Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Enjoying Every Moment

  • By SurroundingHope · New reply April 9, 2014
  • Journal · 12 replies
  • Over the years I have survived. All forms of abuse from my family, cops that wouldnt help, school wouldnt help, and friends couldnt do anything. Abandonment, Abuse, Neglect, and so much more. When I turned ...

This is me....

  • By rubylane869 · New reply April 3, 2014
  • Journal · 4 replies
  • I'm glad I found this site. Mostly I was just looking for some support for HES...which I MIGHT have. They haven't figured it out yet. I had gone to the ER in December with stomach pain & when they checked ...

What I wrote him

  • By SurroundingHope · Posted March 28, 2014
  • Journal · 0 replies
  • The day I became yours you became mine. Forever we will be together, through hell and back again, we will figure out any challenge. I gave you my heart the night we met and the more we talked the more ...

What he wrote to me

  • By SurroundingHope · New reply March 25, 2014
  • Journal · 10 replies
  • Babe I love you and always will. I love the way you look at me with those beautiful eyes; the way they radiant just blows me away. You make me want to do the best in everything. The way I feel when I ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Alone, but not alone.

  • By frequentfaller · Posted March 14, 2014
  • Journal · 0 replies
  • Despite having Narcolepsy, I'm a morning person. I drive 3 hours north to Mayo Clinic, every three months to see the doctor who opened their new sleep center. With his advice, I've done a complete 360 ...

Hi, my name is Billie

  • By Billie_Jo · New reply March 11, 2014
  • Journal · 8 replies
  • Hi there!!! It's been a truly crazy end to 2013, And beginning of 2014..... I've missed you all a Great Deal! I am still very busy. I will see if I can keep this short.... I believe I mentioned before ...

cpap problems

  • By gastro · New reply March 5, 2014
  • Discussion in Experiences with medical treatments · 4 replies
  • I am trying to adjust to the cpap machine and mask. Recently, when I start to nod, I notice that my face gets numb and cold. This also affects my lip. I have the Philips Resperonics Amara mask. I am a ...

Misophonia sufferers, where are you?

  • By BijouxBloat · New reply February 25, 2014
  • Journal · 7 replies
  • After searching, it appears there is no "group" on Inspire that has been devoted to this HORRIBLE disorder. I guess it would fit under the "Mental Health" umbrella, even though it has actual physical ...

Mind Fog

  • By BijouxBloat · New reply February 25, 2014
  • Journal · 13 replies
  • Mind fog is a total bitch. I have had it for so long, I can't really remember when it started. I soldiered through every day, and worked myself to the point of near death. My symptoms increased exponentially ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...



How to stay asleep?

janny2 (Inactive)
  • By janny2 (Inactive) · New reply February 20, 2014
  • Discussion in Coping with sleep disorders · 8 replies
  • I want to know why I keep waking up in the middle of the night, frequently after only a couple of hours of sleep. Sometimes I can go back to sleep again, and sometimes not. When I do go back to sleep ...

New Device for Sleep Apnea (Jan. 13, 2014)

  • By EasternMan · New reply February 19, 2014
  • Discussion in In the news · 2 replies
  • Hello fellow travelers, All my OSA brothers and sisters, you may be interested in reading about a new invasive device for SEVERE OBSTRUCTIVE SLEEP APNEA. I found this article in SCIENCE DAILY magazine ...

Introducing Photos for Inspire

  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...


  • By SeanG12830 · New reply February 8, 2014
  • Journal · 3 replies
  • I just got off the phone with the Xyrem people and I should have my package in the morning. I am a little scared to take it because I had so much problems with ambient. I would cook and sleep walk, and ...

An Antidote for Hypersomnia

  • By JanineE · New reply February 5, 2014
  • Journal · 1 reply
  • I recently found this study online. I have never heard of this treatment before... although the study is old news. I wonder if anyone else has heard of it? tidote_for_hypersomnia/campus.html ...

constant sneezing

  • By whittyofworcs · New reply February 2, 2014
  • Discussion in Coping with sleep disorders · 3 replies
  • been using cpap for over 4 years and, it has significantly improved my sleep, however, i suffer badly with nasal irritation as soon as i use a nasal mask, despite recently having a cpap with humidifier ...