Diagnosis of MAI after bronchoscopy

I don't even know what I have. I've had nodules appear and disappear on my CAT scans. I had a lung biopsy (VAT procedure), I just had a bronchoscopy in 11/08. I've had 2 bouts with pneumonia, a pulmonary embolism, dry cough every day, shortness of breath on exertion, a positive TB skin test. So far they say I have MAI bacteria in my lungs and COPD (mild emphysema). I wonder if these symptoms point to sacoidosis. Noone has mentioned it as a possibility but lately I have come to mistrust my doctors because they seem baffled by my case.

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If you have a GOOD Pulmonologist, he/she should know the difference b/w COPD, a bacterial infection in your lungs, and sarcoidosis. You said that you recently had a bronchoscopy. Did the doctor performing the procedure remove a tissue sample of your lung to do a biopsy? Do you know if he/she did a BAL (bronchiolavage [sp?])? If a tissue sample was analyzed, your physician should have a good idea of what your problem(s) is. Have you had a PFT (Pulmonary Function Test) which lets your physician know the efficiency of your lungs?
I also test positive on the TB skin test but have been positive since childhood when I was exposed to TB. Years ago many patients were incorrectly diagnosed with TB when, in fact they actually had sarcoidosis. A knowledgeable Pulmonologist now knows the difference b/w these two diseases.
Don't give up on physicians; just give up on the ones you currently have. Remember you have the right to "fire" a doctor any time you want to and look for a new one.
Good luck!

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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