Disability for Sarcoid

I may have to quit my job because of the sarcoidosis. Has anyone applied for disability and got it because of sarcoid? Anyone in Kentucky? Any advice from someone who has gone through this would be greatly appreciated.
Thank you!

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i too had to quit my job ...that was 3 years ago. i applied for disability right away my doctors filled out every form and said that there was no way that they could deny me my disability. Well after years of going to their doctors and going before a judge they finally approved me .. but it was only ssi benifits because of my husband income. The Judge ordered them to pay me backpay but im still waiting on that ..... I live in Florida your state may be different so at least try ...

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I got approved for Social Security after 3 years but I received long term disability from my previous job while I was waiting. I have Pulmonary Hypertension as well but most of my symptoms were Sarcoid related. Have you had a PFT done ? If you did... what was your number on your DCLO? If it's under 40 you qualify. What problems are you having? Trust me...I've been through the ringer with SSD and I can pretty much tell you what they are looking for to approve you. Go for it...only you know what you can handle. Good luck.

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Hello PBJ, I receive disablilty because of my Sarcoid, It takes a while, but I do recommend hiring an attorney of disability advocate. I was told by my physician that I could no longer work and I applied. I was very ill and I was rejected. I appealed with the help of my diability advocate and won my case. When you fill out the questionares, always answer as if you are having your worst Sarcoid days. let them know how much you suffer and how you are limited in your daily performance. Make sure you list all of your doctors so that you can get the necessary information and get the ball rolling. Good luck, and most of all, I hope that you feel better. I am now going to make myself a peanutbutter and jelly sandwich. I wish you the best and if you have any questions, don't hesitate to ask me.

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Hi PBJ
I live in chicago I applied in march of 2009 and got my denial letter in july of 2009. I will file my apeal in the next few days. I talked to a lawyer who said call him back if they deni my appeal. So my fight begins I've been suffering since 1982 but didn't get diaganois until 1999. If anybody has any pointers on appeals let me know.

Good Luck and God Bless

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I was told that I would be denied for SS disability the first time by everybody I talked to. I prayed about this and was accepted the first time. Prayer works.

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My advice: Don't even try without a lawyer. It puts you at a disadvantage from the get go. I am deep in the process now, and if I knew then what I know now, I think it would be done. Lawyer, lawyer, lawyer. They know what they are doing.

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Hello PBJ. I have sarc, hypertension, and I also had knee surgery. you can get approved for sarc. praise the lord I just got approved july 22 I am waiteing on my monthly checks, and back pay. like regg said prayer is the best key. it worked for me also. go for it. and GOD bless you. have a blessed day....

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Good Luck, I live in Wisconsin and applied in February, denied in July. I still do not have a copy of my denial letter, just the info to appeal. At this time I am mad at God. I am even in a prayer chain and mine he did not answer. I was getting short term disability from my job at Eddie Bauer, but now their long term insurance says that the sarcoid is a pre-exisiting condition. I said my back was not like this when I started to work for you, I did not have the 2 strokes that I had at that job during the year I was their taking the store from 300 something to number 13, but that does not matter.
I just applied for unemployment. SSI seems to think that I can work and Eddie, filled my position as they know how advanced this condition is. I cannot get a job when I cannot even get out of the car.
I go through the Disability Group out of California. It was recommended by someone on here. I wish I would have called Allsup out of Chicago, they are fabulous to their people. They have an excellent success rate.
I have sarcoid, TIA's, Hypothyroidism, Depression, Fibromyalgia, and I still did not get approved.
My PFT is bad but my breathing test I passed. The lady made me sit there for over 2 hours until she got the readings that she wanted.
I failed the Occupational Function test, and they ignored the fact that the doctors and the guy who did the test stated I could not work any more and would be an occupational hazard. Good Luck Jolene

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What state do you live in?
Did you apply yourself or with the help of an attorney. Nothing is impossible when God is on our side. Thanks for sharing.

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To my shock, my disability was approved this Monday - first time I applied. I thought they were going to deny it since I've read that they deny benefits first and second time and even to people that are very sick - but my God answers prayers. I was diagnosed with sarcoid of the lungs in June 2008 and haven't wanted to take prednisone for a year but decided to give them a try. The worst symptoms are fatigue, weakness, body aches, shortness of breath. I am believing my God for a miracle. Prayer works, people. Don't lose hope.

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Wow. Can I ask what state you live in?
Did you apply or did you have an attorney?
I am trying to do my homework before I have to apply so that I am prepared.

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Congratulations, What state do you live in? Did your doctor's write you great letters? Did you go through a disability attorney? Thanks, Jolene

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I just applied for SSD in california. How long did it take for you to hear from them if you've been accepted or denied and how much work did your doctor have to do?

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PBJ, Jolene and Chiefs Chick:
I live in Rockland County New York. I did hire Binder & Binder but did not have to pay them because Social Security made the decision the day before they received the paper work from Binder & Binder. I wonder myself what my doctors wrote. I left my first pulmonologist because he wasn't listening to me and told me I wouldn't qualify for Social Security. My second pulmonologist referred me to the country's sarcoidosis expert, Dr. Teirstein from Mt. Sinai hospital in New York City but Dr. Teirstein did not accept my insurance. So he told me to make an appointment with a university hospital specialist, so I am seeing one from Columbia University. I like her and am going to see her in a month. I had asked my primary care physician if she thought I would qualify for disability and she said "yes" because I was short of breath. So my first pulmonologist (he was an idiot) said I wouldn't qualify and my primary said I would. So people find a doctor that will listen to you and also an attorney. I applied in April and received the decision this Monday August 3rd. Good luck to you all and don't lose faith.

Eve

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I'm in California. When I first applied for SSD I got it because I was under workman's comp and had attorney's working with me. Most people I know get denied initially and than have to appeal presenting the worst case scenerio possible. I remember for my review filling out a 25 page form- Don't be discouraged if you're turned down initially- I think they have to back pay you from the day you become disabled- I think having an attorney behind you is a good idea, especially with all the cut backs, baby boomers retiring and the country in financial crisis. Good luck to you - Joyce

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Applied feb09 (LTD insurance company hires a firm to help file Soc Second papers) - learned in JUL09 - approved.

BUT... I end up getting LESS$$ coming in... Here's how!

I have 3 children, and they are elig. to receive benefits as well! My oldest lives with my ex husband, so he gets her portion - -but the LTD co subtracts the total SSI payments under my name, regardless of if they live with us or not! MY EX HUSBAND IS PROFITING FROM MY ILLNESS, and I go further in the hole!!!

I told LTD co that I wished that I wouldn't have filed for SSI, and was told that they would have cancelled my policy. Crud. Can't win! Just lose, lose, lose!

(I'm in WA)

Good Luck all!
(P.s. I heard that if Sarc affects more tht one body system, you get apporved.

I think ONE THING that is absolutely VITAL to everyone, is to get copies of your medical records (including chart notes!!) I was SHOCKED about what my FORMER primary care physician had written!!! Unbelievable! Untrue, unprofessional and uncalled for! I was in the process of trying to figure out how to get this changed or at least a counter-statement put with her in the file!!

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I talked yesterday to SSI and they said that I was denied due to I was not severe enough. I think they went off the breathing test that the lady made me sit there until she got what she wanted. I have sarcoid in so many organs and also fibromyalgia, 2 TIA's, Hypothyroidism, and depression, also degenerative joint and disc disease and I was still turned down. I called my attorney from the Disability Group, and she said that they are seeing denials before they even have anything in. Even as short as 4 weeks. She said that they govt, is just denying more than they should the first time around. She said usually only 40 percent get it the first time, but they are seeing allot less, and that they are looking at different ways to fight to get them through. If I was getting my long term, while waiting it would not be bad, but they will not cover me as this is a pre-existing condition. Duh! Though my back was not like this until the end of the year, but they feel it is connected. Jerks!

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I used Allsup from the moment I applied. They are awsome. I was afraid I would not do the paperwork right so I called them. They did everything. It did take me a denial to get a win but I got it and the back pay. My monthly checks started soon after. I also get a small pension from my job I was forced to leave early and medicare. It was worth the wait.
I applied with Sarcoid, Sjogrens Syndrome, Fibro, osteoarthritis and migraines. Personally I think it is all Sarcoid.
My doctors were a Rhummy, PCP and my shrink. They told me the shrink helped a ton because she wrote about the depression I had at the time. Everytime I was in her office I was crying with big old black circles under my eyes from fatigue. She was very concerned and wrote down quite a lot of stuff. My rhummy talked about my difficulty with any movement and the fibro pain and my PCP covered all the rest.
Bunkie

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Prayer definitely helps. My son has neurosarcoidosis and he was told that he would need a lawyer also. But that was not the case. He received his disability the first time around in only a couple of months. We live in Denver, Colorado. All of his doctors were very thorough covering his symptoms, tests and his prognosis. Plus my son made sure that his forms were filled out completely. Yes we are very blessed.

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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