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Stop Sarcoidosis

About this Community

About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.

Contact

Foundation for Sarcoidosis Research
1820 West Webster Avenue
Suite #304
Chicago, IL 60614
Phone: (312) 341-0500
info@stopsarcoidosis.org
www.stopsarcoidosis.org

Community Leaders

Community topics
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Symptoms
Medications and side effects
Triggers and flare ups
Wellness and lifestyle
Living with sarcoidosis
Emotional support
For caretakers/loved ones
Stay up to date
Navigating relationships
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New
New reply March 29, 2024 • 5:38 AM

We'll my name D and i have tumros and swolen lypm nodes and i have likeseven biopsies and so many scans and blood works and now tumros are in my hips and chest and pelvis I'm on methotrexate and humr ... Show more

mccallnakeisha5701 replies1 Reactions

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New reply March 29, 2024 • 5:40 AM

Hi all, As much as I understand how sarcoidosis works, it still feels like a mystery when I suffer extreme fatigue. Since having a colonoscopy last Friday I've suffered constant fatigue, crashing e ... Show more

Dave81 replies0 Reactions
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New reply March 28, 2024 • 2:21 PM

I can see that the authors here are among the brightest on the internet. I am in the process of trying to figure out if I have sarcoidosis. I’m a recovered lung cancer (surgically removed, no chemo ... Show more

Dianeb-23 replies0 Reactions
New reply March 24, 2024 • 12:07 AM

On Sunday night around 6 pm I started to get jarring pain in my lungs every 20 minutes. By 7:30 pm it was a constant dull pain. By 9:30 pm the pain had increased so I tried to sleep, thinking I would ... Show more

Alda_beachgirl2 replies1 Reactions
Posted March 19, 2024 • 2:52 PM

and it has been life changing as well as a game changer. Any men who may suffer from this disease and taking all of these meds it takes to mange it have any success stories with ED issues etc.? One ... Show more

sammiesbarnes0 replies0 Reactions
New reply March 18, 2024 • 12:55 AM

I have recently been diagnosed with cardiac sarcoidosis and understand the first line treatment for this condition is steroids which I am unable to take due to having glaucoma. Has anyone else exper ... Show more

GerryHu1 replies1 Reactions
New reply March 15, 2024 • 9:33 PM

Hello I am struggling with small fiber neuropathy while being treated for cardiac sarcoidosis. I have finished prednisone but am still on methotrexate for another year. Right now I have zero life a ... Show more

LynnPetcoff1 replies1 Reactions
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New reply March 28, 2024 • 5:20 PM

I am a vet but I did not serve in the Gulf War I've been dealing with pulmonary sarcoidosis for almost 30 years and it has spread throughout many parts of my body many organs there's a horrible disea ... Show more

Fordtalisman6 replies5 Reactions
New reply March 27, 2024 • 2:29 PM

This piece was sent to Pastor Carnes by a member of the devotional family. “The Bummer Lamb” What happens to a little lamb that is rejected by its mother? It will hang its head so low it loo ... Show more

Mandymuff14 replies11 Reactions
New reply March 27, 2024 • 9:31 AM

Are You Anxious To Meet People Here? Sure you are, so let's do this! We know…new people come to Inspire and they don’t know where to start, or what to do, so I am here to tell you….JUST JUMP RIGHT ... Show more

Mandymuff43 replies18 Reactions