Does Sarcoid affect the teeth, too?

I can be a bit paranoid about sarc and the ways it affects our bodies, but I swear I can't find another cause for all of the problems I am having with my teeth! I have started to have toothaches in otherwise healthy teeth and other oral problems. All of a sudden it seems. The dentist said he would be able to tell if my mouth has been hit with sarc by doing a panorama x-ray. Anybody else familiar with this problem/symptom? I take really good care of my teeth, get regular checkups, etc, etc. I'm getting a bit frustrated right about now :)

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Yes, I had normal healthy teeth before I got this disease and all of a sudden my gums are bleeding and I am sensitive to cold water. Toothpaste burns my mouth etc. My dentist only told me it had to do with the drugs I was on. Bologne!! I believe it is the disease. I have to do more than normal to take care of my mouth.

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Sucks, doesn't it? I'm not any meds for sarc right now and hate to think I have to start again to stop these symptoms.

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I have loose teeth and when I am having a flare up which is most of the time my breath is not very fresh even though I keep up my dental hygiene. My dentist says it is caused by the sarcoid and the meds I am on. He is very reluctant to do anything to my teeth or mouth because it bleeds so easily and he is worried about introducing infection which could make things worse. so he is very conservative with my treatment.

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I have loose teeth and when I am having a flare up which is most of the time my breath is not very fresh even though I keep up my dental hygiene. My dentist says it is caused by the sarcoid and the meds I am on. He is very reluctant to do anything to my teeth or mouth because it bleeds so easily and he is worried about introducing infection which could make things worse. so he is very conservative with my treatment.

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janepauline, I have experienced the bad mouth odor, too. I think I will ask my dentist to do what he can to see if sarc could be the problem to my mouth problems.

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Hello! I can offer you some info on the tooth issue. I have been having problems with my teeth for about the same amount of time my health started declining. My teeth are actually beginning to decay despite me brushing, flossing, dental care and good oral hygeine. The decay is at the gum line. I recently was referred to an oral surgeon by my dentist for an implant consultation and unfortunatley, the specialist said that I do not qualify for implants because of having an autoimmune disease and because of the meds I am on. If you have been on any Calcium supplement, you have to wait for at least a year without it before they can place implants and if you are on Prednisone cannot have implants. I experience the bad breath too. I think it is mostly caused by the dry mouth I always have.

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I had brain surgery about 14 months ago (neurosarc). My healthy teeth almost immediately turned black at the gumline. I am on prednisone and have been amongst other things. 5 teeth right in front on top now arent mine. Couldnt have implants, but she widdled them down to nothing and basically made new teeth out of some sort of slick stuff over the "nubs" that she left. I had crowns put on the back. My bottom teeth (which I havent done yet) still get really loose and sore but not the ones she fixed!

So, there IS something they can do. May need to see a few dentists. This one was pretty fresh out of dental school... but she was armed with new treatment options.

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I have always had great teeth, I am 37 and only 1 cavitay. My dentists usually compliment me on my teeth. The last 2 years I have had gum issues and my dentist says it's from having an auto-immune disease. I just hope it doesn't get worse.

Melissa

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Since being diagnosed two years ago, I had to get two root canals done, the teeth involved had been abscess and still causes so much pain after the procedure, I went back and told him to pull the tooth and to also do the tooth that broke. It was quite an operation as they had to cut into the bone to remove the fragments left behind after they removed the teeth. It took a few month to heal and I still get throbbing in other teeth from time to time! Isn't that weird how even are teeth get affected from this horrible disease.

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My sarcoid was actually discovered when the dentist started noticing bone loss in my bottom front teeth. I had oral surgery to try and save the teeth and the pathology report listed sarcoidosis as one of the possibilities of my problems. The teeth were fine - - the sarcoidosis was causing the bone to deteriorate. I've been on Prednisone off and on over the last three years since I was also found to have pulmonary sarcoidosis. There are times that my gums become red and sensitive, seemingly when I'm tired from not sleeping well (thanks, Prednisone). I go to two different dentists every three months and I keep my teeth extremely clean, but I now know that sarcoid can and will attack where it wants. I just try to be very aware of anything new and listen to my body.

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Thank all of you for sharing your experiences. You've let me know that my thinking sarc has hit my mouth is not just being paranoid. I,too, have had two root canals since my diagnosis; a year after one of them I lost the tooth anyhow. I recently got a bridge to replace that one.
I will ask my dentist what he can do to see if I'm right, then what we can do to help it.
Be well and God bless.

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katty
i tried to post but i dont think it did. i just signed on and i want to help what i know as well as increase my knowledge. i WAS stage 3 and now i am stage 1 via mayo clinic. i just got back and i was so incrediablly impressed with them. i told them of the unbelievable teeth and chest pain. it begins either in one spot or across my chest radiated to my neck and each tooth feels like a dry socket. they have me set for more test in sept. they tok me off the steroids yeh!!!! and advair. it was wonderful
asselah1@yahoo.com

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Asselah, thank you. Thank God for your good news!

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My last visit to the dentist was horrible. To replace a fallen out filling I received 11 or more needles and the novicane did not work. I did go to a different dentist and he wouldn't touch me. I was going to call another dentist but with this new chest pain I am going to wait it out. I have 3 fillings that are leaking but I also have an issue with the gum line and I am freaking out.

I hate strong toothpaste, it burns wicked, so now I use an all natural toothpaste and mouth wash. The mouth wash is also milder so I use it 2-3 times a day and I have an all natural mouth spray to carry with me.
The Crest mouth wash turned our teeth brown like so many other people out there.

The dentist told me between disease and meds we will have more dental issues. Like we can't have a pretty smile as we are stooping over!

Have a good wkend,
Gone Natural

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I have lost most of my teeth, and wear a partial denture. I have had root canals and crowns (broke all of them)...they kept telling me I was one of the people who's bone won't allow the teeth/root canals to stay. I even had peridontal work done and it didn't help. So I keep getting them pulled one by one ( I have 4 right now that need it but I have crappy dental insurance and can't pay up front) so eventually they will all be gone. I do think its from sarc, none of my siblings have had problems like this. And I have never taken steroids (yet!) so I can't blame it on that, I blame the inflammation.

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I have always loved to eat ice. Recently I can't even tollerate ice water touching my teeth much less have ice in my mouth. I am on 17 medications... surely one of them is the culperate.

Sabrina

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You can loose teeth because of sarc in the jaw. I have sarc in the jaw - confirmed by a biopsy in the socket of a tooth that fell out when eating an apple.

The sarc causes bone lose, which can be seen on xrays, however bone lose can be caused by other factors also. From my experience with sarc in several areas of my body, the only real conclusive diagnosis is by biopsy.

As I couldn't get an inplant (due to confirmed sarc in that part of my jaw) I had to have bridging. I also have to keep a close eye on all my teeth now for signs of sarc. Loose teeth can be a sign however I also grind my teeth at night which also causes loosness.

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This discussion has gotten more responses than I expected! I am often amazed at the symptoms we share, some of them not listed on sites that describe this disease. The most common description is, of course, sarc in the lungs, with the caveat that it can affect any body system. Well, you have all let know that our mouths (jaws, teeth, etc) can also be targeted, just like our lungs and skin. Thank you for sharing your experiences! Let's keep praying.

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My dentist says that my dry mouth makes me susceptible to tooth decay. I use a Rx toothpaste. Each tube lasts a long time and I don't think it costs much more than regular.

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I was diagnosed with neuro sarcoidosis in 2005, and immediately put on prednisone. 60mg a day for the first 1-1/2 years. I have since wiened down to "only" 10mg a day. During that time until today, I have progressively been losing my teeth at an increasing rate. My doctors told me it was most likely due to the steroids. I now have to wonder. I've been losing pieces of teeth for the last 3 years. I am at the point where I have to avoid a lot of foods that are not soft enough for me to chew. I had a crown for one of my front teeth, one day it loosened and fell out. I had fillings from grade school that have all fallen out, and the teeth they were in are gone down to the gum line. I have not had any health insurance almost since I was diagnosed. The company I worked for let me go because I became a safety risk. It took 2 years after my disability was approved to get my medicare in June of this year. I've recently found that their aren't any dentists in my area that will take medicare. Thankfully I'm not in constant pain, but it happens occasionally. I don't know what to do now. I'm getting close to the point that I will end up on liquids only, I guess. I'm at a loss at this point.

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

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