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Rare and Genetic Disorders

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Getting a diagnosis
How my disease has changed my life
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My disease has no treatment
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Down Syndrome
CLOVES Syndrome
Lysosomal Storage Disorders
SLC6A1
Organic Acidemia
Dwarfism
Hypoparathyroidism
Fragile X
Genetics and Birth Defects
Cystic Fibrosis
Gaucher Disease
Huntington's Disease
CAID
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New reply April 15, 2024 • 9:23 PM

to those that pray or believe in that sort of thing, please pray for my friend caroline. last week, (monday), she rang me to say she didn't feel well and had a headache- but not to worry beca ... Show more

emily210521 replies29 Reactions

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New reply April 14, 2024 • 11:45 PM

We are excited to announce that the new Inspire Android app is available and ready for download. Now, Android users can connect with other patients and caregivers from our convenient, easy-to-use app ... Show more

TeamInspire29 replies23 Reactions
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New reply April 15, 2024 • 10:01 PM

Maybe we all do! What am I talking about anyhow? Many of us…young or old, reach a point with our mobility (or lack thereof) where we will find that there are pieces of equipment available that will ... Show more

Mandymuff54 replies8 Reactions
New reply April 16, 2024 • 12:08 AM

“The Day Jesus Died” Jesus had been accused of a crime he had not committed, arrested, charged, found guilty, and sentenced to death by crucifixion which was the most inhumane form of punishment ... Show more

Mandymuff23 replies27 Reactions
New reply April 10, 2024 • 11:22 AM

1 cup butter, softened 1/2 cup packed brown sugar 1/4 cup sugar 2 tablespoons instant coffee granules 1/4 teaspoon salt 2 cups all-purpose flour 1/2 cup semisweet chocolate chips 2 teaspoons shorteni ... Show more

emily21059 replies15 Reactions
New reply March 27, 2024 • 11:35 PM

“Because what may be known of God is manifest in them, for God has shown it to them. For since the creation of the world His invisible attributes are clearly seen, being understood by the things that ... Show more

emily21057 replies24 Reactions
New reply March 29, 2024 • 4:57 PM

This piece was sent to Pastor Carnes by a member of the devotional family. “The Bummer Lamb” What happens to a little lamb that is rejected by its mother? It will hang its head so low it loo ... Show more

Mandymuff15 replies13 Reactions
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New reply April 05, 2024 • 8:54 PM

Are You Anxious To Meet People Here? Sure you are, so let's do this! We know…new people come to Inspire and they don’t know where to start, or what to do, so I am here to tell you….JUST JUMP RIGHT ... Show more

Mandymuff51 replies19 Reactions
New reply March 04, 2024 • 6:14 AM

Hi! I'm Sarah, a patient of HHT, a rare genetic blood vessel disorder. Hoping to connect with others who share similar rare diseases. It took me 3 years to get clinically diagnosed and I still haven' ... Show more

Sarah_SGF7 replies0 Reactions
New reply March 07, 2024 • 1:13 AM

My grandson was born addicted to heroin he was in the n.i.c.u for 1 month where i lived there and cared for him and got him weened off morphine.. Fast forward to now he is 2 years old and had geneti ... Show more

wonderwoman2324272 replies1 Reactions