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My son sent me this info. Has anyone else heard this??
Some of the latest research has shown that it is bacteria in the granulomas that initiate and cause sarcoidosis. So this is definitely one autoimmune disease where antibiotics or supplements that kill bacteria or help the body to better kill bacteria can play a vital role.
BeachBumJan
Lyme disease West nile virus Autism ALS Prednisone Lupus Fibromyalgia Poliomyelitis Tuberculosis Sarcoidosis
hi jan. bacteria are commonly found in granulomas, caseating as well as non-caseating. (consider tuberculosis). in some diseases, drugs like antibiotics appear to help, but it is not clear that this works in all granulomatous illnesses, since factors beyond those of bacteria appear to be at work.
consider bacterial skin infections, not related to granulomas. if severe enough, there will be significant inflammation and eventual scarring. antibiotics help the initial infection, but other treatments are needed for the inflammation and scarring that follow.
it appears that granulomatous disease may be similar, and treatments may need to be aimed at the effects that continue, even if the bacteria remain.
very complicated and contentious topic.
Hi Jan, here is a link from Dr. Wonder Drake. Some research seems to be asking if immune suppression is the answer.
http://www.youtube.com/watch?v=w1HYq1dZzyg
I question immune suppression because my flare was 10xs worst when trying to be tappered off Prednisone.
Check out this book by Lida Mattman, PhD (Yale University) for pictures of the bacteria involved in sarcoid:
http://www.lymebook.com/cell-wall-deficient-forms-mattman
I believe this bacteria is transmitted by ticks just like Borrelia Burgdorferi (Lyme bacteria), Ehrlichia, Babesia, Bartonella, mycoplasma, etc.
We are in the midst of an epidemic of Lyme disease. People don't associate it with deaths like swine flu, West Nile virus, AIDS, etc, so the Infectious Disease Society of America and the American Lyme Disease Foundation are trying to keep a lid on this.
Borrelia is connected to many mystery diseases like Lupus, ALS, Parkinson's, CFS, Fibromyalgia, autism, and MS. Possibly our genetic pre-disposition has caused us to form granulomas in response to Borrelia and/or other bacteria.
I'm a sarc patient at Vanderbilt University in Nashville & have had the pleasure to work in several studies with Dr. Drake. She's told me from the beginning that there are quite a few cases of sarc that are caused by bacteria & antibiotic therapies seem to help these patients. Several years ago she was doing quite a bit of research on this topic. She is a wonderful person & I recommend researching her work or even joining a study if at all possible.
Just as an FYI: there is no significant research to prove sarc is an auto immune disease. It is currently listed as an unclassed disease with auto immune characteristics.
Could have a point there too... I was initially thought to have Lyme and could recollect being bit by a dog tick.
The autoimmune classification is interesting. I had a neuro@ CC (Dr Tavee) tell me sarc is autoimmune, no question.
Then I read on here that Dr. Parambil said it was an "immune disorder".... Parambil and Tavee treat patients together, including me but disagree on classification of the disease.
There is one problem.
That is the body has 10 times more bacteria then human cells.
http://en.wikipedia.org/wiki/Human_flora
http://www.sciencedaily.com/releases/2008/06/080603085914.htm
So do any of these bacteria cause sarc or just there.
Its just like lyme disease and sarc or fibromyalgia,
cause? or coincidence? because a large number of people test pos for lyme its a very common disease in the US.
Many people test pos for the antibodies of lyme disease. but many more test pos for the antibodies for Poliomyelitis and we know they never had the disease. but they have had the vaccine.
The other problem with it being a bacterial infection is it seldom runs in families with the same gene patterns.
if one family member has sarc and it was bacterial you should see it in other members of the family.
You should also see it more often among health care workers
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
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