 at 1:04 pm
Report post

I have GI sarc. The antrum part of my stomach shows chronic gastrtitis. The antrum is a common site that sarc likes to hit. From my understanding the 3 stages of sarc can progress from inflammation (which gastritis is), to granuloma formation and to scarring.
My GI doc worked with Sarc patients at a well known sarc center in NY (can't remember if it is called Mount Sinai or Cedars Sinai) and said he saw many sarc patients with GI issues.
So, I think it's more common than we know and very much under reported.
I take aciphex, watch what I eat and am on pred treatment for it right now. My symptoms had gotten very bad so I couldn't opt to tough it out any longer. The nice thing about it was that I lost 22 pounds to date without trying...lol.
Hope this Helps,
Doreen

By mrsbias
Posted October 14, 2009 at 8:42 pm
Report post

I am on 40mg pf predisone...I don't believe it is doing anything for this issue...plus I am nexium daily. And klolopin...darvocet...oh and good old lexapro. One of these meds...I believe the darvocet is causing constipation and I am clueless to what the others are doing.

By David2727
Posted October 15, 2009 at 12:33 pm
Report post

I've got gastritis because of the anti inflammatory drugs and the corticoids. I take a lot for it; omeprazole, ranitidine and syngel. Syngel helps when my stocmach is in acute pain. For the loose stool i take immodium when necesarry and buscopan for the cramps.

David

By Great-gram
Posted October 16, 2009 at 12:25 pm
Report post

WOW! I've had the IBS - am relatively sure that is what it was - nerves were frazzled because of one of our children, who is now a lovely young woman. The last endoscopy did show gastritis, and they did a biopsy. It wasn't ca and it wasn't bacterial, I asked about sarc - and the doctor said it wasn't stated and he figures that they tested for it (I wonder). Still have the gastritis - last night was pretty bad. There is one spot on my abdomen just where the esophagus connects to the stomach, that when my PCP pushes on it she said it is GERD. I've had GERD since I was in my 30's. I wonder about the sarc for the gastritis, but maybe I'll wait until I move for my next follow-up.
Constipation would be from the darvacet - klonopin can contribute. I usually take 2 generic colace, but when I take calcium the colace doesn't work and the straining causes my B/P to really climb - up to stroke zone. Haven't found a solution for that. God bless! Great-gram

By mrsbias
Posted October 16, 2009 at 6:40 pm
Report post

Great_Gram...Hey Sweetie...I just smile everytime I receive a respond from you. I also hace GERD and I take nexium for that. Today...I actually went pill free. I wouldn't recommend that to anyone (for the sake of being sued)...lol....but I have rested so good today. I mean I slept woke up ate and slept again. In fact my husband just woke me up....he says so I can sleep tonight. Anyway I just had a partial hysterectomy done a week ago and I was told by my ogyn that my ovaries were badly scarred....and that there was alot of bacteria there. I wondered is any of that related....bt anyway they don't always tell us everything.

By MrsUyarlar
Posted October 16, 2009 at 9:07 pm
Report post

U know this is why i love this website, cause we all can relate in some way or the other! But yea with me as well at time i may fart more than usual, or just cannot stop being constipated,"gross" but it is what it is! And another embarrasing thing i snore more than i ever did before! It's just crazy to notice a whole lot of "strange" things happening to our bodies on these medicines. The saddest thing is that Doctors aren't even aware of all the side effects that's happening to us!

By mrsbias
Posted October 16, 2009 at 9:20 pm
Report post

Uyarlar...you are exactly right. That's why I have made a decision....it really can't be discussed on this website...but I have come to terms that these doctors don't know what to do with me...so I have to take care of myself. I am sick of the side effects...can't take it no more!!!!!

By kmb
Posted October 17, 2009 at 8:03 am
Report post

Hi Mrs. Bias
It seems you are having alot of problems. I am sorry to hear that. As far as the site you referenced, i read it to mean that sarc. could cause gastritis but it is very rare. Hey us guys are kings and queens of the very rare!!! I have had alot of GI involvement. Around 2000 when i was diagnosed(w/sarc by biopsy) i had CTs that said i had extensive thickening of the small bowel, my colonoscopy said there"may be inflamation of the small bowel", small bowel follow through series said i had a very rapid transit time of the barium. Despite all of these i was just passed along, no doctor ever did a damn thing!! I was told i might have IBS and was given an anti spasmodic i beleive was bentil(sp?) and fiber called perdium. I wish these helped but they didnt. Another test i had said i had an appendicolith which i looked up. It said that there was some type of growth or foreign something or other in the appendix, a HIDA scan earlier this year revealed an ejection fraction of 30%. My GI doc at the time said i needed my gallbladder out pronto and sent me to a surgeon. 'The surgeon said you dont need your gallbladder out that i needed to see my sarc specialist from 2000. After i went to him he said i wasnt presenting correctly for it to be the sarc!!! was told by(Dr Moeller at John Hopkins Sarcoid Clinic) i needed to see a Rheumatologist, I just saw him last week and he took a bunch of bloodwork, for the hundreth time. i just am on a shitty merry-go-round of doctors whenever i try to get help, its pitiful, i cant believe the type of care we get in AMERICA supposedly the most up to date country for medicine!! Yes, i have horrible gas, It is very embarrassing. fortuneately i have not lost control of my bowels (probably because i am on narcotic pain meds which stop me up with constipation)but i have had problems w/ starting urination. That is another page long story i will spare you, basicly i have neurogenic bladder, which means it doesnt want to work, so i drink tons of water so it HAS to come out, i just sit there and wait untill it decides it wants to come out. My mother wants to know when i will get a job!!!!!!! Unbelievable how my life has gone, i have a college degree and it does me little good if my body hardly functions. so no you arent alone. I am waiting untill my girfriend/significant other gets tired of me being a 'bum' and the unemployment check stops coming. i am approaching crisis mode. My last spell lasted 5 yrs approx. This time after 5 yr remission i have been 'disabled' for 1 yr.
Keep a stiff upper lip, hang in there, etc, etc, I hope you have better luck getting care than i have had.peace

By bbmolony
Posted October 17, 2009 at 8:45 am
Report post

Wow! I can truly relate. I've had all of these problems since my early 40's. I am now 67 and they are still there! I've had 2 bladder surgeries, plus I had diverticulitis in 2004, ending up with bowel resection and colostomy, which has gratefully been reversed! My husband has been a champ through all of this. No one has ever said anything about sarcoid in the digestive system.

Thanks for all the info, maybe I will follow up on this thought. Good luck to all.

Bobbie in Lockport, IL

By mrsbias
Posted October 17, 2009 at 9:51 am
Report post

KMB.....oh don't I feel ya. Hell I was told by my pulm doc to go and see a rheumatologist....FOR WHAT!!!!!! I drove an hour away from home...mind you I just had a hysterectomy last week...wasn't suppose to be out anyway....but when I got there...they weighed me..took my bp..height..then talked for a few minutes. Asking me where all the pain was only to tell me that my pain is coming from sarc and prednisone and that it looks as if I was having problems with my lungs and they don't work on lungs and didn't know what to do for skin sarc. Like I asked them for help in those areas..I thought I was there for pain...I did mention the gastritis.....they pat me on my back and told me I have a rare diesease that many don't know about and sent me on my way.
Oh they did say they couldn't do nothing for my pain because my dosage of prednisone was to high and that maybe my pulm needs to come with a better plan...being that I failed mtx. What a total waste of time. Then I call my pulm to ask if we can start weening off the sone...he never called back...had his nurse to call me and tell me that he was too busy at the time and we can discuss it on Monday. Not to mention my last appointment with him....I didn't even see him...he sent the nurse to the window with two inhalers for me for emergencies. Now what does that sound like. Looks to me that he no longer knows what to do for me are just not concerned.

By kmb
Posted October 17, 2009 at 10:53 am
Report post

Mrs. Bias
I am so glad u posted. It got me to thinking. I took a look at my records after i posted my reply. i had a couple questions for you. Have you had chrons and ulcerative colitis ruled out? i have had every GI test except the one where you swallow the camera pill. Doctors i think are alot like great wrestlers, practically imposible to pin them down, when it comes to making definitive statements. My 'sarc specialist' wrote in my report of my 2004 visit that my doctor should investigate the possiblility of an appendical fecolith, or appendicolith as the source of my pain. In 2ooo when i saw him he had all my tests results available to him as i had most of my tests done in house at Hopkins. Dont you know one of the CT of abdomen and chest said i had an appendical fecolith/appendicolith but that it didnt appear to be appendicitis. He totally missed that one. i had pain that would literally cut me in half and have me in tears on the floor and go to the ER at least a dozen times. I also had 2 docs(urologist and thoracic surgeon) say that my GI and Urological symptoms must be tied to a multisystemic disorder both before and after my biopsy results. You know i only recieved a one-two month trial of prednisone and when that didnt seem to help much i was told i needed to go to a pain clinic!! I asked if u had ever been told u had uc and chrons because i have had these ruled out , Sarcoidosis is the only disease/disorder i have ever had a firm diagnosis for (by biopsy). Despite this they never think Sarc causes these problems yet have no other answers, therefor no treatment for me, pay at the door on your way out, thank you very much.
I found in my records that i had (on CT)persistant filling defects in the distal stomach and proximal duodenum. There was soft tissue density in the stomach and considerable retained material despite fasting and laxitives prior to testing. Another CT said that i had esophagal thickening , colonoscopy revealed that my colon was long and lacked tone as well as having inflamation in my small bowel yet the doc said my colon is not (underlined) the source of my pain.
Basically i have had abnormalities from one end of my GI track(esophagus) to the other (sm. bowel). Nothing has ever been done for me!! I feel like a HOT POTATO that gets tossed from doc to doc after they all say "well you definitly have 'somthing going on', i want you to see this other guy and do more tests!!!! i have had more tests than my grandparents who are 78 and 81 years old w/ histories of cancer and heart problems. (have you ever had test results similar to these or the ones i listed in my first post?)

I feel utterly defeated in this life. I now also have stiff achy joints, and feet, rapid heart beat and palpitations, high blood pressure, high liver enzymes, muscle spasms in my back, jerking of legs/arms/body. Short of breath, bronchitis at least 3-4 times per year. Panic attacks, etc, etc.I feel like i am being eaten alive but no doc will put me on anything due to fact that they "dont know what it is" and it hasnt affected vital organs. I dont know what music you listen to but i feel King of Pain w/ lyrics "i will always be king of pain" by The Police back in the 80's is my theme song, yet i have to beg docs to help me when it comes to pain they dont want to give you anything its only sarcoidosis its not like you had anything seriously wrong like a sprained ankle or something. Even my mother expresses concern or rolls her eyes at me when she finds out that i was given percocet the other month, you know how addictive those things can be. I tell her i am too concerned w/ trying to ward off thoughts of killing myself due to pain to worry about addiction. I know i rambled like hell but you struck a cord w/ me when i read your post this morning. if anything you can at least know you are not the only one out there w/ docs who thing rarely seen or a small percentage translates to 0 possiblility of it being you. OK im done i feel much better, hopefully i helped you or someone else if you/they didnt fall asleep reading my "book" post first. i hope you feel better soon. peace

By mrsbias
Posted October 17, 2009 at 11:20 am
Report post

KMB....rattle on ...because it don't make no sense. To be honest I don't know what kind of test they ran. I was diagnosed with gastritis was back in the 90's...was hospitalized and turned loose. With no follow ups or nothing. I basically blame that one on myself...young and not taking nothing to serious. Plus I don't ever recall them giving too much advice like it was something for me to worry about. I remember being told to no longer have caffine and spicey foods. That's about all I remember...but I still didn't listen.
The sarcoids was confirmed through a biopsy...then it was only my lungs and lymph nodes in my chest cavaties. I have always had problems with my stomach...way back as far as a child....stayed constipated. Now that it has goten out of hand and I am concerned the doctors sound pretty much like what they are telling you....'There is definately something going on'. That's all I hear but no test and no attempts to see what the problem is. They treat sarc like...you got it...we can't cure it...so why bother...just take this medicine and hope like hell it helps you...oh but wait you can't stay on it too long although your illness will be for life!!!!!! Oh by the way don't complain cause I already have showed you I am clueless to what's going on with you and complaining only frustrates the both of us. Then they send you to all these other doctors that feel the same way. It should not take 50 doctors for one damn diesease. I am fed up. I can understand what you said about the pain meds too....it's either suffer or just take the s**t and deal with the consequences. I have my moments when 6 feet under seems so much better and relaxed and I hate feeling that way.

Welcome to Inspire!

Explore topics in this discussion:

17 replies

Add to the discussion

Help and information from FSR

Group leaders

You