Is it true that stress can bring flare up's. Starting all over with the pain in the back, legs, ankles and feet?
Loss of hair? The doctor's said they felt I would not have any flare up's 10% chance if that, but here I am not able to really walk due to the pain, can't lay, sit or move as it is getting worse and these past months the stress was unbelievable. So question is did it flare up is it possible? I'm still not understanding this disease at all and still question why?
I believe stress can definitely bring it on. I too was under tons of stress as of late and I have not been feeling well either. I also had alot to do physically so I'm sure that did not help. I hope you feel better soon.
Thank you and hope you feel better as well. I read your profile and the pain in the back and legs are very similiar. It does help to know that your not alone with this thing.
Stress has a HUGE impact on inflammatory processes. It also has a huge effect on the immune system as a whole as well (intially increasing it then depressing it over the long course for chronic stress).
Yes, it would be expected to be able to cause flare-ups from the standpoint that it makes sense (I don't know of any specific studies on the topic, unfortunately) and from the anecdotal side - I know stress makes me flare up; the worse the stress, the worse the symptoms.
Hello Paradox,
Yes I know the feeling:) Thanks for your input. PA it is really nice to know that none of us are alone.
What Paradox said :)
If the disease alone doesn't kill me the combination of my fiance and the disease will lol
Yes when I am stressed I always get flare ups. So I really try not to worry about much, especially if I can do nothing to change it. I am not going to allow it to kill me. Hope you feel better.
Thanks everyone for your input, support and concerns. I did not realize until now just how many peoples lives it has affected. It truly helps!
I just want to add to the other replies. I have found that the least amount of stress causes havoc in my body.
It has become evident to my co-workers as well as family & friends. They are always there to try & calm me down. They hate to see me ill the next day.
We all live stressful lives. I try to remember God is always with me to help me through life - that brings me great comfort.
Hope this helps you.
Jan
Thank you so much janhwc. Yes, it did help.
Very good point to remember that God is with us.
Thanks
Has anyone noticed a flare up in the Fall? Last Fall about this time, I noticed my chest hurting in the mornings when I woke up. It progressed to hurting throughout the day and then I began feeling like I couldn't get a good breath. I was diagnosed with Pulmonary Sarc. I've been taking Naproxin 500 mg twice a day for several months and it has really helped me. (I can't take Pred.) Now, in late Oct., I am having the same sort sort of pain in my chest and having some breathing issues. Can anyone else relate? Thanks for all the encouragement!
Yes!! Stress for me is the biggest tigger. I found out this last summer. I was moving and my oldest daughter move out to iowa and then told me she was getting married. And because of work and other things I was not able to go to her wedding. With all this stress it hit me HARD. My hip hurt 24/7. Could hardly walk. Somedays I could not even use my hands or my left arm. Even somedays i would drag my right leg around. It was then I knew I need to learn to de-stressed. I am still trying to figure that one out. But I am out of the flare now and I am kicking butt!!!!
Take care ..
Stress can exacerbate any situation. I know the “unknown element” of this disease has done a real number on my stress level. I have been dealing with Dr’s not getting back to me. Then the waiting game began. I think the most stressful part for me is not having the medical back ground and relying on Dr’s. Not having control frightens me the most. I am a type A personality and having someone else run the "shots" sort of speak, makes me uncomfortable. Prayer, supporting family members and friends help me get through the rough times. Best of luck to you and God bless.
To BevB - Yes, I have noticed more cough and chest tightness in the cooler fall months. In fact, for several years before I was diagnosed with Sarc, I thought I had fall/winter allergies since I always seemed to develop a cough around the same time every year. My work at the time was very stressful during Nov. & Dec., and with the holiday stress adding to the mix, I never did feel very good starting around mid-late November.
Hi everyone,
There has been some work on a protein called heat shock protein which is released in sarcoid. Heat is not a necessary part of the reaction however, ordinary everyday stress also releases HSPs as they are known. One paper is titled:
Serum anti-mycobacterial heat shock proteins antibodies in sarcoidosis and tuberculosis . Tuberculosis , Volume 86 , Issue 1 , Pages 60 - 67
A . Dubaniewicz , S . Kämpfer , M . Singh
Here's an access to another in sarcoid Uveitis
http://www.iovs.org/cgi/content/full/48/7/3019
Here's another on the basics of heat shock proteins and the turmoil they cause for our immune systems.http://www.antigenics.com/products/tech/hsp/
Here's wikis article on them: First parts are most relevant.
http://en.wikipedia.org/wiki/Heat_shock_protein
Pris
Add to the discussion