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Help me find Dr. video infront of medical interns

dinorino
  • By dinorino · Posted 2:49 am
  • Discussion in Family and friends · 0 replies
  • Last night I was reading discussion and came across one with a link to an award winning Dr. addressing a group of medica interns on Sarcoidosis. He received a baseball bat at the end of the Q/A session ...

Length of treatment

nanners74
  • By nanners74 · New reply 1:34 am
  • Discussion in Treatment decisions · 2 replies
  • Just started treatment for my sarc. Wondering how long treatment last and if sarc symptoms return after treatment stops. I have no lung involment but swollen salivary gland and lymph nodes in neck. Was ...

Shocking. It doesn't and won't happen in Oz (D)

priscurl
  • By priscurl · New reply 1:29 am
  • Discussion in Living with sarcoidosis · 8 replies
  • http://www.ctpost.com/health/article/Som e-debate-on-merits-of-fortified-foods-54 10488.php This little article is about fortification of food with vitamins. In Australia, only some breakfast cereal ...

LIVER CIRRHOSIS

robrich28
  • By robrich28 · New reply 1:11 am
  • Discussion in Living with sarcoidosis · 4 replies
  • HAS ANYONE WITH SARC DEVELOPED LIVER DISEASE.? THEY TELL ME NOW THAT I DEVELOPED PRIMARY BILIARY CIRRHOSIS DUE TO THE SARC. I NEVER DRANK SO I DON'T UNDERSTAND THE CIRRHOSIS. ROBIN ...

Echo of the heart ~ borderline- ?

Pennings
  • By Pennings · New reply 1:01 am
  • Discussion in Living with sarcoidosis · 4 replies
  • Back in January (2014) I had an echo of my heart after the pulmonologist ordered it. The nurse called me after a week and told me it was borderline. She also told me that the doctor recommended I have ...

APRIL SARCOIDOSIS AWARENESS MONTH

MZBIGGREDD
  • By MZBIGGREDD · New reply 12:59 am
  • Journal · 2 replies
  • April is MAKE A DIFFERENCE Sarcoidosis Awareness Month ... Sarcoidosis (pronounced SAR-COY-DOE-SIS) Many people have never heard of the disease, let alone the treatments and causes. Sarcoidosis is an ...

You are ALL Heroes!!!

chaplainstevens
  • By chaplainstevens · New reply 12:15 am
  • Journal · 6 replies
  • “We are hard pressed on every side, yet not crushed; we are perplexed, but not in despair; persecuted, but not forsaken; struck down, but not destroyed… Therefore we do not lose heart. Though outwardly ...

Why D may not be so good for systemic sarc.

priscurl
  • By priscurl · New reply yesterday at 11:12 pm
  • Discussion in Treatment decisions · 27 replies
  • Hi people, You know I am mad. I found a fascinating paper and wanted to comprehend what it is saying regarding the effects of 1,25D in sarcoidosis. This is not just about hypercalcemia, this is about ...

light skin patches on skin due to sarcodois Help

nodavis01
  • By nodavis01 · New reply yesterday at 10:18 pm
  • Discussion in Symptoms · 7 replies
  • Dose anyone have light pigmentation on skin due to sarciod. Help is there any thing that I can do? Norma Davis ...

Why I'm bald when I don't have cancer.

Casie78
  • By Casie78 · New reply yesterday at 9:36 pm
  • Discussion in Living with sarcoidosis · 2 replies
  • Not completely related to Sarcoid, other than the fact that it's my life, so everything involves being a Sarkie. On March 8th I participated in a fundraiser called St Baldricks, where you raise money ...

Subscription

plainTRUUS
  • By plainTRUUS · New reply yesterday at 7:46 pm
  • Discussion in Living with sarcoidosis · 7 replies
  • For those interested in keeping up on the latest I recommend subscribing to the site below. I registered a year or so ago and get notifications of new editions by e-mail. It is free (so far). http://www.mattioli1885.com/onlinejourna ...

Tree of life auction for Sarcoidosis

dapple14845
  • By dapple14845 · New reply yesterday at 5:03 pm
  • Discussion in Family and friends · 2 replies
  • I don't know if it has been mentioned here. These are very nice looking pieces being auctioned and proceeds to go to Promote Courage for Sarcoidosis. https://www.facebook.com/events/23573358 9884431 ...

A Lesson from The Apostle Paul

chaplainstevens
  • By chaplainstevens · New reply yesterday at 3:58 pm
  • Journal · 12 replies
  • Even if you’re in a place of extreme difficulty and your problems consume your thoughts, we must remember not to live out of a place of fear and defeat. It is during these times that we need to respond ...

Lung Function

thomka
  • By thomka · New reply yesterday at 3:50 pm
  • Discussion in Symptoms · 3 replies
  • I have had several Lung function test lately and the Allergist mentioned the lower part of the graph is flat when I inhale and indicates to him there maybe something that needs a speech therapist and ...

Youngest case?

Ralphetta
  • By Ralphetta · New reply yesterday at 3:50 pm
  • Discussion in Living with sarcoidosis · 4 replies
  • I'm wondering if anyone knows what the youngest reported case of Sarcoidosis is. I was diagnosed around age 40 and my nephew was about 31. I haven't heard of any really young people with it, but would ...

Just started using Symbicort

chaplainstevens
  • By chaplainstevens · New reply yesterday at 3:48 pm
  • Discussion in Living with sarcoidosis · 7 replies
  • Anyone have any opinions about this treatment? I have started having breathing problems and I was given Symbicort ...

Does "REMISSION in Sarcoidosis" Mean that EVERYTHING goes back to normal?

friend9
  • By friend9 · New reply yesterday at 2:24 pm
  • Discussion in Symptoms · 30 replies
  • NOTE: There is a request at the bottom of this post that I hope you will read all the way down to. Thanks! Here's the gnawing question I am being forced to struggle with: "Does 'TOTAL REMISSION' mean ...

Toronto Dr recommendation

mary2730
  • By mary2730 · New reply yesterday at 1:11 pm
  • Discussion in Treatment decisions · 5 replies
  • I'm on vacation and met a couple from Toronto whose daughter has suspected sarc. They are struggling to get a firm diagnosis, and not sure who to see. To me it sounds like they need an opthalmologist ...

Plaquenil

SWLASarcoidosis
  • By SWLASarcoidosis · New reply yesterday at 12:50 pm
  • Discussion in Treatment decisions · 8 replies
  • OK......I may have to start Plaquenil, but first I have to get my eyes checked to see if I can take Plaquenil. Are there anyone out there who is on this medication, if so, how is it working for you? Sabrina ...

Things that can help relieve STRESS

chaplainstevens
  • By chaplainstevens · New reply yesterday at 12:47 pm
  • Journal · 7 replies
  • 1. Go outside and breathe fresh air get out of the house 2. Do something for yourself.....go get your favorite milkshake and just chill 3. Go see a funny movie 4. Go visit someone that you love 5. Talk ...

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.