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I have just started my prednisone eye drops - 4 times a day - and wondered if I was going mad or could these steroids - although in the form of eye drops - affect my ankles - please don't laugh. But when I was on Preds in tablet form, my ankles swelled up really bad and as soon as I came off them, they were ok again within a couple of days. Now they have started to swell again. Can this happen?
im also on the pred eye drops. I have not had a problem with the swelling that you are having. I also take 10 mg of prednizone tablet form.
I went to the retinal dr this morning and both my eyes are still inflamed from this disease. last time I got a needle in my left eye, this morning it was in my right eye. Very painful. I dont know if the eye drops would cause swelling. You should definately call your eye dr and find out as maybe he/she could give you something else. Best of luck to you and keep in touch.
I am on tablets form of Prednisone generic . I also do not have swelling in ankles. May you were taking any other drug along with Prednisone which got interacted and caused you side effects. Make sure of it. You can find the list of drugs that interact with prednisone at http://www.internationaldrugmart.com/Sterapred.html
Hi Soosie,
I was on Prednisone for more than a year, in the early stages it helped me by reducing the mass in my lungs by 10%. So they increased the dosage to 75mg per day. That was the begining of the end of preds for me, as it affected my liver, my eyes felt like they were going to pop out of my head. I had such bad fluid retention and it did no more to improve the mass in the lungs. The pain in my joints were so bad at times I could not lift myself up out of a chair. So they reduced it over the year. I go every year for a check up with the opthomologist as a result of preds I now have a cataract in my left eye.
I am not taking any medications at the moment and have not for the past year. I have regular Bioresonance threrapy treatments 2x month. Had an open lung biopsy 4 weeks ago, as my lung specialst insisted that they need to make sure of their dx as the mass had increased and they wanted to make sure they were not dealing with Lymphoma.
I have been in increadible pain with this biopsy but seemd to be turning the corner with it now. I am a bit sorry that I had it done as they were 98% sure that I had Sarcoid to start of with, wish I had gone with the 98% to tell you the truth. I know that he wants to put me back onto preds but I am having nothing to do with that.
I have been staged as stage 3 Sarc, but since been on the altenate therapy I have been so well. My life has been fantastic, my profile pic that you see is exactly how I feel on the inside too. I live a very normal life. I have a new friend who has Sarc and is such a sick lady in and out of hospital. I can only tell you what I have experienced and it may not work for all people but I had nothing to loose, there are no medications that you take on this treatment that can be a threat to your health.
I am not a naive person and know that there is a place for Dr. and have great respect for them and will continue to be monitored by my specialist but there defintley is a place for alternate med, they should go hand in hand and I will be continuing to see my therapist.
Please take the time to look up the side effects of Prednisone.
God bless
Bubs
I also take pred eye drops 4 times a day.....along with 2 others. I believe the drops you are taking are only 1%.If so I don't think it will affect anything like your ankles. The tablets are another story.
If your Pred eye drops are not bringing your eye pressures down to 10-15 and inflammation is still evident then Kenalogue injections seem the logical next step. Pred by mouth (and even with the drops) does not work as well to initially get control of eye inflammation. The drops are short term emergency drugs to prevent blindness. The oral med is for longer term control and prevention of uveitis. But the injections are for urgent blindness prevention and uveitis that is not responding well to any form of Pred.
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
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