I went into the ER in May 13 to verify a diagnosis of diverticulitis. After the CT scan, the ER doc said that there was a "softball" sized mass on the other side of my abdomen. That was a surprise because I never felt anything...no pain, mass, lump etc. My family physician scheduled me for a core biopsy. The results of the biopsy floored me. Low grade spindle cell sarcoma. What the heck is that? I looked it up and found that it was supposed to be rare. As I look online, I find many folks that have this sarcoma and it may be located all over the body.
The oncologist stated that “low grade” means slow growing. He also stated a few more things. The PET scan is not going to yield anything that we don’t know already. Why? The low grade tumor doesn’t show up well on the PET scan, the PET scan easily may miss any tumor that may have spread. He also stated that chemo and radiation treatments are geared to stop fast growing, aggressive tumors. Chemo and radiation therapy doesn’t work well on this type of tumor.
Surgery is the only option at the moment. This tumor is attached to the abdominal wall and touches my right hip. The surgeon says that he will have to remove a significant amount of abdominal muscle and scrape the bone if connected.
Bone scan and chest CT are scheduled for this coming Monday. If they do not find that the tumor has spread, then the treatment outlined is the course of action that we will take. Once they get the tumor out, they can determine how to treat this little better.
My concern at the moment is the stress that this has caused my wife. She is a very strong woman but, I can see the stress and she broke down one evening. I hate to drag her through this. She has done so much..she doesn’t deserve this.
I think we will get through this ok. Stay tuned…