Sickle Cell Trait and Crisis Symptoms

I was born with sickle cell trait, because my mother had it. I didn't know about it. I grew up being strong and healthy as any other kid, but when I turned 14, I started to faint, and doctors couldn't explain why. The faints started occurring more often. When I was eighteen, it exploded. I have had pain all over my body, agonizing migraines, my whole body swells, my bones hurt, and sometimes my abdominal pains feel like I am dying. I could last a week, or several weeks. I try to prevent by eating healthy and all, but I don't qualify for any medication, because the state health insurance in Puerto Rico covers only if you have over 70% sickled cells. I only have a 48%. Doctors tell me it is not normal for a sickle cell trait patient to be so high, and give me only anti-inflammatory medication which does barely anything. I cannot do any hard aerobics or running because i quickly swell, and I avoid planes for it is an automatic faint, and a 2 day migraine. Can anybody tell me how I can calm my excruciating pain without having access to medication?

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I know of ppl with sickle cell trait, matter-of-fact 2 of my siblings have it. No one that I know of suffer as you do and for that matter they are rarely sick. If they do get sick it's not related to the trait. Perhaps you should be tested for other possiblities of why the migraines, fainting, and swelling occurs. I know that if you have extremely low blood count you are more prone to fainting, but patients with sickle cell trait usually have blood count eith close to normal or normal blood count. Do you know what your hemaglobin level are? Also, get a check up with a hematologist, neurologist and rheumatoid arthritis specialist. Specialist are usually more helpful that just a general doctor. Pray you find what the underlying causes are.

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For years there has been every test made. They even sent me to a psychiatrist to determine if I was hypochondriac (person who compulsively believes has a disease a the body reacts to the mind reflecting symptoms) and my pain and symptoms are real. I also bruise quickly, and my muscles hurt, I feel very week, and my body becomes over sensitive.

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I don't have arthritis rheumatoid, and neurologist says I am fine. My hematologist says that even though it is rare, people with the trait can experience symptoms and that is rare for a person with the trait to have so many sikcled cells in the blood count. That is all the explanation I have received.

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Hhhuuummm, I'm stupped. The only other thing that I can think of is how there is various types of Sickle Cell, 7 types to be exact. Have you gotten a genetic testing to check the type of sickle cell or if you have a combination of the various type of Sickle Cell? Also, healthy eating and drinking is key towards being healthy. Check out T.J. Brown on facebook, he works on organic foods for healthy sickle cell patients. Also, you can blog on Sickle Cell Warriors dot com for ppl that may be in your same perdicament. Hope that helps... Oh, try and get Hope and Destiny it's a guide for Sickle Cell patients.

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Thank you soo much. I didn't know there were seven... I thought it was just one! Thank you!

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Me too. Until my hematologist diagnosed me with Beta Thalassemia. My whole life I thought I just had Sickle Cell, plain and simple. I was fortunate to have come across such a dedicated hematologist. No one else bothered to check my genetics. So now, I know what to expect and what I am dealing with. Then I was kinda push into the Sickle Cell Association at the hospital my hematologist is associated with and they provided me with the book, Hope and Destiny. I started reading it and found a great deal of info. I never had a fainting spell, but I do experience alot of dizziness (now that I think of it). But I blood levels are always on the low side, whereas yours is on the higher side. I am grateful to God for meeting these health care providers. I pray you find the same in Puerto Rico. Stay Blessed.

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I am sorry I haven't answered. I was kinda depressed and feeling a bit weak. Not sick, just weak. I moved to Connecticut with my father, and doctors don't want to attend my situation, they want to make test for arthritis, and rheumatoid or fibrosis first. I am feeling a bit better. I think high levels of humidity and heat might make things worse, whatever it is I have. But I have regained my faith, and started assisting my father's church, so I am trusting in God in all of this.

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I also have sickle cell trait. When I was born all the doctors told my parents was to tell me so I would get my spouse bloodtested before we decided to have children. We never thought anything of it after that, until two years ago (when I was 16) my mother's friend who's daughter has Graves Disease asked my mother how she deals with the side affects of my sickle cell, which she read about in an article. My mother was really confused and thought her friend was just talking about sickle cell anemia or sickle cell disease, but when she read the passage it was about sickle cell trait. All of the symptoms she read about were things that had been happening to me for years, which we had no explanation for until then. I often have migraines, I've passed out from heat stoke, (even just being in a bathroom that's too steamed up can make me woozy) I also get head rushes that make my vision black over when I stand or sit up that make me nauseous and disoriented. I bruise very easily as well. I had always thought most these were symptoms of my being slightly overweight (I'm 5'5" and 180lbs), and these were normal things no one talked about. I've talked to my primary care physician since learning the implications of my sickle cell trait and she wouldn't tell me much of anything, saying that such symptoms were few and far between and not to worry. She said when I was born the doctors may have thought since I and both my parents are Caucasian (blonde, blue eyed, the whole nine; My mom is half Yugoslavian and Polish and dad is German with Virgin Islander roots) that I wouldn't get any of the symptoms. I don't really understand the logic, but then again I don't think there's any in not informing parents about a condition your child has that athletes and soldiers in training have died from. Thank goodness I never had any interest in sports or joining the military. Anyways, I saw your post and had to tell you that you aren't the only one on the odd end of the spectrum of sickle cell trait. I more recently learned about the different types of hemoglobin and plan to see if I can figure out if that has anything to do with the symptoms.

Things that have helped me with my symptoms: eating carbs and protein, a lot of times I'll eat plain tortillas or tortillas with some peanut butter or cheese because they settle my stomach. Staying hydrated and eating real food (as opposed to junk food, I learned that the hard way passing out on my bathroom floor) is a must. I find that when I start to get dizzy or woozy sitting or laying on the floor with a fan on me helps. Cool, wet washcloths on my forehead and neck. Keeping my head cool as well, after showers if I feel like I'm getting weak I immediately take the towel off my head. The humidity could definitely be worse for you because I'm the same way, I generally try to avoid humidity or a lot of heat. With head rushes I just grab something sturdy and wait for it to pass or sit back down, but I find I don't have as many if I stay cool and hydrated with proper food in my stomach.

Wishing you luck!

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OMG! Thank you so much! It is a relief to know I am not the only one!!! Yeah, drinking more water has made a difference. I tried to talk to my Dr. about the different types of sickle cells like Ihatesicklecell suggested but they still want to go about with a rheumatologist. I have to wait 4 more months to see one. Whats crazy is I have already had all these tests done! Thank you very much for your message! I appreciate it.

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No problem(: I know how relieved I was when I found out that I wasn't crazy. That these things had happened to other people and it wasn't just because I was overweight or something. Good luck with the tests and everything. Hopefully the doctors will get it right eventually, right?

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