Living with sickle cell anemia

Summer Vacation

kcofer09
  • By kcofer09 · New reply March 29, 2013
  • 5 replies
  • My friends and I have planned a trip to Panama during the upcoming summer. But I have a problem! 7 out of 10 times when I go swimming I end up going into a Sickle Cell crisis. I really want to go on this ...

Relationship

Aquamine
  • By Aquamine · New reply March 29, 2013
  • 7 replies
  • Hi Everyone, just joined this group. Just had a relationship end because I have Scd. It's been a rough week and I have been trying to see a psychologist help me out with my emotional state. Was advised ...

Scd and winter weather at school

sicklermom1
  • By sicklermom1 · New reply March 28, 2013
  • 4 replies
  • Since we have just had some very cold days, -28 degrees celsius, just how cold is too cold to send your child with scd to school without being concerned for their health. I mean we can bundle and layer ...

The life we live!

jenn735
  • By jenn735 · New reply January 15, 2013
  • 6 replies
  • I am a 34yr old lady with scd ss and I have been in pain mor than not. They say we aren't supposed to have children and I had three. They say we aren't suoopsed to fly but I have a few times. I never ...

Spirit of Fear

Ihatesicklecell
  • By Ihatesicklecell · New reply September 22, 2011
  • 7 replies
  • Two days ago I came across 3 women talking in the lunch room where I work. One woman was telling a story of a woman and her daugher that attended her church while the other 2 listened. The part of the ...

How to start a support group

Germaine74
  • By Germaine74 · Posted June 2, 2011
  • 0 replies
  • I am a registered nurse on a pediatric unit. How can i start a support group for my children with Sickle Cell. Any suggestions or advice is welcomed? Thank u ...

STRESSED OUT IN THIS CRISIS HELP!!!

mochakisses
  • By mochakisses · New reply April 22, 2011
  • 7 replies
  • MY BROTHER WHO IS NOW 16 HAS SICKLE CELL AND RIGHT NOW HE'S HAVING A CRISIS SINCE THE WEATHER HAS CHANGED ARE THERE ANY HOME REMEDIES OR THINGS TO DO TO COPE WITH THE PAIN CUZ BACKING N FORTHING FROM ...

How has this group helped?

deeljohn
  • By deeljohn · New reply March 6, 2011
  • 2 replies
  • My classmates and I are doing a project about sickle cell anemia and the community support that is available. We live in the Dayton, Ohio area and there is really only one group in the majority of Ohio ...

Fetal Hemoglobin is saving my life!

Paula82
  • By Paula82 · New reply January 24, 2011
  • 4 replies
  • I know many sicklers take Hydroxyurea or Hydrea. I tried it and my doc and i discovered that it is useless for me to take since my body produces so much hemoglobin F that they cant understand it. Does ...

Sickle Cell Support

sicklermom1
  • By sicklermom1 · New reply January 13, 2011
  • 1 reply
  • Anyone in Ontario have Sickle Cell Anemia? Want to join support group, leArn about, volunteer, assist with web page, sponsor etc? Email ajjennin@hotmIl.com ...

100% Natural Methods of Pain and Crisis Management

Inglesa-Loquita
  • By Inglesa-Loquita · New reply September 2, 2010
  • 4 replies
  • Just pulling through an horrendous period of several crises in a row. I refuse to take the chemical cocktail of drugs the doctors keep offering (a pill for my liver, a pill for the pain, a pill for my ...

SSA and SSA

nokobiak
  • By nokobiak · New reply August 19, 2010
  • 4 replies
  • I have recently begun the process of applying for social security disability and I was wondering if anyone out there has any insights or advice to share regarding the process. What are the dos and don'ts ...

living alone

britany1
  • By britany1 · New reply May 10, 2010
  • 3 replies
  • hi i am 23 years old and i live with my mom and sister and here lately i have been wantin 2 move out and live by myself but mom said if i do she wont be there 2 help me if i get sick or anything eles ...

doctor

saira
  • By saira · New reply May 3, 2010
  • 8 replies
  • hi before i start let me tell you that i do not have sickle cell anemia. i am a doctor who has a few patients with sickle cell crisis and i have seen them through painful crisis. however a few patients ...

Dating someone with sicle cell

pumpkin1279 (Inactive)
  • By pumpkin1279 (Inactive) · New reply April 8, 2010
  • 3 replies
  • I am currently dating someone with SCD, and I'm finding it hard to cope. He often has pain attacks that are usually caused by stress. I will say, since we have gotten together, he is managing his stress ...

Things you can do

Discussion topics

Community leaders