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Sarcoid and females

Jackie7
  • By Jackie7 · New reply 5:53 am
  • Discussion in Living with sarcoidosis · 17 replies
  • I'm not sure how to phrase this question so....Has there been any documented evidence of sarcoidosis in the female reproductive organs ...

yet again i am awake

ladyprofessur
  • By ladyprofessur · New reply 5:08 am
  • Journal · 7 replies
  • its is 1:17 in the morning, i cant sleep at nite i cant sleep during the day right now my right side hurts. my back hurts and when i cough at nite i get the terrible fear that ITS STARTING AGAIN!! i was ...

Advice for joint pains

Delirium
  • By Delirium · New reply 5:06 am
  • Discussion in Symptoms · 7 replies
  • Hi, These past days guess I'm having what I'v seen described as a "flare". New for me this time is that all my fingers really hurt (and a couple of the toes). My joints are quite painful (but not swollen ...

prednisone reduction "WARNING"

harmles2
  • By harmles2 · New reply 4:14 am
  • Discussion in Treatment decisions · 1 reply
  • Just a note to all who are on pred and who will or are tapering off pred, ....... I just found out something the hard-way. When we are in the tapering off phase of pred, we are not getting enough hormones/testosterone ...

Paradox???s

Teacherteacher
  • By Teacherteacher · New reply 1:27 am
  • Discussion in Living with sarcoidosis · 1 reply
  • I was researching information on prednisone tapering and came across this explanation of metabolic changes. "Neoglucogenesis leads to protein breakdown in muscle, skin and bone leading to delayed wound ...

Are there any success stories here?

dt1966
  • By dt1966 · New reply 12:58 am
  • Discussion in Living with sarcoidosis · 6 replies
  • I've been kind of checking this board out and its always so negative. I'm on Prednisone which I hate because of my pulmonary sarcoidoisis and I wonder if there is any hope to get back to normal? I want ...

Anyone read this: Official Patient's Sourcebook on Sarcoidosis

ncwoolgatherer
  • By ncwoolgatherer · New reply 12:50 am
  • Discussion in Living with sarcoidosis · 3 replies
  • I found this when I was surfing this morning. Any of you know anything about this book? Would you recommend it or not? The Official Patient's Sourcebook on Sarcoidosis Title: The Official Patient's Sourcebook ...

Isn't it strange...

ShannonZ
  • By ShannonZ · New reply yesterday at 11:55 pm
  • Journal · 4 replies
  • that quite a few of us on here have more then one health "issue"? We ALL must be tough cookies ...

sarcoid took over and insurance dropped me

wendyb
  • By wendyb · New reply yesterday at 11:22 pm
  • Discussion in Living with sarcoidosis · 19 replies
  • back in 2004 i got sick with pneumonia and was admitted into the hospital, while i was in there they ran every test they could think of, my chest x-rays came back shadowed couldnt even see my lungs. so ...

Disability anyone???

daewinner
  • By daewinner · New reply yesterday at 10:52 pm
  • Journal · 25 replies
  • I was curious as to how many of us are on disability....I applied & was denied. I will be going through the appeal process shortly! I was just wondering if any of you are on disability & what it took ...

Anyone on cellcept?

Chrisr82
  • By Chrisr82 · New reply yesterday at 9:35 pm
  • Discussion in Treatment decisions · 8 replies
  • My doctor is planning on putting me on Cellcept in October, just wondering if there are any of you that are taking it and has it helped ...

Nerve biopsy anybody?

sherryberry
  • By sherryberry · New reply yesterday at 3:13 pm
  • Discussion in Treatment decisions · 7 replies
  • I have tingling and numbness from my fingers on up to my elbow and from my toes to almost my kneecaps. Today it got brought up that I might have to have a nerve biopsy done in the future to determine ...

etiology of sarcoidosis

stevemart
  • By stevemart · Posted yesterday at 3:13 pm
  • Discussion in Triggers · 0 replies
  • I had sarcoid in 1973 and at the time there was some idea it was linked to pine trees! Lately I've heard there could be an infectious agent. What auto-immune reaction causes a granuloma? Why does it seem ...

Deet, Sarc? Couldn't breathe!

sculptr
  • By sculptr · New reply yesterday at 2:23 pm
  • Discussion in Symptoms · 7 replies
  • What a night I had. I was dreaming that I kept making a horrible noise and then I awoke to find that I was snoring in the strangest way. Much to my alarm my nasal passages were swollen shut almost completely ...

Diagnosed w/Sarcoidosis, Confused ?s

princessdorkina
  • By princessdorkina · New reply yesterday at 2:13 pm
  • Discussion in Treatment decisions · 2 replies
  • I was informed today on the phone that the mediascopy they did on Monday was Sarcoidosis NOT lymphoma which I suppose is GREAT news. When the Pulmonary dr saw me last he said if it was Sarcoidosis he ...

Sudden decrease in brain function?

micheleb
  • By micheleb · New reply yesterday at 12:52 pm
  • Discussion in Symptoms · 18 replies
  • I am not real sure how to explain this. I have the usual brain fog and some memory issues just like most of us here. I have had this for several years. But, just within the last 2 weeks, its gotten SO ...

Thanking All Of You!!!!!

quinda
  • By quinda · New reply yesterday at 12:44 pm
  • Journal · 9 replies
  • Thanking all of you for your encouragement, support, sharing and all of that as Thursday I head back to the surgical table for that mastectomy because of the breast cancer of course; but at least it isn't ...

down to 40 mg of prednisone

dt1966
  • By dt1966 · Posted yesterday at 12:08 pm
  • Journal · 0 replies
  • Next Monday I'll be dropping down to 35 mg for 2 weeks then 30mg for 2 weeks etc... Not what happens after 25 mg, thats when I go see the Dr. in Ann Arbor ...

Prednisone Reduction

healing
  • By healing · New reply yesterday at 9:04 am
  • Discussion in Symptoms · 6 replies
  • Hello Everyone, I have been on prednisone for almost 2 years. I have multi-organ/ systemic sarcoid and was diagnosed after having a splenectomy. I have started reducing the prednisone and have notice ...

coughing

dowagiac88
  • By dowagiac88 · New reply yesterday at 4:06 am
  • Discussion in Symptoms · 5 replies
  • Can anyone tell me how their coughing started. I thought that I was having a chest cold. But the constant pain in my chest has started again.... and the coughing has started. I've had the chest pains ...

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The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. The Stop Sarcoidosis Support Community is sponsored by the Foundation for Sarcoidosis Research in partnership with Inspire.