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Colloidal Silver

PillBug
  • By PillBug · New reply 3:53 pm
  • Discussion in Family and friends · 18 replies
  • I was wondering if anyone has tried colloidal silver. I ordered some and have been using it for a bad cough I am having...it hasn't helped much...I am wondering if I should up my dose ...

Many alternatives for Sarc

caroline2
  • By caroline2 · New reply 3:46 pm
  • Discussion in Treatment decisions · 7 replies
  • I don't deal with Sarc but study a lot of health conditions and have been taking the powerful antioxidant Grape Seed Extract for about 2 decades soon. On another health group I was on for many years some ...

pulmonary hypertension

saksfifth44
  • By saksfifth44 · Posted 3:09 pm
  • Discussion in Living with sarcoidosis · 0 replies
  • Has anyone developed pulmonary hypertension as a result of pulmonary sarcoid? Whats it like? What are some symptoms ...

11-26-14 Picture

RonLS
  • By RonLS · New reply 2:52 pm
  • Journal · 3 replies · Photos
  • September Morning. Big Horn Basin, Lovell, Wyoming As the sun crept up above the mountain peaks I sat at the edge of a hillside looking across the Big Horn Basin with heart Mountain proudly standing before ...

Prayer Group for Inspire

chaplainstevens
  • By chaplainstevens · New reply 2:47 pm
  • Journal · 179 replies · Photos
  • If anyone would like to join me at 6AM for an Inspire prayer time feel free, post your prayer concerns in the Journal and we can all touch and agree and take our request to God. All are welcome to join ...

swollen lymph glands

tporte
  • By tporte · Posted 2:33 pm
  • Discussion in Living with sarcoidosis · 0 replies
  • Has anyone found anything that helps with the swelling in the lymph nodes. The swelling in my glands in my neck gets so bad at times it gags me and feels like someone is checking me. Some days are worse ...

swollen lymph glands

tporte
  • By tporte · Posted 2:32 pm
  • Discussion in Living with sarcoidosis · 0 replies
  • Has anyone found anything that helps with the swelling in the lymph nodes. The swelling in my glands in my neck gets so bad at times it gags me and feels like someone is checking me. Some days are worse ...

Prednesolone steriods side effects

Nooneinparticular
  • By Nooneinparticular · New reply 2:32 pm
  • Discussion in Living with sarcoidosis · 3 replies
  • Hi, I am am new here and have a question about prednesolone steroids. I am taking 60 mg on alternate days and adding azathioprine so I can reduce the steroids. But I have noticed that the steroids are ...

Mayo Rochester

lvisrn
  • By lvisrn · New reply 1:55 pm
  • Discussion in Treatment decisions · 4 replies
  • I had visited Mayo, MN this past August. Health issues with sarcoidosis and rheumatoid arthritis. The pulmonologist that I saw was Dr Eva Carmona Porquera. I can honestly say that I was not impressed ...

Venting

SUGIANT
  • By SUGIANT · Posted 1:46 pm
  • Discussion in Living with sarcoidosis · 0 replies
  • I have had an interesting year. As I've said in the past I have Cardiac Sarc and at the beginning of the year I had an ablation which seemed to work pretty well. I also broke my foot very mysteriously ...

Be Not Afraid!

priscurl
  • By priscurl · New reply 10:04 am
  • Discussion in Living with sarcoidosis · 34 replies · Photos
  • There have been reports in the media in the last couple of days regarding low vitamin D levels being a cause of early death. Cause is not the right word here - associated yes - cause NO! If low vitamin ...

Can we explain medically unexplained symptoms?

plainTRUUS
  • By plainTRUUS · New reply 10:01 am
  • Discussion in Living with sarcoidosis · 15 replies · Photos
  • Current research challenges several assumptions about MUS (medically unexplained symtpoms). Among these are the ideas that stress causes symptoms, and that patients must be prevented from developing 'somatization ...

11-24-14 Picture

RonLS
  • By RonLS · New reply 7:50 am
  • Journal · 9 replies · Photos
  • Cabin remnants, Bald Mountain, East of Lovell, Wyoming This was a gorgeous October day on the Big Horn Mountains! We stopped at this cabin on the side of Bald Mountain at literally every corner I found ...

11-23-14 Picture

RonLS
  • By RonLS · New reply 6:58 am
  • Journal · 9 replies · Photos
  • Wild turkeys, Yellowtail Habitat Area, Lovell, Wyoming The bi-polar weather continues way sub zero last week and up into the mid if not high 40's today. This was taken just a few weeks ago before the ...

11/25/14 Picture

RonLS
  • By RonLS · New reply 6:55 am
  • Journal · 6 replies · Photos
  • Stone Pillar at the top of Cottonwood Canyon, Lovell, Wyoming In mid September the air was simply perfect; lightly scented with sage and pine as it meandered through the canyon and as I lifted my head ...

Traumeel for pain

melliepeas
  • By melliepeas · New reply yesterday at 11:23 pm
  • Discussion in Treatment decisions · 3 replies
  • Hi, has anyone used Traumeel homeopathic herbal medicine to help with inflammation and joint pain, does it work for you, is it safe for use with medrol, inuran, plaquenil? I bought some for my dog who ...

Chronic low white blood cell count

Tranquility28
  • By Tranquility28 · New reply yesterday at 11:04 pm
  • Discussion in Living with sarcoidosis · 18 replies
  • Has anyone had chronic abnormally low white blood cell count? Is there a link to the sarc? Any information you may have on the causes of what could cause it I'd appreciate it. I'm going to see a hematologist ...

Sarcoid ROSacia

annawalth
  • By annawalth · New reply yesterday at 6:57 pm
  • Discussion in Emotional support · 5 replies
  • I have sarcoid and rosacia anybody have this? not good aw ...

12 days on Prednisone, feeling like I am getting sick

melibee
  • By melibee · New reply yesterday at 5:57 pm
  • Discussion in Living with sarcoidosis · 3 replies
  • HI all, I am on my 12th day of Prednisone. I did 40mg for the first week, now on 30mg. Sunday night I woke up in the night coughing really hard. I coughed all day yesterday and am coughing today, also ...

Guillian Barre and Sarcoid

blueeyessinging
  • By blueeyessinging · New reply yesterday at 3:58 pm
  • Discussion in Symptoms · 9 replies
  • My brother has had pulmonary sarcoidosis for approx 5 yrs. He was hospitalized this week. He has lost considerable strength in his arms and legs. The MD's working diagnosis is Guillian Barre Syndrome ...

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.