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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

My dad has passed..

sweet28546
  • By sweet28546 · New reply March 29, 2014
  • Journal · 55 replies
  • My father, who is a hero in my eyes, has passed away today March 27, 2014 at 1634pm. Today is a very rough day for my mom. sister, and I. He has lived an awesome life. He was a fire fighter, United States ...

Bone Scan Completed

sweet28546
  • By sweet28546 · New reply March 26, 2014
  • Journal · 10 replies
  • I have completed the bone scan.. However that is one long test. I went in at 9am and got my injection at 925am. I was then told to come back in 3 hours around 1230 and they could take the images they ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

nodular melanoma

gobby
  • By gobby · New reply March 15, 2014
  • Discussion in Treatment · 3 replies
  • Hi there how are you doing ??? i have nodular melanoma too ...

Sources sought for article about co-insurance to pay for specialty drugs

John2
  • By John2 · Posted March 13, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/13/14 Dear members A healthcare journalist with the Associated Press (AP) is seeking more people to interview for an article she is researching on ...

"Let symptoms–not age–influence treatment"

John2
  • By John2 · Posted March 11, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/11/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "Let ...

Reporter seeking to interview someone with chemo-related hearing loss

John2
  • By John2 · Posted March 3, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/3/14 Dear members A healthcare journalist with the publication Chemical & Engineering News (C&EN) contacted us seeking to interview someone for an ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Just an update

sweet28546
  • By sweet28546 · New reply February 23, 2014
  • Journal · 10 replies
  • Things have been going alright for the most part.. Between everything with my doctor appointments and taking care of my dad it just seems like I have a non-stop life. We have had a rollercoaster of getting ...

possible melanoma

jane_doe
  • By jane_doe · New reply February 19, 2014
  • Discussion in Symptoms · 4 replies
  • I was pregnant back in March of last year. I grew a new mole on my foot. And two very small freckles on my hand. The one on my foot is about the size of a pen dot. Perfectly round. The two on my hand ...

Interferon Side Effects Stories

ClaudeM
  • By ClaudeM · Posted February 19, 2014
  • Discussion in Treatment · 0 replies
  • I posted a topic before here. https://www.inspire.com/groups/skin-canc er/discussion/my-research-on-interferon- side-effects/ UPDATE: I finished creating my research / book with the help of steadyhealth ...

shock therapy as melanoma treatment

beingcelestial
  • By beingcelestial · Posted February 18, 2014
  • Discussion in Treatment · 0 replies
  • I didn't have a link to this but you can probably do a search: Doctors using new therapy to shock away melanoma Watch the video Doctors using new therapy to shock away melanoma on Yahoo News . Each year ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

"A rare cancer survivor’s journey to thriving and advocating"

John2
  • By John2 · Posted February 12, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 2/12/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog, "A rare ...

Cancer and yoga -- a new resource

TeamInspire
  • By TeamInspire · Posted February 4, 2014
  • Journal · 0 replies
  • Dear members, We're writing to share with you a new video, "Yoga for Cancer," created by one of our nonprofit patient advocacy partners, the National Cervical Cancer Coalition (NCCC), a program of the ...

friends

Monsae
  • By Monsae · New reply February 1, 2014
  • Journal · 17 replies
  • Greetings, I'm hoping everyone is doing well...I am having a middle of the night and can't sleep issue. Pain in the neck. Hope one and all have a beautiful day! And a Starry night.Take care. I'm thinking ...

melanoma and surgeries

sparkiekay
  • By sparkiekay · New reply January 28, 2014
  • Discussion in Treatment · 1 reply
  • The PET scan showed nothing, the sentinel showed 4, 2 of which showed melanoma. The lingual surgery showed no more melanoma. Any ideas of what the oncologist will suggest for treatment? I go to see him ...

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