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SJS How are you?

uveitisguy

God Can STILL Use YOU!

chaplainstevens
  • By chaplainstevens · New reply 10:55 pm
  • Journal · 2 replies
  • The next time you feel like GOD can't use you, just remember... Noah was a drunk Abraham was too old Isaac was a daydreamer Jacob was a liar Leah was ugly Joseph was abused Moses had a stuttering problem ...

Coughing - Olive Leaf

jefgold
  • By jefgold · New reply 10:33 pm
  • Journal · 39 replies
  • I have been recommended by Ozealan to try Olive Leave tablets which has stopped his cough. The tablets are by Healthy Care and are called Olive Leaf 3000 which are found in Chemist Warehouses in Australia ...

Please Help!!! I am scared!! Neurocarc

love4g0d
  • By love4g0d · New reply 9:52 pm
  • Discussion in Symptoms · 36 replies
  • I still have yet to be officially diagnosed, so no treatment has started. My doctor is 99% sure that I have it, but says without a definitive diagnosis, he cannot start treatment. My journey started because ...

A Cure

SpiritWolfStarr
  • By SpiritWolfStarr · New reply 9:17 pm
  • Discussion in Family and friends · 33 replies
  • Everybody out there with Sarcoidosis; Do you know that thier is no cure for our Disease. Why? Because Nobody is looking for one, NOBODY. It is like we are the lepers, the lost, most people never even ...

Recent Advances in Sarcoidosis

plainTRUUS
  • By plainTRUUS · New reply 8:23 pm
  • Discussion in Living with sarcoidosis · 4 replies
  • 2011: Adam S. Morgenthau, MD, FCCP; Michael C. Iannuzzi, MD, MBA, FCCP http://journal.publications.chestnet.org /article.aspx?articleid=1045367 ...

Cutting back on meds

Susan123W
  • By Susan123W · New reply 7:41 pm
  • Discussion in Living with sarcoidosis · 2 replies
  • I would like to speak with anyone who wants to draw back on their sarc meds. In my case it would be plaquenil. Has anyone stopped taking their meds with good or poor results? Susan ...

really scared with sarc

christisl33
  • By christisl33 · New reply 7:08 pm
  • Discussion in Emotional support · 2 replies
  • hi i have posted before but I have to admit the more I hear about this disese the more scared i get. i have never been this sick in my life and am getting a lot of worrying symptoms but not sure if it ...

Disordered TLR 2 responses in the pathogenesis of pulmonary sarcoidosis

J5W
  • By J5W · New reply 6:51 pm
  • Discussion in Triggers · 11 replies
  • http://www.ncbi.nlm.nih.gov/pubmed/23668 840 More evidence supporting Chen and Moller ...

Losing Your Faith

chaplainstevens
  • By chaplainstevens · New reply 5:05 pm
  • Journal · 22 replies
  • I used to always wonder how a person could "lose" thier faith, that was when I was young and strong, being in chronic pain and illness the last 11 years helps me better understand HOW a person can lose ...

Green Mile Star Had Sarcoidosis

chaplainstevens

can you eat edibles of marijuana instead of vic and oxy for pain.

Achiever
  • By Achiever · New reply 2:59 pm
  • Discussion in Treatment decisions · 7 replies
  • tired of taking narcs for pain all the time they make me sick to my stomach. I'm already on metheroxate my goodness. don't want to smoke it. but if eating it can relax me why not tired of medications ...

Chicago Suburbs Meeting Sat May 18 10am-noon

MadMaxLes
  • By MadMaxLes · New reply 2:50 pm
  • Discussion in Emotional support · 10 replies
  • Come and join us - walk-ins welcome! "Let's Breathe" Sarcoidosis Support Group By supporting each other, our problems become less fearsome. Our purpose is to provide support, conversation and friendship ...

steroids

runfree
  • By runfree · New reply 1:52 pm
  • Discussion in Living with sarcoidosis · 2 replies
  • Doc wants me to take steroids as the sarc has flared up again. I'm quite scared of getting into this sort of treatment but am finding the fatigue is preventing me doing my work. Retirement is an option ...

myclonic jerks and diagnoses

spencer66
  • By spencer66 · New reply 1:24 pm
  • Discussion in Triggers · 21 replies
  • Hi, Just came into this group, so not sure what I am doing yet. But I would like to know if anyone out there. Has actually been diagnosed with why they have myclonic jerks? Apparantly there is many reasons ...

ssdi

keylia
  • By keylia · Posted 12:07 pm
  • Discussion in Emotional support · 0 replies
  • Do anyone know any lawyers who handle ssdi at the federal level ...

A weekend without prednisolone

denise101161
  • By denise101161 · New reply 11:19 am
  • Discussion in Living with sarcoidosis · 11 replies
  • We went away for the weekend and i forgot to take my med's with me, well i felt fantastic i slept like a baby for the first time in ages i felt like the old me was bad, unfortunately i'm back on them ...

EYE PROBLEMS

staceykneal
  • By staceykneal · New reply 11:10 am
  • Journal · 7 replies
  • I am having problems with my eyes with sarcoidosis. My tear ducts are closed or clogged. Either way my right eye constantly leaks and stays full of mucus. All day long I am constantly having to clean ...

Foot Numbness??

Bluedreams32
  • By Bluedreams32 · New reply 9:23 am
  • Discussion in Living with sarcoidosis · 16 replies
  • Did or does anyone have numbness in their feet? This issue has started to get progressively worse over the last month and is utterly perplexing? :-( It feels like I'm walking on mushy stuff and tingles ...

lymph node biopsy .

steffanmarks
  • By steffanmarks · New reply 8:09 am
  • Journal · 10 replies
  • Hi folks, I meet my surgeon on 21 st May to discuss lymph node biopsy results . I had a mediastinoscopy on 1 st may to extract a node . Three weeks since the op seems a long time , frozen section was ...

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.