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Sarcoidosis and Sinusitis

Emerald519
  • By Emerald519 · New reply 8:42 am
  • Discussion in Living with sarcoidosis · 4 replies
  • Hello. I was diagnosed with Sarc a year ago and it was discovered in my sinuses. I could not breath through my nose in a year and went to a few MD's who had no clue what it was. One ENT Dr. tried putting ...

Back Pain

Kerrieichenberger
  • By Kerrieichenberger · New reply 7:57 am
  • Journal · 7 replies
  • So, Saturday I started to experience some upper to mid Back Pain. I automatically assumed it was another Kidney Stone but (because I don't have insurance) after I Spent $81 on a doctor visit. I first ...

Can Sarcoid. cause diabetes?

Angelscon
  • By Angelscon · New reply 7:16 am
  • Discussion in Triggers · 2 replies
  • I was diagnosed back in 2000. I have had a lot of different problems. However I have recently been diagnosed with type 1 diabetes. I have NEVER had diabetes before. It started about a year ago and I was ...

is my sarcoidosis coming back?

rachita
  • By rachita · New reply 6:54 am
  • Discussion in Living with sarcoidosis · 12 replies
  • I was diagnosed with sarc in January 2013. My SACE level was 143, and I had extensive lymphadenopathy with plural involvement. I had sarcoidosis in my eyes and skin as well. I started with prednisone ...

Chronic Fatigue

mary2730
  • By mary2730 · New reply 6:10 am
  • Discussion in Living with sarcoidosis · 5 replies
  • http://www.today.com/health/chronic-fati gue-real-new-brain-scans-show-1D80250083 Since many of us with sarc also get a diagnosis of Chronic Fatigue Syndrome, I thought you'd appreciate some new research ...

Back pain relief for me

LemonDream
  • By LemonDream · New reply 5:30 am
  • Discussion in Symptoms · 12 replies
  • After I started pred I got shingles and the back pain never went away. Had a stabbing, nagging pain in my spine and burning nerve pain in my flank. Had x-rays and they said it was osteoarthritis one time ...

Dental issues

Dbtay
  • By Dbtay · New reply 2:28 am
  • Discussion in Living with sarcoidosis · 9 replies
  • I would desperately like to hear from other sarc patients that have experienced extreme dental issues since being diagnosed. This month alone I have had 3 cracked teeth exposing previous fillings. Today ...

Pulmonary Sarcoid and abnormal heartbeats

LRMO8
  • By LRMO8 · New reply 1:13 am
  • Discussion in Living with sarcoidosis · 1 reply
  • Hi, I was diagnosed in 2007 with pulmonary sarcoidosis. I have lived well without steroids and have been a runner. In the past year, my running has suffered and was finally diagnosed with abnormal heartbeat ...

The biological effect of stress on the body

plainTRUUS

Neurosarcoid for 8 years.

janeclive
  • By janeclive · Posted yesterday at 10:46 pm
  • Journal · 0 replies · Photos
  • Diagnosed after becoming breathlessand fatigued. Became very ill very quickly. Had to retire from nursing a job that I loved. Have had uveitis, left sided facial palsy, numbness and tingling of various ...

Questioning

sarcscare
  • By sarcscare · New reply yesterday at 10:42 pm
  • Journal · 3 replies
  • Similar to "How Do You Know?" Last few weeks I am experiencing different pains. Giving up to 'old age'. But today I called in sick to work. I stayed in bed from 8 until 3pm. So fatigue, aches and weird ...

Back on the Prednisone

Shadron
  • By Shadron · New reply yesterday at 10:26 pm
  • Journal · 23 replies
  • With the recent expansion and flare up if my Sarcoid, I had to make the descision to go back on Prednisone.Because I have weekly blood work which I can see for myself online, I made the desiscion to only ...

OUR EYES AND SARCOIDOSIS

LaiLani (Inactive)
  • By LaiLani (Inactive) · New reply yesterday at 9:31 pm
  • Discussion in Treatment decisions · 12 replies
  • Tomorrow I FINALLY get to see the eye doctor. I so hope nothing is found concerning sarc. Or Sjorgrens for that matter. My last ophthalmologist had some concern with this. I have had an infection near ...

thigh muscle weakness

saksfifth44
  • By saksfifth44 · New reply yesterday at 5:57 pm
  • Discussion in Symptoms · 1 reply
  • Still having strange thigh weakness and a bearing down sensation on left . I am still taking 20 mg pred. as well as trental and placquenil. Also use pulmicort inhaler. Sometimes I feel like I am wearing ...

Cat scratch and sarcoidosis???

valynn
  • By valynn · New reply yesterday at 5:10 pm
  • Discussion in Help desk · 13 replies
  • Does anyone know if cat scratch and sarcoidosis are linked in any way?? I was diagnosed with cat scratch when I was 18 and sarcoidosis when I was 28.. Does anyone know if cat scratch could be a possible ...

ARA-290 Gets Fast Track from FDA

mary2730
  • By mary2730 · New reply yesterday at 4:28 pm
  • Discussion in Treatment decisions · 9 replies · Photos
  • http://www.prnewswire.com/news-releases/ araim-pharmaceuticals-given-fda-fast-tra ck-designation-to-ara-290-for-the-treatm ent-of-sarcoidosis-associated-small-fibe r-neuropathy-280635872.html For those ...

thigh muscle weakness

saksfifth44
  • By saksfifth44 · Posted yesterday at 4:04 pm
  • Discussion in Symptoms · 0 replies
  • Still having strange thigh weakness and a bearing down sensation on left . I am still taking 20 mg pred. as well as trental and placquenil. Also use pulmicort inhaler. Sometimes I feel like I am wearing ...

confused

lisamj
  • By lisamj · New reply yesterday at 3:58 pm
  • Journal · 7 replies
  • I've been suffering with sarcoidosis for 11yrs I was first diagnosed Nov.28,2004 I have pulmonary sarcoid and I've had skin and heart problems too now my Dr thinks I may have neurosarcoidosis been suffering ...

WISE Study Sarcoidosis Research

DJ2003
  • By DJ2003 · New reply yesterday at 3:33 pm
  • Discussion in Living with sarcoidosis · 3 replies
  • Hi all, I just did my 6 month WISE study update today. They are still looking for participants. I know that so many of us are part of the 1,703 people who are participating. However their goal is 2,000 ...

cardiac sarc

petlady
  • By petlady · New reply yesterday at 11:14 am
  • Discussion in Symptoms · 1 reply
  • What are the usual symptoms of cardiac sarc? Gale ...

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.