Anyone read this: Official Patient's Sourcebook on Sarcoidosis

0 Recommendations

I found this when I was surfing this morning. Any of you know anything about this book? Would you recommend it or not?

The Official Patient's Sourcebook on Sarcoidosis
Title: The Official Patient's Sourcebook on Sarcoidosis
Author: James N. Parker M.D. and Philip M. Parker Ph. D.
Paperback: 304 pages ; Dimensions (in inches): 0.65 x 10.84 x 8.22
Publisher: ICON Health Publications; ; (June 2002) ISBN: 0597831564

List Price: $24.95
Available: www.amazon.com or Online Ebook

From the Publisher
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to sarcoidosis (also Besnier-Boeck disease; Boeck's sarcoid; erythema nodosum; Hilar adenopathy plus uveitis; Loeffgren's syndrome; sarcoid of Boeck), from the essentials to the most advanced areas of research.

The sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on sarcoidosis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. It explores basic techniques to researching sarcoidosis (e.g. finding guidelines on diagnosis, treatments, and prognosis), including information on how to get in touch with organizations, associations, or other patient networks dedicated to sarcoidosis. It also gives you sources of information that can help you find a doctor in your local area specializing in treating sarcoidosis.

This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers sarcoidosis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that sarcoidosis is often considered a synonym or a condition closely related to the following: Besnier-Boeck disease; Boeck's sarcoid; erythema nodosum; Hilar adenopathy plus uveitis; Loeffgren's syndrome; sarcoid of Boeck.

7 replies

Interesting.

I think I have enough free time that I dont mind searching the web for any info. But nice to know that there is some literature out there for those that seek it in hardback.

I do not know the book, but it looks like it has pretty poor reviews on Amazon from those who have puchased.

FYI - these two authors have created a whole line of "official patient's guide to:" but it is not clear what makes them official. They have covered a wide range of diseases with just the two of them and the books are all about internet resources - so don't necessarily expect to find the information at your fingertips in the book - don't expect easy explanations either - at least, that's my take.
These are "print on demand" titles, which means that they have not been traditionally published but when an order comes in they print a copy of the book for that order specifically.
Just some additional info I thought you might want.

Paradox, when is your book coming out? : )

Thanks for the info. I'm a firm believer that "if it looks too good to be true . . ." Ya'll just confirmed it with a few more facts.

Keep smilin', they'll wonder what your'e up to.

I would think a book that "tells patients where and how to look for information" would be pretty much useless! It doesn't say that the BOOK tells you anything about Sarcoidosis, just how to look up info! Just Google and save your money, or ask questions here or in the doctor's office.

:-) Michele C

I orderd the book, but a lot of the info in it I had already found online. Also a lot of the contact info for different groups listed was out of date.

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