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All new and active discussions & journals

Symptoms from Sarcoid in Chest Lymph nodes

NHNick
  • By NHNick · New reply 4:44 pm
  • Discussion in Symptoms · 3 replies
  • Hello, I just was wondering if anyone that has been diagnosed with sarcoid in their chest lymph nodes only experiences weakness, fatigue, chest pain and digestive problems. My doctor says that my lymph ...

Twisted Colon?

MrsUyarlar
  • By MrsUyarlar · New reply 4:42 pm
  • Journal · 2 replies
  • What symptoms come from a twisted colon? I don't wanna complain but I cannot help but to wonder maybe my stomach be bloated more than usual! And the doc confirmed that I indeed have a twisted colol and ...

Picking myself up...once again.

mrsmariesmith
  • By mrsmariesmith · New reply 4:33 pm
  • Journal · 4 replies
  • Nearly 12 years after my initial diagnosis, I find my most difficult challenges of coping with this disease are mostly mental. Though my physicial symptoms wax and wane, go into remission and return ...

sick of feeling lousy

punkpred
  • By punkpred · New reply 4:32 pm
  • Discussion in Symptoms · 1 reply
  • ok febuary last year i started feeling lousy im 31 from england i used to be out with friends started sweating for no reason then came the dizzyness i have had headaches everyday for a few years i was ...

Imuran not working for me? Question for those with cardiac sarc

Woody2
  • By Woody2 · New reply 4:16 pm
  • Discussion in Symptoms · 5 replies
  • Hello, I've been taking 150 mg Imuran daily for 6 months now. Unfortunately I am still having palpitations and major joint pains and body aches. I am taking Toprol for the palps but I am so completely ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply 4:04 pm
  • Journal · 53 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

Big news today

keeliarhiannon
  • By keeliarhiannon · New reply 3:38 pm
  • Journal · 1 reply
  • I am still taking prednisone which they are slowly weaning me off from but i have been taking MTX as my primary medication now for a couple months and it makes me really sick to my stomach. After two ...

Tell us how you are treated...

ShannonZ
  • By ShannonZ · New reply 2:34 pm
  • Journal · 45 replies
  • at/by your doctors/nurses offices/clinics/hospitals... I am so sick of what has been going on at my doctors offices that I need to...i dont know ...build a group or protest or something... Let us know ...

Eyes and Sarcoidosis

melanie612
  • By melanie612 · New reply 2:27 pm
  • Discussion in Living with sarcoidosis · 10 replies
  • Hello, very new member! I've been living with sarc for about year now. Two weeks ago I had to go to the ER room due to my eyes. The Sarc has effected my eyes. Currently on disability. Has anyone else ...

The day is over

Landeleah
  • By Landeleah · New reply 2:23 pm
  • Journal · 3 replies
  • It is now Almost noon . I got up at 10 and for me now the day is over I am tired. thi is crazy. Funny I am too tired for the little computer man. He has too much energy. lol Is their anything for the ...

Approved for Remicade for Neurosarc

acinnc
  • By acinnc · New reply 2:15 pm
  • Discussion in Treatment decisions · 9 replies
  • I just got approved Remicade (Inflixmab) infusions and my first appointment is 3/15/10 at 2:30pm. Can anyone give me information on what to expect in my treatment, side effects, etc. I have neursarc and ...

"Please Read & Help Someone"!!!

Giamarie
  • By Giamarie · New reply 2:02 pm
  • Journal · 21 replies
  • I havent been on here but 2xs now,Iam getting worse,after the Hiatal Hernia surgery,I thought that would at least help some of my problem,well Iam right back to square 1.. Iam in constant PAIN everyday,bedbound,never ...

SUPPORT GROUP IN VA

cecbrooks
  • By cecbrooks · Posted 1:58 pm
  • Journal · 0 replies
  • Is there anyone interested in getting a support group started in the Charlottesville, VA area for Sarcoid ...

Why do i still having vitamin d deficiency symptoms after treatment?

bisan
  • By bisan · Posted 1:51 pm
  • Discussion in Treatment decisions · 0 replies
  • I am a 26 year old . Last April I started having palpitations, and I had been having dizzy spells. Of course the dr. checked my heart- no major problems. My thyroid level was ok. I was still sick about ...

Physical symptoms of Pulmonary Sarc

Margie74
  • By Margie74 · New reply 1:44 pm
  • Discussion in Living with sarcoidosis · 7 replies
  • I am curious as to how others experience the physical sensations of Pulmonary Sarc. I am currently being weaned off of Pred...just dropped from 20 to 15 mg. I was very disappointed to see the 5mg made ...

Holding down a job with chronic sarcoidosis

lovelypeckham
  • By lovelypeckham · New reply 1:39 pm
  • Discussion in Living with sarcoidosis · 44 replies
  • I just wanted to ask how everyone else deals with their normal day lives and especially how they deal with work. I have had sarcoidosis for about 1 1/2 years and am a full-time Physical Education teacher ...

New to Sarcoidosis

lcollins5
  • By lcollins5 · New reply 1:10 pm
  • Journal · 8 replies
  • I am new to this disease. I have been diagnoised and not showing any symptoms at all. I am confused and stress and my husband is gone to afganistan. Which makes me more stressed. I have never heard of ...

Thanks Bill & Karen Russell

FSR_Debbie
  • By FSR_Debbie · New reply 12:51 pm
  • Journal · 1 reply
  • Famed Boston Celtics basketball player Bill Russell and his daughter Karen, both sarcoidosis patients, have a long history of helping FSR raise national awareness of this disease beginning with a Public ...

Fighting to get by

keeliarhiannon
  • By keeliarhiannon · New reply 12:45 pm
  • Journal · 5 replies
  • So i am around month 6 of dealing with sarcoid and its starting to feel like i am getting nowhere. I am taking like 8 different medications right now and when I dont feel sick from the sarcoid I feel ...

Help!!! What type of Doctor do I Need

Foxy330
  • By Foxy330 · New reply 12:36 pm
  • Discussion in Help desk · 2 replies
  • Hi, I have just been diagnosed with Sarcoidois, my Ophtalmologist found it in my eye post-cataract surgery. He sent all the blood test result (tested positive for Sarcoid) to my Internist who has no clue ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this group

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. The Stop Sarcoidosis Support Community is sponsored by the Foundation for Sarcoidosis Research in partnership with Inspire.