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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Round 2 of temodar
- By LynnLuc · Posted October 4, 2009
- 8 replies
- I was finally tested for my antigens and I have the right ones for the clinical trial I want to participate in...while waiting for a protein test of my biopsy to come back I still needed to begin another ...
PET Scan results
- By LynnLuc · Posted August 30, 2009
- 0 replies
- Got my latest PET scan results in since Chemo and radiation. There had been activity in my legs...now there is nothing. Activity in my thyroid, now there is nothing. Primary melanoma siteis still there ...
Tomorrow I go for follow-up
- By LynnLuc · Posted August 18, 2009
- 4 replies
- I am anxious about finding out if the 2 weeks of radiation helped with the metastatic melanoma that was close to my superior vena cava. Wondering if the one light run of chemo did anything at all. Melanoma ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Now the waiting begins...
- By LynnLuc · Posted July 24, 2009
- 0 replies
- I have finished my Temodar and Radiation round so now I will wait until August 19-then I have my blood drawn, another PET, the radiation oncologist app't and the medical oncologist appointments. My radiation ...
Anyone know about clinical trials??
- By LynnLuc · Posted July 22, 2009
- 3 replies
- Chemo and radation was over on monday and I am doing much better now that this round is over with. I go to the medical oncologist on Thursday and also get some blood work. I am going to ask him not to ...
More scans and tests...
- By LynnLuc · Posted July 17, 2009
- 0 replies
- Today would have been the end of week 2 for radiation except for the fact the radiation equipment needed repairs on Tuesday so I guess Monday may be the last day for this round. I finally begun taking ...
I am afraid to take my chemo...
- By LynnLuc · Posted July 15, 2009
- 11 replies
- After spending all the money on chemo...the Temodar is sitting here. It's Wednesday and I was to begin taking it on Monday...I have 2 anti puke meds, but I am afraid it will really make me sick anyways ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Melanoma that spread to lungs
- By BKS · Posted May 11, 2009
- 10 replies
- I went to Dr. in 2005 with a lump on my head. I was told it was nothing-a sebacios cyst- and not to worry about it. To shorten the story after many Dr. appts. I finally went to a dermatologist and in ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Melanoma treatments
- By TammyD · Posted September 18, 2008
- 2 replies
- Hi All, I'm trying to find anyone who's ever been treated for melanoma with the following drugs. Gemzar Taxol Avastin If you've been treated with them, please let me know how they worked for you. Thanks ...
Anybody from Northwestern PA area?
- By 13amyers · Posted July 18, 2008
- 11 replies
- We live in northwest pa along the lake just outside of erie. I was wondering if anybody with nf lives around here that we could have get togethers and maybe start some fundraising or relays for life ...
Hello...
- By 13amyers · Posted June 29, 2008
- 10 replies
- I have had NF1 since I was born. At first it started out with some here and there, but now I have a gazillion everywhere. YOu cant really tell I have it unless im wearing shorts or a dress because they ...
Welcome from TeamInspire!
- By TeamInspire · Posted March 13, 2008
- 35 replies
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
