The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Merry Christmas and Hannukah

Gary_RN
  • By Gary_RN · New reply 9:16 am
  • Discussion in Emotional support · 9 replies · Photos
  • Gary, Faith, Paddy, and Bobbie ...

please pray

graciej
  • By graciej · New reply 9:07 am
  • Discussion in Emotional support · 2 replies
  • My daughter has been in labor now for 13 hours and is only 5 cm dilated. She had an infection, I will have to find out what it was...has been treated with IV Gentamycin and Amoxicillin. She has been on ...

Stem Cell Treatment for sarcoid(lungs)

RG
  • By RG · New reply 8:08 am
  • Discussion in Treatment decisions · 33 replies · Photos
  • Think about trying the new procedure Stem Cell Treatment. It is still in its early statges of develoment. From everyting I am reading it sounds good. (Everything that sounds good don't mean it is good ...

Stomache Sarcoid

positivepieeye
  • By positivepieeye · New reply 4:05 am
  • Discussion in Treatment decisions · 10 replies
  • Hello , I have been dealing with this disease for over 7 years I have what my doc calls cronic sarcoidosis. I have three quarters of my left lung is collapsed and has scar tissue. I have cirrhosis of ...

12-20-2014 Picture

RonLS
  • By RonLS · Posted 2:47 am
  • Journal · 0 replies · Photos
  • Portal to the surreal, outside of Lovell, Wyoming The sunshine was warm upon my face and yet the cold wind swirled about me as I searched for delightfully frost covered trees. But as I looked towards ...

Scarcoidosis and Herbal medication

Mckey45
  • By Mckey45 · New reply 12:26 am
  • Discussion in Living with sarcoidosis · 12 replies
  • I was diagnosed with scarcoidosis in September 2014. Durning this time I have lost my job and my children thinking I'm dying because I'm always sick. I have been reading on this sickness that I have and ...

Medical weed on tv now

IreneMarie

Anyone help??

ReneeM71
  • By ReneeM71 · New reply 12:05 am
  • Discussion in Emotional support · 9 replies
  • I have only recently been diagnosed and in beginning stages of treatment for sarcoidosis. I have tried to tell my family about this in hoping that they would support me somehow, but they dont want to ...

no one year book of Bible promises written by Ruth harms calkin

bulldogwinston
  • By bulldogwinston · New reply yesterday at 9:53 pm
  • Journal · 3 replies · Photos
  • For the eyes of the Lord range throughout the earth to strengthen those whose hearts are fully committed to him ...

One year book of Bible promises written by Ruth harms calkin

bulldogwinston
  • By bulldogwinston · New reply yesterday at 9:34 pm
  • Journal · 1 reply
  • For the eyes of the Lord range throughout the earth to strengthen those whose hearts are fully committed to him ...

12-19-2014 Picture

RonLS
  • By RonLS · New reply yesterday at 8:08 pm
  • Journal · 4 replies · Photos
  • Juniper in the red hills of Crooked Creek outside of Lovell, Wyoming. With the sun glowing off of the red hills with the beautifully placed snow and the juniper it just revealed a Christmas scene. Which ...

pain

bulldogwinston
  • By bulldogwinston · New reply yesterday at 5:32 pm
  • Journal · 1 reply · Photos
  • I have noticed that a lot of you are suffering from pain I can help.through a lot of research and trial and error I found something that's all natural invented by a scientist in Korea I will be happy ...

Antidepressant

paindaily
  • By paindaily · New reply yesterday at 3:13 pm
  • Discussion in Living with sarcoidosis · 7 replies
  • Hi Plz help. Severely depressed an only getting worse. Do antidepressants help? Or does it make it worse? If it does help, which one should I take, there r so many on the market. Been on pred for 6 years ...

scared

jspicer55
  • By jspicer55 · New reply yesterday at 1:39 pm
  • Discussion in Emotional support · 7 replies
  • Just found out I have neurosarcoidosis wanted on doctors to see what happens next ...

Tasted blood.

valleygirl101
  • By valleygirl101 · New reply yesterday at 9:14 am
  • Journal · 3 replies
  • I woke up this morning and could taste blood. Sure enough when I spit in the sink it was pink. I am freaking out a little as I have Sarc in the lymph nodes near my lungs. Is this a part of it or should ...

12-18-14 Picture

RonLS
  • By RonLS · New reply yesterday at 8:20 am
  • Journal · 5 replies · Photos
  • Golden Eagle, Lovell, Wyoming I would have loved this gorgeous Golden Eagle to have been in a tree somewhere but, it didn't ask me where it should pose. So, a power pole, it is! The sun had burnt most ...

WISE Study Sarcoidosis Research

DJ2003
  • By DJ2003 · New reply yesterday at 1:37 am
  • Discussion in Living with sarcoidosis · 7 replies
  • Hi all, The WISE study is still looking for participants. I know that so many of us are part of the 1,703 people who are participating. however their goal is 2,000 and this means that they are 297 people ...

prednisone myopathy

saksfifth44
  • By saksfifth44 · New reply December 19, 2014
  • Discussion in Symptoms · 10 replies
  • Has anyone ever developed a prednisone myopathy because of the prednisone they are taking for sarcoid? After 3 months of heaviness and pressure in my legs shoulders and upper back my doctors feel it is ...

help finding a doctor

LittleTimeHere
  • By LittleTimeHere · New reply December 19, 2014
  • Discussion in Help desk · 1 reply
  • I am trying to find a doctor north east of Atlanta for my sarcoidosis. the only doctor I have found so far is at Emory in Atlanta which is like 45 To 50 miles from where I live I'm looking for somewhere ...

Any one who has taken methotrexate for sarcoidosis

Pacomp123
  • By Pacomp123 · New reply December 19, 2014
  • Discussion in Symptoms · 11 replies
  • I would like anyone who has taken methotrexate to share their experiences the good and bad I have sarcoidosis in lungs lymph nodes and skin they would like me to take this medication but I am worried ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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About this community

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.