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Diastolic dysfunction or diastolic heart failure from Sarcodosis

cherylsgpad
  • By cherylsgpad · New reply 2:54 am
  • Discussion in Symptoms · 17 replies
  • Does anyone else have either Diastolic dysfuncrion or Diastolic heart failure from our Sarcod? Been having more and more problems with shortness of breath with mild activity. Which prompted an echo. Which ...

APRIL SARCOIDOSIS AWARENESS MONTH

MZBIGGREDD
  • By MZBIGGREDD · New reply 1:39 am
  • Journal · 1 reply
  • April is MAKE A DIFFERENCE Sarcoidosis Awareness Month ... Sarcoidosis (pronounced SAR-COY-DOE-SIS) Many people have never heard of the disease, let alone the treatments and causes. Sarcoidosis is an ...

Next....

dapple14845
  • By dapple14845 · New reply 12:40 am
  • Discussion in Living with sarcoidosis · 12 replies
  • Now I have a referral to Geriatrics. So the line up is PT for the Ankylosing spondylitis and a chest medicine specialist for the Sarc. I have no idea what the Geriatric is for but I will find out. I'm ...

Pulmanory sarcoidosis and palpitations

Louised
  • By Louised · New reply 12:28 am
  • Discussion in Symptoms · 6 replies
  • Hi just wanted a little bit of advice i have been diagnose with pulmanory sarcoidosis but for the last year i have had heart palpitations everyday had an mri done and the doctor said my heart was fine ...

Shocking. It doesn't and won't happen in Oz (D)

priscurl
  • By priscurl · Posted 12:06 am
  • Discussion in Living with sarcoidosis · 0 replies
  • http://www.ctpost.com/health/article/Som e-debate-on-merits-of-fortified-foods-54 10488.php This little article is about fortification of food with vitamins. In Australia, only some breakfast cereal ...

Things that can help relieve STRESS

chaplainstevens
  • By chaplainstevens · New reply yesterday at 11:59 pm
  • Journal · 5 replies
  • 1. Go outside and breathe fresh air get out of the house 2. Do something for yourself.....go get your favorite milkshake and just chill 3. Go see a funny movie 4. Go visit someone that you love 5. Talk ...

Facial paralysis

Fignewton565
  • By Fignewton565 · New reply yesterday at 11:13 pm
  • Discussion in Living with sarcoidosis · 8 replies
  • Does anyone with neurosarcoidosis have permanent facial paralysis? I woke up Jan 12, 2013 with the right side of my face paralyzed and it was diagnosed first with Bell's Palsy, then Ramsey Hunt Syndrome ...

Another snarky sarky ;-)

plainTRUUS
  • By plainTRUUS · New reply yesterday at 10:53 pm
  • Discussion in Living with sarcoidosis · 2 replies
  • and someone I like to call friend has started a blog called A Crock of Schmidt (I think he may have misspelled that last word). Take a look around, add your thoughts or comments or just give him a hard ...

Just started using Symbicort

chaplainstevens
  • By chaplainstevens · New reply yesterday at 10:32 pm
  • Discussion in Living with sarcoidosis · 4 replies
  • Anyone have any opinions about this treatment? I have started having breathing problems and I was given Symbicort ...

Why D may not be so good for systemic sarc.

priscurl
  • By priscurl · New reply yesterday at 10:31 pm
  • Discussion in Treatment decisions · 21 replies
  • Hi people, You know I am mad. I found a fascinating paper and wanted to comprehend what it is saying regarding the effects of 1,25D in sarcoidosis. This is not just about hypercalcemia, this is about ...

On my Knees

Tawaunna
  • By Tawaunna · New reply yesterday at 10:06 pm
  • Journal · 1 reply
  • It took a real disaster To bring me to my knees; To finally call upon the Lord And say, "God help me, please." Authenticity involves the relentless determination and ability to make one good decision ...

The Good, The Bad and The Ugly

Tofumonkey
  • By Tofumonkey · New reply yesterday at 9:14 pm
  • Discussion in Living with sarcoidosis · 26 replies
  • Sarc has been hard for all of us, but in different ways. I'm also convinced that as awful as it is, there is good in everything. What has been your good, bad and ugly with sarc? (One liners only ...

Finally made it to Johns Hopkins!

volvo
  • By volvo · New reply yesterday at 9:12 pm
  • Discussion in Living with sarcoidosis · 3 replies
  • I am so thrilled I made the trip up here of course when we left south Va. It was nice and warm by the time we hit Richmond, Va. The rain was horrible, you couldn't see beside you or in front of you! Just ...

Sad but true...

chaplainstevens
  • By chaplainstevens · New reply yesterday at 9:02 pm
  • Journal · 1 reply
  • Sometimes death is hard to accept, especially for people of faith. I had to explain to a family that refused to believe a family member was dead, they were praying God would revive them....sigh. Then ...

More symptom questions

dinorino
  • By dinorino · New reply yesterday at 8:24 pm
  • Discussion in Symptoms · 4 replies
  • My sarcoidosis has scarred my lungs, affected my eyesight, and caused painful skin erruptions on my back, scalp and legs, Now, I am nearyly nighly experiencing a fever like condition in my lungs that ...

I forgot I had a defibrillator (& other dumb things I've done recently)

prairieannie
  • By prairieannie · New reply yesterday at 6:59 pm
  • Discussion in Living with sarcoidosis · 7 replies
  • Well, it's official. I've joined the "Bless Her Heart" ranks in the highest degree possible. You know the ones... the members of these ranks get told "Bless your heart" a lot, right to their face... and ...

My Favorite Psalm

chaplainstevens
  • By chaplainstevens · New reply yesterday at 6:55 pm
  • Journal · 7 replies
  • Psalm 13 is a perfect reading for ANYONE Christian or not that is suffering because in our humanness we feel that God has abandoned us when we are distressed. I have been a Christian over 35 years and ...

New concepts in pathogenesis of RA

priscurl
  • By priscurl · New reply yesterday at 6:49 pm
  • Discussion in Living with sarcoidosis · 1 reply
  • http://arthritis-research.com/content/15 /5/R109 Perhaps Wonder Drake, Baughman et al are not so left field after all. Pris ...

Small Fiber Neuropathy in Sarcoidosis: The Cleveland Clinic Experience

plainTRUUS
  • By plainTRUUS · New reply yesterday at 6:45 pm
  • Discussion in Symptoms · 12 replies
  • CONCLUSIONS:In our series, painful polyneuropathy was the most common presentation of SSFN and was non-length dependent in nearly half of the cases. IVIG appeared beneficial in treating somatic and autonomic ...

Thumper is coming out

annteget
  • By annteget · New reply yesterday at 6:39 pm
  • Journal · 5 replies
  • Thumper (that's what my husband, Steve, lovingly calls my pacemaker) is coming out next Wednesday, April 23. That's right. Less than five months since my little Boston Scientific device was implanted ...

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.