Well I went to Pittsburgh to see my RA specialist, who is not a believer in AP treatment. So I was a bit nervous about going. My family doctor did call her before we started this treatment to inform her.
It went very well actually. She spent an hour with me discussing everything about the treatment. She even took down some of the websites that I go to so she can read up on it. She told me that she has been giving the pill form of what I am taking to her RA patients for years. But that their dosage is 100mg twice a day ever day, where mine is 100mg once a day on Mon, Wed, and Fri. We discussed in depth all the possible side effects as in inflammation of heart and lungs, and drug induced Lupus. Which I had already known about.
She is a bit concerned about my brain fog, which I had before starting this treatment and wants me to go see a brain specialist. Just to be on the safe side due to the fact that I do have brain lessions already.
I told her how I was nervous about this appt due to her reaction last year when I asked her about AP treatment. She said she doesnt prescribe it, but if it works for me she wants to know and be kept up to date on everything. And if it does work for me she will be trying it on some of her other patients AFTER she does her own in depth research on the treatment.
I do have to say that she seems not as warm towards me as she used to be, but she was not disrespectful or angry towards me either.
She commented to me before she left the room that if it works and give me any amount of relief she is all for it. And that she realizes that at the point I am at it is better to deal with side effects down the road as if I do nothing and this is not stopped or atleast slowed down I wont be alive to deal with the side effects down the road.
So I go back to see her again in Dec and we will go over things again at that point.
Thank you again for all the love, prayers and support
Hugsss
Terri



