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Good morning

Honey7
  • By Honey7 · Posted 10:43 am
  • Journal · 0 replies
  • No Jinx, I'm feeling good this morning!! Praying this body keeps feeling like this ...

Side effects to Stopping Plaquenil??

MommaWesty
  • By MommaWesty · New reply 10:36 am
  • Discussion in Treatment decisions · 2 replies
  • Guys, Are there side effects to stopping Plaquenil? If so, what? How soon after do you feel the effects of Sarcoidosis? Michele ...

Chicago support groups

PreciousPow
  • By PreciousPow · Posted 10:16 am
  • Journal · 0 replies
  • Can anyone help me with find support groups in Chicago ...

alone

Shaun43
  • By Shaun43 · New reply 10:13 am
  • Journal · 6 replies
  • Today I learned that I only have 2 true people in my life that truly support me. My heavenly father and my mom. I have been having a really tough few days and my spirits have been low. I have prayed and ...

Sarcoidosis + Social Security Disability

plainTRUUS
  • By plainTRUUS · New reply 10:05 am
  • Discussion in Living with sarcoidosis · 2 replies
  • Not very encouraging, but not impossible. Simply describes the process that usually occurs when sarcoidosis is the basis of your claim. http://www.socialsecuritydisability.tv/s ocial-security-disabling-conditions/sarc ...

Bruising - Why? Medicine?

MommaWesty
  • By MommaWesty · New reply 9:45 am
  • Discussion in Symptoms · 10 replies
  • Help everyone, Does Sarcoidosis cause bruising? I'm bruising and they don't seem to go away. Medicine? Michele ...

Tremors of Hands/Arm

laurietrav42
  • By laurietrav42 · New reply 9:01 am
  • Journal · 38 replies
  • Hello, I'm posting an entry to see if anyone out there has been experiencing intermittent tremors of the hands/forearm? I've been experiencing the tremors off and on for approximately 6 years now, with ...

Sleeplessness with sarcoid

Koehne
  • By Koehne · New reply 8:44 am
  • Discussion in Emotional support · 5 replies
  • I have a son with pulmonary sarcoidosis and who was born with CP. He has 2 teenage daughters who are very active. Had this disease since 1992. Took steroids for 5 years off and own. Has never slept well ...

New Diagnosis

ShenValleyGirl2013
  • By ShenValleyGirl2013 · New reply 8:09 am
  • Discussion in Treatment decisions · 5 replies
  • Just in rounding the bend of a six month journey to this diagnosis. Now what? Lung nodes and lymph involvement. TIRED a LOT and it's ticking me off! Energy drinks are my new BFF! Looking for TONS of info...diet ...

Not Looking Forward To Today

Sarcoidosis22
  • By Sarcoidosis22 · New reply 7:32 am
  • Discussion in Treatment decisions · 17 replies
  • Hi Guys: I am pretty nervous right now. I got up super early cause I couldn't sleep. Today, my husband and I are going to Toronto to start my 3-day regimen of exercising at a hospital for people getting ...

A Doctor's View of Patients with Chronic Disease (an open letter)

coonhound
  • By coonhound · New reply 5:25 am
  • Journal · 23 replies
  • I stumbled across this open letter to patients w/ chronic disease. So many of our posts are about doctors (good/bad/indifferent) I felt this was quite releveant and may help one to understand where the ...

What are the definitions of each STAGE of SARCOIDism ?

Xtien
  • By Xtien · New reply 2:13 am
  • Discussion in Symptoms · 5 replies
  • Where can I find this info ...

Updates

concernedhusband77
  • By concernedhusband77 · New reply yesterday at 6:58 pm
  • Discussion in Living with sarcoidosis · 16 replies
  • Well it's been awhile since I last posted, I changed my e-mail and couldn't retrieve my password. My wife was diagnosed with Pulmonary Sarcoidosis in August of 2012 after being sick for nearly 6 months ...

New Sarcoid and Breast Cancer Diagnosis

Lfosco
  • By Lfosco · New reply yesterday at 5:35 pm
  • Discussion in Treatment decisions · 10 replies
  • Was just diagnosed with Stage 2A breast cancer, and elected to have a partial mastectomy (with sentinel lymph node dissection). Found sarcoid in my lymph nodes during surgery. CT scan confirmed diagnosis ...

"Put your LIFE up this is a HOLD UP."

MZBIGGREDD
  • By MZBIGGREDD · New reply yesterday at 2:52 pm
  • Journal · 10 replies
  • "Put your LIFE up this is a HOLD UP.....What Do You Do When Disease Illness & Chronic Pain Robs You Of Your Identity?" "Pain, pain, go away, please I beg you don't come back another day!" One day I left ...

Is this the Deal?

Honey7
  • By Honey7 · New reply yesterday at 1:54 pm
  • Discussion in Emotional support · 1 reply
  • Good Morning, goodness!! All I did was wake up, thanks to God. Why do I have knots in my chest, and back, and mouth. Wow!! I cry, when I'm like this. No one understands the crying for me, releases someone ...

Pain and Depression go Hand in Hand

chaplainstevens
  • By chaplainstevens · New reply yesterday at 11:38 am
  • Journal · 16 replies
  • I have lost two good paying jobs because of my Sarcoidosis; I also had to care for my dying mother that had bone cancer, renal failure, and Dementia. Needless to say all of these things affected me and ...

Newly diagnose

Ashmee612
  • By Ashmee612 · New reply yesterday at 11:38 am
  • Journal · 13 replies
  • I am so thankful to have found this community.. I was formally diagnosed on last Thursday, 6-12-13. I had a CT scan of my chest on Mother's Day for something completely (or so I thought) unrelated. It ...

Interesting UCLA research

DJ2003
  • By DJ2003 · New reply yesterday at 11:12 am
  • Discussion in Emotional support · 6 replies
  • Hi fellow sarkies, I received this link by email and thought it was worth sharing with members here. http://newsroom.ucla.edu/portal/ucla/cha nging-gut-bacteria-through-245617.aspx DJ ...

sarcoid constant cough

jejred1
  • By jejred1 · New reply yesterday at 10:20 am
  • Discussion in Treatment decisions · 20 replies
  • Have been coughing almost non stop since October 2012 and today is June 13th, 2013. In February went to Pulmonary Doctor and after discussion of all meds for Bronchitis and allergies we decided to do ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.