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Aquamine
  • By Aquamine · New reply March 29, 2013
  • Discussion in Living with sickle cell anemia · 7 replies
  • Hi Everyone, just joined this group. Just had a relationship end because I have Scd. It's been a rough week and I have been trying to see a psychologist help me out with my emotional state. Was advised ...

DIVORCE OR NOT WHAT UR ADVICE

wully
  • By wully · New reply March 29, 2013
  • Discussion in Sickle cell anemia · 15 replies
  • Hi evr'yone,am recent in this group.I have a daughter who is 4yrs old with scd.I have had two miscarriages after her and am willing to try again.But my hubby is says no more kids.the ratio is 1:3 i.e ...

Should children be told that they have sick cell

sicklermom1
  • By sicklermom1 · New reply March 28, 2013
  • Discussion in Sickle cell anemia · 10 replies
  • Hi friends, I was wondering if I could get your thoughts on this question. At what age do you think it is appropriate to explain to your child that they have sickle cell disease and all that comes with ...

Scd and winter weather at school

sicklermom1
  • By sicklermom1 · New reply March 28, 2013
  • Discussion in Living with sickle cell anemia · 4 replies
  • Since we have just had some very cold days, -28 degrees celsius, just how cold is too cold to send your child with scd to school without being concerned for their health. I mean we can bundle and layer ...

transfusion

serwaa

Sickle Cell Nautral Healings

nicole12345
  • By nicole12345 · New reply March 25, 2013
  • Discussion in Treatment · 50 replies
  • Hello Everyone, I have a 3 year old son with Sickle Cell Disease, I have a 2 year old with SC, my husband also has SC and my 4 year old daughter has the trait. I have been doing a lot of research on natural ...

Would You Marry an SS

adebayo
  • By adebayo · New reply March 25, 2013
  • Discussion in Sickle cell anemia · 18 replies
  • I am 48, genotype AS. I have a 14 year old son whom I am managing well with diet, herbs and supplements. He is always well unless he gets careless with himself. Recently, I elect to marry a young girl ...

Should scd students be put on a IEP

sicklermom1
  • By sicklermom1 · New reply March 25, 2013
  • Discussion in Sickle cell anemia · 4 replies
  • IEP is individualized education plan that guides the delivery of special education support for your child. I'm not sure if this is specific to Ontario or if where you live have an equivalent program ...

Sickle Cell Disease..... Nicoson Medication

Nasser
  • By Nasser · New reply March 16, 2013
  • Journal · 17 replies
  • I have been told that you can obtain this Nicoson from Nigeria for the management of sickle cell pain. Please advise how to obtain it ...

L-Glutamine

GodhasControl
  • By GodhasControl · New reply March 14, 2013
  • Discussion in Sickle cell anemia · 16 replies
  • My daughter has SSD and we just put her on a study, L-Glutamine, it's in Phase III. Has anyone ever tried it for themselves or child? Was there any side effects? Did you notice anything positive or negative ...

Chicago Area SCT Physicians

yjackwil
  • By yjackwil · New reply March 14, 2013
  • Discussion in Sickle cell trait · 1 reply
  • Hello everyone and Thanks so much for this blog/group. I have been dealing with this condition for years but never saw the importance of fighting to get help until my son came along with SS. In taking ...

my angel

mrswalker_21
  • By mrswalker_21 · New reply February 23, 2013
  • Discussion in Raising a child with sickle cell anemia · 14 replies
  • Hi everyone. i an new to the group. i have a 14 month old son. i love him to death .he has been in the hospital 10 times before he turned one. Right now i am on my way to the hospital because his sleen ...

Bone Marrow Transplant

kkids
  • By kkids · New reply February 19, 2013
  • Discussion in Sickle cell anemia · 29 replies
  • Is anyone familiar with Bone Marrow Transplant with Sicklers ...

The assumption that sickle-cell trait (SCT) is benign is challenged

SCT-Hall
  • By SCT-Hall · New reply February 13, 2013
  • Journal · 2 replies
  • "Fourteen states do not record SCT as a cause of death."http://meeting.physanth.org/progr am/2013/session31/flansburg-2013-is-sick le-cell-trait-as-benign-as-is-usually-as sumed.html ...

Toronto get-2-Gether for March break

sicklermom1
  • By sicklermom1 · Posted February 10, 2013
  • Discussion in Family and friends · 0 replies
  • This message is primarily to those who live in the Toronto Canada and sorrounding areas. If you live elswhere and you can attend, all the better. With March break quickly approaching, I thought it might ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

Sickle Cell Disease

sujan
  • By sujan · New reply February 2, 2013
  • Discussion in Raising a child with sickle cell anemia · 11 replies
  • Hi every body, My nephew 13months baby boy suffering with sickle cell anemia, if know about the treatment to cure it or control pls advise me. Thanks Sujan ...

Sickle Cell and Learning dissabilities

Mekhaismom
  • By Mekhaismom · New reply January 27, 2013
  • Discussion in Sickle cell anemia · 3 replies
  • Hello all, I have began to think that my 8 year old daughter with sickle cell could have a learning disability. After doing some research, I have found studies that connect the blood flow to the brain ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

sickle cell disease

nannalolo
  • By nannalolo · New reply January 22, 2013
  • Discussion in Sickle cell anemia · 4 replies
  • i have a set of twin girls. one of my twins have scd. she wasn't diagnose until she was 3 mos. My mother and i thought she was just a cry baby at first. In 1998 she was diagnose with a salmonella disease ...

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