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Sickle Cell SC and headaches

mgba
  • By mgba · New reply 12:43 pm
  • Discussion in Raising a child with sickle cell anemia · 10 replies
  • My son has hemoglobin SC disease and recently after complaints of headaches and eye pain a MRI showed he has suffered from a silent stroke in the past. This was alarming to me because I had been told ...

cronic pain every times

harsh27
  • By harsh27 · New reply 12:38 pm
  • Discussion in Sickle cell anemia · 4 replies
  • Hiii, every one . i am harsh and i have sickle cell anemia with ss patterns .i have very painfull crices in every day every times i m takeing folic acid and lots of pain killer .. pain killer as the {tramadol ...

Diet of the SS child

Cheen
  • By Cheen · New reply 9:47 am
  • Journal · 6 replies
  • As a mother of an SS child, all I want to do is ensure my baby is safe, healthy and of sound mind. The sure way to do it, is through prayers and diet. Foods Rich in Thiocyanate are anti-Sickling nutrients....they ...

Death-son

nabs
  • By nabs · New reply April 21, 2014
  • Discussion in Sickle cell anemia · 21 replies
  • Dear all Death has again stolen my loved one,my son died last week on wednesday due to sicklecell ,he was 18 years,this is the 3rd child am losing and am in too much pain i wonder how God is going to ...

I need some advice

maame31
  • By maame31 · New reply April 21, 2014
  • Discussion in Raising a child with sickle cell anemia · 6 replies
  • All I am new here, I have two boys and they all SC. The first 4 years and the second 6 months. They are on penicilin and folic acid. The first sometimes get headache and until I antibiotics he wouldn't ...

Healing Blends Global helping Sickle Cell Disease

nicole12345
  • By nicole12345 · New reply April 20, 2014
  • Discussion in Sickle cell anemia · 12 replies
  • Healing Blends Global is open - our office is in Hollywood FL and we have just opened an office in Kenya distributing herbs to sickle cell patients in the communities. Healing Blends Global mission is ...

Painful crisis with Sickle Cell Trait

Mjr2014
  • By Mjr2014 · New reply April 15, 2014
  • Discussion in Sickle cell trait · 11 replies
  • I have sickle trait...was diagnosed as a baby from a doc from California..I live in Alabama...I am now 40 and doing research on how many other people have pain associated with their trait..I have been ...

Searching

sunshinesurprise
  • By sunshinesurprise · Posted April 10, 2014
  • Journal · 0 replies
  • My name is Shenoah Johnson, and I live in Baton Rouge, Louisiana. I have Hemoglobin SC disease and I have frequent pain crisis as well as other issues that derive from the disease. I have found that a ...

REGULAR FEEDING IS VERY CRUCIAL TO SICKLE CELL PATIENTS

MABREH
  • By MABREH · New reply April 10, 2014
  • Discussion in Sickle cell anemia · 11 replies
  • GOD HAS BEEN SO GOOD TO MY FAMILY BCOS MY SICKLE CELL DAUGHTER HAS BEEN ABLE TO GO TO THE BOARDING SCHOOL AND HAS STAYED HEALTHY ALL THIS WHILE AWAY FROM ME....and the trick is that SHE EATS THE RECOMMENDED ...

Herbs for Sickle Cell now available in Kenya

nicole12345
  • By nicole12345 · New reply April 7, 2014
  • Discussion in Sickle cell anemia · 29 replies
  • Hello Everyone, My company, Healing Blends Global has opened up an office in Western Kenya, in Mumias. We have our herbs approved by the Kenya Pharmacy and Poison Board and we have opened up an office ...

Sickle Cell Natural Healing - my son 4 years with no crisis

nicole12345
  • By nicole12345 · New reply April 4, 2014
  • Discussion in Sickle cell anemia · 17 replies
  • Hello Everyone, My son is now 5 years old and he has gone 4 years with NO crisis! I decided to write a book about my journey and be an inspiration to others. Like many mothers out there, my son was having ...

Sickle Cell Disease Trait

nvanderburg
  • By nvanderburg · New reply April 1, 2014
  • Discussion in Sickle cell trait · 8 replies
  • In Minnesota the Newborn Screening program doesn't provide much in the way of educational material to doctors or parents when their infant is identified with Sickle Cell Trait. For your children with ...

High Altitudes...

ineedtoknow213
  • By ineedtoknow213 · New reply March 31, 2014
  • Discussion in Sickle cell anemia · 4 replies
  • Does anyone live in high altitude with Sickle Cell Anemia SS? What do you experience living there? My job wants us to relocate to Denver, Colorado. My doctor says I should be fine as long as I keep up ...

Sickle cell and Malaria

lorenelady
  • By lorenelady · Posted March 26, 2014
  • Discussion in Sickle cell anemia · 0 replies
  • Sickle cell trait occurred as a natural mutation of the hemoglobin gene. Sickle trait serves as a protective mechanism against malaria. Malaria is a deadly disease found in countries along the equator ...

Sickle cell Anemia and Stem Cell transplant

lorenelady
  • By lorenelady · New reply March 25, 2014
  • Discussion in Treatment · 18 replies
  • My son who is now 18 received a stem cell transplant when he was 17, he started the process when he was 16. It is a long process with much testing, seeking donors and getting approval from insurance ...

Liquid Chlorophyll

GenevaDream
  • By GenevaDream · New reply March 20, 2014
  • Discussion in Raising a child with sickle cell anemia · 1 reply
  • I recently found out my new baby has sickle cell anemia. He's almost 6 months old and thankfully crisis free. He's on daily peniclllin and frolic acid. I'd like to give him liquid cholorophyll but I'm ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Sickle Anemia and Stem cell Transplant

lorenelady
  • By lorenelady · New reply March 16, 2014
  • Discussion in Treatment · 2 replies
  • I just found out something very interesting from my son's doctor. My son had a stem cell transplant and he no longer produces sickled cells so I thought he no longer had sickle cell anemia but I was incorrect ...

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