Discussions
DOES THE WHITE MAN KNOW ABOUT OUR BLACKMAN'S FOOD NEEDS AT ALL?
- By MABREH · Posted May 21, 2013
- In Sickle cell anemia · 6 replies
- it was only when i applied the simple advice of using certain foods that my daughter begun to enjoy life even though she is a sickle cell patient....it may be funny but practically i think it is very ...
The Solution is here
- By Lawalation · Posted May 20, 2013
- In Sickle cell anemia · 4 replies
- Early hours of today my daughter started complaining of pains in the abdominal part of her body. This gave me a kind of headache because I don't want her to go through that terrible experience of pains ...
Concern mother of baby boy with SSD...
- By Wyzdom20 · Posted May 13, 2013
- In Raising a child with sickle cell anemia · 11 replies
- Hello everyone. This is my first time posting in this forum, just joined last week. I'm so happy I found this group because I really need the support of others experiencing similar dilemmas. My baby boy ...
Sickle Cell Disease and Bone Marrow Transplants
- By kheartandsoul · Posted April 26, 2013
- In Raising a child with sickle cell anemia · 6 replies
- Hello everyone this is my first time posting on here but I have a very inportant question. Has anyone ever known anyone or has a child that has had a bone marrow transplant for their sickle cell?? My ...
ENLIGHTMENT ON VACINATION
Daughter diagnosed!
- By Worriedmama4113 · Posted April 22, 2013
- In Sickle cell trait · 7 replies
- My daughter was diagnosed with sickle cell trait she is 3 weeks does anyone know of anything about this precautions or anything like this ...
45 yr male Cardiac Issues complicated by hemoglobin c trait?
- By cboyd2702 · Posted April 12, 2013
- In Sickle cell trait · 1 reply
- We discovered My Husband has hemoglobin c trait in 1988. Were given the basic info. Since then all 3 of my children & 2 grand children have also found to have it. In January of 2012 my Husband had a heart ...
done before?
- By Clara67 · Posted April 4, 2013
- In Sickle cell trait · 2 replies
- Hi there, I have just come back from Tanzania where I climbed mt Kilimanjaro to the summit. I am a carrier of hemoglobin S; I was wondering if someone else has ever done it. Now before someone here decide ...
Genetics
- By kcofer09 · Posted March 27, 2013
- In Family and friends · 5 replies
- I was diagnosed with sickle cell anemia when I was a baby so throughout my whole life I've just gained so much knowledge about the disease for obvious reasons. I'm 21 years old and had my first and only ...
Hydroxyurea
- By Laurensmommy · Posted March 25, 2013
- In Raising a child with sickle cell anemia · 12 replies
- Hello Everyone, I just would like to know some of you all experience with using hydroxyurea. Did it help and how did it make you fell? OR did you find it useful as a child or with your child ...
Summer Vacation
- By kcofer09 · Posted March 24, 2013
- In Living with sickle cell anemia · 5 replies
- My friends and I have planned a trip to Panama during the upcoming summer. But I have a problem! 7 out of 10 times when I go swimming I end up going into a Sickle Cell crisis. I really want to go on this ...
transfusion
- By serwaa · Posted March 21, 2013
- In Raising a child with sickle cell anemia · 6 replies
- a week prior to transfusion the child realy get tired and high in energy after the transfusion ...
DIVORCE OR NOT WHAT UR ADVICE
- By wully · Posted March 18, 2013
- In Sickle cell anemia · 15 replies
- Hi evr'yone,am recent in this group.I have a daughter who is 4yrs old with scd.I have had two miscarriages after her and am willing to try again.But my hubby is says no more kids.the ratio is 1:3 i.e ...
Relationship
- By Aquamine · Posted March 16, 2013
- In Living with sickle cell anemia · 7 replies
- Hi Everyone, just joined this group. Just had a relationship end because I have Scd. It's been a rough week and I have been trying to see a psychologist help me out with my emotional state. Was advised ...
Chicago Area SCT Physicians
- By yjackwil · Posted March 14, 2013
- In Sickle cell trait · 1 reply
- Hello everyone and Thanks so much for this blog/group. I have been dealing with this condition for years but never saw the importance of fighting to get help until my son came along with SS. In taking ...
my angel
- By mrswalker_21 · Posted February 16, 2013
- In Raising a child with sickle cell anemia · 14 replies
- Hi everyone. i an new to the group. i have a 14 month old son. i love him to death .he has been in the hospital 10 times before he turned one. Right now i am on my way to the hospital because his sleen ...
Toronto get-2-Gether for March break
- By sicklermom1 · Posted February 10, 2013
- In Family and friends · 0 replies
- This message is primarily to those who live in the Toronto Canada and sorrounding areas. If you live elswhere and you can attend, all the better. With March break quickly approaching, I thought it might ...
Scd and winter weather at school
- By sicklermom1 · Posted February 2, 2013
- In Living with sickle cell anemia · 4 replies
- Since we have just had some very cold days, -28 degrees celsius, just how cold is too cold to send your child with scd to school without being concerned for their health. I mean we can bundle and layer ...
Should scd students be put on a IEP
- By sicklermom1 · Posted February 2, 2013
- In Sickle cell anemia · 4 replies
- IEP is individualized education plan that guides the delivery of special education support for your child. I'm not sure if this is specific to Ontario or if where you live have an equivalent program ...
Should children be told that they have sick cell
- By sicklermom1 · Posted January 31, 2013
- In Sickle cell anemia · 10 replies
- Hi friends, I was wondering if I could get your thoughts on this question. At what age do you think it is appropriate to explain to your child that they have sickle cell disease and all that comes with ...
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