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10 years later...

Battis
  • By Battis · New reply 9:46 am
  • Discussion in Emotional support · 17 replies
  • Hi. I had a lump in my right leg ten years ago (I was 47) that was first diagnosed as a pulled muscle. I eventually went to Mass General Hospital in Boston, believing that I had a pulled muscle, even ...

Whirlwind Update

safetyfree
  • By safetyfree · New reply 6:34 am
  • Discussion in Emotional support · 7 replies
  • Hi to all. Here it is middle of May ...beautiful weather.. spring flowers and blessed sunshine. I have had 21 Radiation treatments. 19 more to go, They do mention fatigue factor, but Man.. I didn't even ...

Pecoma for the tirdh time!!!

truewarrior
  • By truewarrior · New reply 6:26 am
  • Discussion in Living with a soft tissue sarcoma · 10 replies
  • hello everyone, I have been searching the internet Pecom cases of cancer and finally discovered this wonderful forum where I can ask questions and keep quiet about this matter. unfortunately suffer from ...

Goosed by Scanxiety!

sarcogal49
  • By sarcogal49 · New reply yesterday at 11:46 am
  • Journal · 11 replies
  • So my next 3 month scan is next Wednesday, May 15th, and as usual, I get all the anxious thoughts. Monday, May 6th was a gloriously beautiful spring day after a prolonged miserable Michigan winter, everything ...

Stubborn 'unwelcome visitor', miracle needed

kezza010
  • By kezza010 · New reply yesterday at 11:20 am
  • Journal · 21 replies
  • Yesterday Peter's follow up MRI after 6 weeks Radiation treatment showed that the thing has almost doubled in size and now is growing through his 1st & 2nd ribs and into his neck from upper right lobe ...

Scan Results are in for Cowboy Rick

cinsababe
  • By cinsababe · New reply May 20, 2013
  • Discussion in Living with a soft tissue sarcoma · 11 replies
  • We just finished our scan appointment with Dr. R. The scan shows that everything is pretty much still stable since we ended chemo in February. One tumor grew slightly, the other appeared to shrink, but ...

Tears of Joy-another clean scan!

sarcogal49
  • By sarcogal49 · New reply May 19, 2013
  • Journal · 11 replies
  • I was a mess all day, this was by far the worst wait ever. They say it gets easier the farther out you go--bs! I get more nervous because I see the risk of recurrence increasing the closer I get to the ...

mammy005

Mammy005
  • By Mammy005 · New reply May 19, 2013
  • Discussion in Treatment · 1 reply
  • Getting ready to start votrient. Would like to hear some feedback from people who are taking it ...

mammy005

Mammy005
  • By Mammy005 · New reply May 19, 2013
  • Discussion in Treatment · 2 replies
  • Getting ready to start votrient. Would like to hear some feedback from people who are taking it ...

Five million

Brian
  • By Brian · New reply May 18, 2013
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Monthly scans??

hayley5
  • By hayley5 · New reply May 18, 2013
  • Discussion in Family and friends · 8 replies
  • My dr said I will see him for the next 8 years I was wondering do you have to have scans/see your dr every 3 months for the next 8 years for a sarcomas ?? Or will it extend as the years go on ...

Leiomyosarcoma Met to Lungs - Anyone on Votrient?

Patriar
  • By Patriar · New reply May 16, 2013
  • Discussion in My diagnosis · 1 reply
  • Greetings and Blessings to you all! I haven't been here in a while, because of going back into chemo for what was supposed to be my final two rounds after having the tumor removed from my leg and going ...

PEComa

Harvo
  • By Harvo · New reply May 16, 2013
  • Journal · 3 replies
  • On 4/9/2013 a lump was removed from my left knee. The orthopedist had expected it to be a lipoma, but knew at once that it wasn't. The local pathologist got help from Dr. C. D. M. Fletcher at Harvard ...

Sad Sad News

Bisbeebelle
  • By Bisbeebelle · New reply May 15, 2013
  • Discussion in Treatment · 14 replies
  • My God, how do you bear this? I lost my husband yesterday afternoon. He was sick last week, went into the hospital on Thursday and was gone on Monday afternoon. What is so devastating is, he had responded ...

Sarcoma research

bostonkerry
  • By bostonkerry · New reply May 14, 2013
  • Discussion in In the news · 16 replies
  • I just ran a race this past weekend for Sarcoma research. It is my little way to help out this cause since we all know how little research has been done on this cancer and how rare it is. Especially those ...

Update on Chris, spindle cell sarcoma mets to lungs

researchingforbro
  • By researchingforbro · New reply May 14, 2013
  • Discussion in Treatment · 14 replies
  • Hi all- Chris starts his chemo today, they will give him gemcitabine (gemzar) today, then next Weds. they will give him that again and add docetaxel (texotere). Then wait a week and repeat the same routine ...

Sarcoma center

Btorrens
  • By Btorrens · New reply May 14, 2013
  • Discussion in Treatment · 17 replies
  • Which hospital is the best for sarcoma treatment ...

Making a Difference for Sarcoma

DjaOR
  • By DjaOR · Posted May 13, 2013
  • Discussion in In the news · 0 replies
  • The Liddy Shriver Sarcoma Initiative is doing an extensive survey on the online experience of sarcoma patients. I can't explain it better than they can...so have copied and pasted below, but what a great ...

Update on Chris-area of pain, any thoughts?

researchingforbro
  • By researchingforbro · New reply May 13, 2013
  • Discussion in Symptoms · 10 replies
  • Hi All- Chris is doing well after a rough week last week, he had to go to the hospital as he was having a severe pain near original site of cancer, in groin area. Spent 5 days there on mega combo antibiotics ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

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