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Cleaning Chemicals

stacykids
  • By stacykids · New reply 4:42 pm
  • Discussion in Triggers · 16 replies
  • I know that it is has been suspected that exposure to chemicals can cause Sarcoidosis but in my mind I think of really heavy duty chemical stuff, like a chemical spill etc. But would using standard household ...

best doctor in new york for sarcoidosis of the lungs

saksfifth44
  • By saksfifth44 · New reply 4:06 pm
  • Discussion in Help desk · 4 replies
  • I am in need of finding a new doctor in New York that specializes in sarcoid of the lungs. I have lived with sarcoid for over 20 years and am now on many medications. Looking for another doctor ...

Nephrologist Referral

seahorsefl2000
  • By seahorsefl2000 · New reply 3:10 pm
  • Discussion in Treatment decisions · 1 reply
  • At what point should I request/demand a nephrologist referral? My gfr is 56 and it was 89 two years ago. I'm very new to all this kidney stuff and this site. I just don't want to wait until it's too late ...

NEED Neurologist and Gastroenterologist in Northern NJ

Sparkle98
  • By Sparkle98 · Posted 2:48 pm
  • Discussion in Living with sarcoidosis · 0 replies
  • Hi Everyone, If anyone knows of a good Neurologist and Gastroenterologist in Northern NJ that specializes in Sarcoidosis? I was diagnosed with Sarcoidosis in my liver and have had my gallbladder removed ...

sarcoidosis and lung cancer

CarolynannWatson
  • By CarolynannWatson · New reply 2:12 pm
  • Discussion in Living with sarcoidosis · 6 replies
  • Hi, my husband had a ct scan and the doctors think it is lung cancer. Does anyone know, without biopsy and interventions, if these two can be confused? Could he have sarc? He has no symptoms, no cough ...

living with pain

ultrabab5576
  • By ultrabab5576 · New reply 2:05 pm
  • Discussion in Living with sarcoidosis · 3 replies
  • through a lot of pain and agony sarcoidosis has been a blessing in disguise I found God I lost 52 pounds and I've taken my pain medication from 6 percocet a day down to one using as pain patch if you ...

My story. PLEASE help me

Dan_2012
  • By Dan_2012 · New reply 1:52 pm
  • Discussion in Living with sarcoidosis · 10 replies
  • I am brand new to this board and this is my first post. I am a 48 year old husband and father of 4 sons. I do have Diabetes that is controlled and am active and in pretty good shape these days. They were ...

Severe itching

Sjvb
  • By Sjvb · New reply 12:10 pm
  • Discussion in Symptoms · 6 replies
  • Hello Just wondering if any of you have experienced severe itching on extremities? Not an allergic reaction and no rash other than little purplish marks left after scratching. Could be any if the drugs ...

new to this :-/

missfear21
  • By missfear21 · New reply 10:11 am
  • Discussion in Emotional support · 2 replies
  • hi i realy dont know where to start it's not like i don't have the support i need but it gets to much for me trying to put the brave face on for my kids and family i dont want them to worry about me i ...

rheumatological manifestations of sarcoidosis

uveitisguy
  • By uveitisguy · New reply 9:16 am
  • Discussion in Living with sarcoidosis · 7 replies
  • http://www.ncbi.nlm.nih.gov/pmc/articles /PMC3314339/ questions about muscle pain, joint pain, skin problems and vasculitis have been present the past few days so I thought I'd post on this topic.. mike ...

Waiting for an answer...

BevN
  • By BevN · New reply 8:57 am
  • Discussion in Symptoms · 8 replies
  • Hi Everyone! A month ago I had a CT Guided biopsy if a nodule in my left lung. Turns out they didnt get a good specimen b/c it was behind a rib. Two weeks ago I had a Guided Bronc w/BSN. So far I know ...

Any advice?

Dan_2012
  • By Dan_2012 · New reply 7:29 am
  • Discussion in Symptoms · 1 reply
  • I am sick almost every day with nausea, headache and dizzyness. Sometimes bad sweating and heart racing. I can barely function. Anyone know why or what to do for it ...

Frustrated

Dan_2012
  • By Dan_2012 · New reply 4:16 am
  • Journal · 2 replies
  • I am brand new to this board and this is my first post. I am a 48 year old husband and father of 4 sons. I do have Diabetes that is controlled and am active and in pretty good shape these days. They were ...

Xeljanz -ANYBODY tried YET?

MommaWesty
  • By MommaWesty · New reply 12:40 am
  • Discussion in Treatment decisions · 5 replies
  • So, last night while watching the TV, we saw a commercial for Xeljanz. Has anyone taken this drug? Did it work? Feedback? Side effects? MommaWesty ...

true advice and encouragement

syncere3
  • By syncere3 · New reply yesterday at 11:13 pm
  • Discussion in Emotional support · 4 replies
  • Hi I am new to dis site and I thank the Lord for leading me to it,,,,,ny sacord have gotten worse over the years . The doctor who told me that I had sacod. Would not give me a midical statement cause ...

Just diagnosed with sarciodosis in my heart

Deetle2
  • By Deetle2 · New reply yesterday at 11:03 pm
  • Discussion in Living with sarcoidosis · 11 replies
  • I just returned today from the sarcoidosis clinic at the University of Alabzma in Birmingham where it was confirmed that the disease is now affecting my heart. Can anyone tell me what I can expect now ...

Cardiac Sarcoid - How does this progress.

Jim911t
  • By Jim911t · New reply yesterday at 9:50 pm
  • Discussion in Living with sarcoidosis · 8 replies
  • Hi all, new to this site. After reading a number of posts on this site I'm still unsure how this will all play out. And maybe that's the point. I'm 56, had a pacemaker implanted in 2009 for 2nd degree ...

Does one have to have a biopsy done for definitive diagnosis of sarcoid?

Mnoles
  • By Mnoles · New reply yesterday at 7:07 pm
  • Discussion in Symptoms · 8 replies
  • Thankful for this site. A little about my situation: at the end of July presented with some granulomas on my left eye conjunctiva area. Ophthalmologist suspected either sarcoid, amyloid or lymphoma. She ...

The big D

TheTinman007
  • By TheTinman007 · New reply yesterday at 4:42 pm
  • Discussion in Emotional support · 12 replies
  • Well Friday is the big day. I go to court for the big D. I'm not looking forward to this day...I HATE the thought of the big D. Yes, I am talking about disability. I don't like the thought of being on ...

sarcoid of the skin

Terig
  • By Terig · New reply yesterday at 3:46 pm
  • Discussion in Living with sarcoidosis · 3 replies
  • can someone describe their symptoms of skin sarcoid, I remember my rheumatologist used to run her fingers over my arms to check for bumps...well now I have these bumps from time to time and I have been ...

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.