Extreme Dry Mouth and Throat

Does anyone deal with extremely dry mouth and throat. My mouth and throat are so dry at times, I feel like I am about to die. I can't swallow and it makes me choke sometimes. I get so scared because, my saliva glands aren't operating. I have a hard time gathering saliva. I sinus won't go away. I am so miserable. Somebody please tell me what to do.

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Ask your doc to do a Sjogren's blood test and a lip biopsy. Do you have Sarc?

Regards,
I.

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I have Sjogrens Syndrome and this is exactly what happens. You need a SSA and SSB blood test if these are positive than a lip biopsy will usually be done.

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If you use any sort of inhalers, always rinse afterwards.They have a tendency to dry out your mouth. Rinsing helps

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My sister has sjogrens and she has extreme dry mouth not to mention other areas! She chews special gum and that seems to help a lot. It's by perscription. She has other medicine for other areas as well. There is help out there. Good luck to you

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Yes I have Sarcoidosis. I was diagnosed July 2007. And what is Sjogrens?

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I have problems with my salivary glands as well. My ent tells me to suck on sour candy to stimulate production of saliva.
My mother has sjogrens. It generally effects the eyes and mouth and makes them very dry. It is a systemic disease however and can affect other organs in your body.

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I don't have sjogeren but confirmed salivary gland sarcoidosis. I would die of thirst all day long. But there are a few things you can do (appart from treating your sarcoidosis of course)

Chewing gum; xylitol chewing gum, i used to chew day and night, they keep your saliva coming in and you get much less thirsty.

Biotene artificial saliva. You have to put it on your tongue.

David

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Hi LadyBug,

You can find it here: http://en.wikipedia.org/wiki/Sj%C3%B6gren's_syndrome

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You could have thrush from using inhalers and/or Prednisone. Thrush is a yeast infection in the mouth and you can rinse your mouth with a solution of 50% Hydrogen Peroxide (3%) and 50% water. Here's what I do am and pm: I use my inhalers, then brush my teeth, then rinse with the hydrogen/water solution. Make sure to rinse thoroughly afterwards and don't drink any of if. But, if this doesn't help, it could be something else.

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Hi Ladybug
Not lately but in prior years I had the non saliva thing. I slept with kept with Hall"s or Cepacol always in my mouth. I am sick now and sleep with the Hall"s. But they also help with the saliva. I have good teeth but I recommend sugarless.
Sarc has so many things to go thru but we all usually get through them.
Good Luck and don;t let anything prevent laughter or a smile.\
Ellen

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The first port of call should be a rheumy to check for Sjogren's as everyone says.

If however, the Sjogren's is negative, you need to see an ear nose and throat specialist. Sarcoid can also get into the salivary, lacrimal and parotid glands and can disrupt salivary flow. Infection in the glands can also be a problem.

I suggest you contact a Sjogren's support group. You can buy replacement saliva (synthetic) which sounds unpleasant but is not, I have used it. If you don't keep you mouth lubricated, your teeth will suffer. You can also buy mouthwashes and chewing gum made especially for people with Sjogren's. These should be available at your pharmacist.

Pris

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I never heard of sjogrens before either. It is so much that you have to learn about this disease, Somthing new all the time. I do no my throat ,and the roof if my mouth stay sore and that is a pain as well.

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I think there's a big confusion here. If you have sarcoidosis normaly you cant have sjogeren cause all sjogeren syndromes are covered by sarcoidosis. Sarcoidosis often causes inflammations of the lacrimal and salivary gland. So of you allready have confirmed sarcoidosis it makes no sense to go look for an other disease to explain these problems cause they can perefectley be explained by your sarcoidosis.

Having sjogeren and sarcoidosis is very very rare. Heerfordt sarcoidosis typically involves lacrimal and salivary glands among others.

David


Davod

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Dear Lady Bug,
I understand what you are going through. I, too, have dry mouth, but my eyes are the worst! I have a friend also who has dry mouth just as you describe. There are medications such as evoxac and salagen which can give relief. I have taken evoxac for years with no problem. It stimulates your nervous system to produce more moisture. I also chew lots of sugarless gum. See your dentist about using a flouride gel tray before bedtime to prevent tooth decay.
God bless you. I hope you find some relief soon!

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Sjogren's and Sarcoidois are NOT a rare combination. In fact, it is common for ANY autoimmune disease to be combined with sjogren's syndrome. Never listen to anyone who assumes something. Always talk with your doctor to discover all possibilities that you may face while battling your disease. It's a rough road, but being armed with information is your best bet going forward. Everyone here has your back, but you have to lead that effort by being well informed. It's good to ask these questions and get feedback from others.

On a personal level, I was diagnosed with sjogren's before I was diagnosed with sarcoid. The doctors feel that my original diagnosis of SLE with sjogrens was incorrect, that it should have been sarcoidosis with sjogrens.

Visit the sjogren's support website to learn more: http://www.sjogrens.org/

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Hi LadyBug,

I have dry mouth, especially since I got a CPAP. My dentist recommened Biotin-Dry Mouth Mouthwash. They sell it everywere, I buy mine at Target. I was amazed at how much it helped. For the first time in weeks I didn't have to peel my tongue off the roof of my mouth in the morning. Use it 2 or 3 times a day, especially at bedtime. It is really helpful what ever the cause.

Virginia

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I have to agree. Sjogrens and Sarcioidosis is not rare. As a matter of fact they run together quite a bit. My Sarcoidosis is my primary disease and my Sjogrens is scondary. I have both. They are similar but different. When my pain is bad and I feel awful it is usually the Sarcoid. When I can't cry tears and my mouth dries up it is almost always the Sjogrens. The treatment is sometimes the same depending on how bad I feel. When I first got sick I read a book called Living Well With an Autoimune Disease. It was more geared towards Thyroid issues but coves quite a few other illnesses. The pages on Sarcoid speak to the Sjogrens being scondary or running together. It is a pain to have both.

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I think the above post by Virgina is referring to Biotene Mouthwash. Biotene Toothpaste works even better, it replaces the 'good' bacteria in your mouth and helps restore the normal flow of saliva.

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HI LadyBugDucre

I've suffered with extremely dry mouth for MANY years due to being a very nervous person, plus i take several med that do that to me. I used to be afraid of it, like that I'd choke or wouldn't be able to swallow, but believe me, those things won't happen. As a result of dry mouth, I drink a lot of ice water and if I'm not mistaken, that's good for a person. You might even want to pop a sugar-free hard candy, something like that. It won't hurt you and would make you feel much more comfortable. I know this is easy for me to say, but once you no longer fear it, it will actually improve or even go away. Try to stop torturing yourself; have you considered an anti-anxiety from your doctor. Those types of meds could be very beneficial for you. Good luck!

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Anyway i was diagnosed having salivary and lacrimal gland sarcoidosis. It cleared up with corticoids, imuran and remicade.

Before that i used xylitol chewing gum to cover up the symptoms, biotene artificial saliva and always a little bottle of water at hand, and artificial tears. I even kept chewing gum in my mouth at night.

David

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