Stop Sarcoidosis
Sarcoidosis Support Community in Partnership with Foundation for Sarcoidosis Research
About this community
The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.
Contact
1820 West Webster Avenue
Suite #304
Chicago, IL 60614
Phone: (312) 341-0500
info@stopsarcoidosis.org
www.stopsarcoidosis.org
Community Leaders
We'll my name D and i have tumros and swolen lypm nodes and i have likeseven biopsies and so many scans and blood works and now tumros are in my hips and chest and pelvis I'm on methotrexate and humr ... Show more
Hi all, As much as I understand how sarcoidosis works, it still feels like a mystery when I suffer extreme fatigue. Since having a colonoscopy last Friday I've suffered constant fatigue, crashing e ... Show more
I can see that the authors here are among the brightest on the internet. I am in the process of trying to figure out if I have sarcoidosis. I’m a recovered lung cancer (surgically removed, no chemo ... Show more
On Sunday night around 6 pm I started to get jarring pain in my lungs every 20 minutes. By 7:30 pm it was a constant dull pain. By 9:30 pm the pain had increased so I tried to sleep, thinking I would ... Show more
and it has been life changing as well as a game changer. Any men who may suffer from this disease and taking all of these meds it takes to mange it have any success stories with ED issues etc.? One ... Show more
I have recently been diagnosed with cardiac sarcoidosis and understand the first line treatment for this condition is steroids which I am unable to take due to having glaucoma. Has anyone else exper ... Show more
Hello I am struggling with small fiber neuropathy while being treated for cardiac sarcoidosis. I have finished prednisone but am still on methotrexate for another year. Right now I have zero life a ... Show more
I am a vet but I did not serve in the Gulf War I've been dealing with pulmonary sarcoidosis for almost 30 years and it has spread throughout many parts of my body many organs there's a horrible disea ... Show more
This piece was sent to Pastor Carnes by a member of the devotional family. “The Bummer Lamb” What happens to a little lamb that is rejected by its mother? It will hang its head so low it loo ... Show more
Are You Anxious To Meet People Here? Sure you are, so let's do this! We know…new people come to Inspire and they don’t know where to start, or what to do, so I am here to tell you….JUST JUMP RIGHT ... Show more