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To: Pain From: Me

Nina372
  • By Nina372 · Posted November 2, 2009
  • Journal · 7 replies
  • To: Pain From: Me Well hello pain, you might not want to hear this but you have out-stayed your welcome here in my body. You are the most annoying, agitating, distracting, way to needy, company that I ...

pots/dysautonomia

Nina372
  • By Nina372 · Posted November 2, 2009
  • Journal · 1 reply
  • Does anyone here have experience or knowledge about getting a pace maker for their postural orthostatic tachycardia syndrome (pots ...

Another Bad Night

mdh313
  • By mdh313 · Posted October 26, 2009
  • Journal · 0 replies
  • I fell asleep a little after midnight and awoke at a little after 4 a.m. I stayed in bed for nearly an hour, hoping I would go back to sleep. But, I didn't. So at 5 a.m. I got up, put on my robe, walked ...

Blah

Tank
  • By Tank · Posted October 21, 2009
  • Journal · 7 replies
  • I really wish there was a NF doctor closer then Ann Arbor, Its a ways for us to travel. Our Income is 269.00 a month, 130.00 for rent, 80 for car insurance. My husband has applied for jobs from South ...

New Meds And Sleeping

Tank
  • By Tank · Posted October 14, 2009
  • Discussion in Experiences with prescription medications · 0 replies
  • I was recently put on Seroquel 150mgs has anyone ever taken this? I took it and slept about 10 hours and when I got up I wanted to just go right back to bed, I could not function right, on top of that ...

19 years old. alone??

Nina372
  • By Nina372 · Posted October 9, 2009
  • Journal · 23 replies
  • I am 19 years old and sometimes feel as though there is nobody else my age who knows what I go through. I know many other people who understand what I have to face every day and the difficulties involved ...

I'm an RN that got hurt and my health went to pot!

RobynRae
  • By RobynRae · Posted October 7, 2009
  • Journal · 11 replies
  • This is my first time on this site to recored any info and I hope I do it right! I'm still in the learning stages of the computers and what I can and can't do which is keep my fingers on the right keys ...

I feel so Blahhhhh................

kimikiwi1987
  • By kimikiwi1987 · Posted October 2, 2009
  • Journal · 10 replies
  • Lets see where to begin well got my biopsy results back about 2 wks ago i still have fsgs and know i also have iga, so the docs r taking me off my cyclosporine and utting me on cytoxin for 3 months since ...

An Uplifter

mrsbias
  • By mrsbias · Posted September 25, 2009
  • Journal · 11 replies
  • A PENNY You always hear the usual stories of pennies on the sidewalk being good luck, gifts from angels, etc. This is the first time I've ever heard this twist on the story. Gives you something to think ...

School = feeling horrible. need advice

Nina372
  • By Nina372 · Posted September 19, 2009
  • Journal · 10 replies
  • I go to the University of New Mexico it’s been about a month since I have started my classes and it is HARD I am taking 14 credit hours. I am always worried I will pass out on campus as I almost did ...

Contemplating Life Today

frogcollector
  • By frogcollector · Posted September 18, 2009
  • Journal · 11 replies
  • I have had a whirlwind of a summer. Subjects like cancer, concussion, suicide intervention, and now a child with shingles. What more could one ask for? Well I have a friend from twenty years ago. She ...

new to the group

miller123
  • By miller123 · Posted September 5, 2009
  • Journal · 4 replies
  • i am 33yrs old with 2 children recently been diagnosed with livedo and lupas anticoagulant syndrome for the past 2yr ive suffered from chronic fatigue syndrome and depression after the death of my grandad ...

biopsy

kimikiwi1987
  • By kimikiwi1987 · Posted September 2, 2009
  • Journal · 12 replies
  • well tomorrow 9/3/09 im getting my second biopsy done my doc kinda sounds worried now, he says we need to do this to see what we are working with, now thats kinda scary... but oh well gotta keep going ...

Got an appoinment 2day with neurologist (Sep 2nd 2009)

always_smile
  • By always_smile · Posted September 2, 2009
  • Journal · 4 replies
  • Hey everyone i got an appoinment today with my neurologist he wants to see me bc i been having some major pain dealing with the NF and other problems going on. I also get to talk to the plastic surgen ...

My results from my ultra sound

always_smile
  • By always_smile · Posted August 29, 2009
  • Journal · 3 replies
  • hey everyone i got my results from my ultra sound and everything is ok they just told me that i have alot of lumpy tissue and that its nothing to worry about. .and alot of women just have lumpy breast..So ...

Help!

steve9340
  • By steve9340 · Posted August 29, 2009
  • Journal · 1 reply
  • Anyone have any ideas that could help me? I usually have no trouble falling to sleep. My problem is that I wake after about 4 hours (3 am typically), and from there on get anywhere from 0 - 3 hours sleep ...

Does Brainwave Entrainment/ Balancing Help with Insomnia?

maureenkilloran
  • By maureenkilloran · Posted August 25, 2009
  • Journal · 1 reply
  • Yes, Brainwave Entrainment is the latest technology that has been scientifically proven to cure Insomnia ...

Your Dizzy Laugh of The Day

Unsure
  • By Unsure · Posted August 20, 2009
  • Journal · 21 replies
  • I'm lightheaded allllll the time! Have been for years. I often say that if the cops ever pulled me over, I could never pass the drunk driving test because I'm so dizzy all the time. I remember the first ...

Myoclonic Jerks

SweetOrganics
  • By SweetOrganics · Posted August 19, 2009
  • Journal · 19 replies
  • I have myoclonic jerks & the docs don't know what's causing them, so all they can do is give me muscle relaxers to stop them. I'd rather not be on muscle relaxers my whole life. Does anyone have any suggestions ...

not the greatest news from my doc

kimikiwi1987
  • By kimikiwi1987 · Posted August 19, 2009
  • Journal · 0 replies
  • well i went to my kidney doc and he told me that since im not going down on my steriods that he wants to see me back in 3 wks and now hes also talking about doing another biopsy........blahhh ...

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