The Short Bowel Syndrome Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Curious About The benifits Of Coconut Oil

Duvie
  • By Duvie · New reply yesterday at 11:27 pm
  • Journal · 323 replies
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

Pain on right side.

Fairbank
  • By Fairbank · Posted yesterday at 12:36 am
  • Journal · 0 replies
  • Hi,in the last couple of weeks I've had severe pain mainly on the right side.It runs from my surgery scar at the naval down nearly to my right groin,this is the area that I have a partial obstruction.It ...

goldenfingers

goldenfingers
  • By goldenfingers · New reply April 22, 2014
  • Discussion in Surgery · 7 replies
  • I wonder what results anyone is having with new surgeries to stop constant diarrhea. Had half of my small bowel removed 10 years ago, and ever since diarrhea will not stop. Walking any distance or social ...

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 22, 2014
  • Journal · 72 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

Time to find a new Primary Care Doc

TNC
  • By TNC · New reply April 19, 2014
  • Discussion in Patient / physician relationships · 19 replies
  • A Week ago I realized it was time to find a new primary care doc. God how I hate training a new doctor into the treatment of Short Bowel Syndrome, This rural area I live in north of the DFW metroplex ...

Meeting someone like me!

lilpeeps
  • By lilpeeps · New reply April 16, 2014
  • Journal · 3 replies
  • A new post for my blog.. http://thrivingsbs.blogspot.com/2014/04/ meeting-someone-like-me.html Have a good day! Michelle ...

goldenfingers

goldenfingers
  • By goldenfingers · New reply April 15, 2014
  • Discussion in Medications · 7 replies
  • it has been 10 years since my surgery when half of my small bowel was removed I came out of the surgery with out a bag, but sometimes I wish that they would have just taken it all. I am so miserable with ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Candida

Milkomuggins
  • By Milkomuggins · New reply April 9, 2014
  • Discussion in Medications · 3 replies
  • Anyone suffer from bouts of candida? I am finding my condition very complicated , any thoughts on medication and coping strategies ...

Short gut syndrome

Fairbank
  • By Fairbank · New reply April 8, 2014
  • Discussion in Exercise, diet and nutrition · 32 replies
  • Hi,I would love to hear from anyone with diet suggestions for short gut.I have had this condition for 6 yrs due to botched surgery,being left with 2 mtrs of small bowel.Does anyone have acid reflux due ...

UNMC Intestinal Rehab Patients????

neytiri86
  • By neytiri86 · New reply April 3, 2014
  • Discussion in Exercise, diet and nutrition · 2 replies
  • I am noticing many people on here who are no longer TPN dependent and are either almost all the way weaned off or only taking in half their calories orally. Does anyone go to clinic at the University ...

What just happened??

lilpeeps
  • By lilpeeps · New reply March 31, 2014
  • Journal · 3 replies
  • Here's an update on my blog...hope you enjoy reading it. http://thrivingsbs.blogspot.com/2014/03/ what-just-happened.html Michelle ...

Short bowel Support Group - Cincinnati Ohio

lilpeeps
  • By lilpeeps · Posted March 31, 2014
  • Journal · 0 replies
  • Hi, My friend, Dave, and I are trying to start a support group in Cincinnati and surrounding areas (Columbus, Lexington, Louisville, Indianapolis, etc.) for Short Bowel Patients. He is TPN dependent and ...

Question

Matthew1416
  • By Matthew1416 · Posted March 30, 2014
  • Journal · 0 replies
  • Who else out there fights through severe abdominal pain/cramping in order to consume a diet that's as normal as possible? An honest question via simple curiosity. I have been off of TPN for about four ...

Running

Jpenney
  • By Jpenney · Posted March 28, 2014
  • Discussion in Exercise, diet and nutrition · 0 replies
  • Hi, I'm a runner and I'm planning to run a half marathon this May which I've never done before. I'd love a few tips on how to deal with SBS as a runner, specifically the having to go to the bathroom in ...

Any teenagers out there?

Jpenney
  • By Jpenney · Posted March 28, 2014
  • Discussion in Newly diagnosed · 0 replies
  • Hi, I'm a rarity in the SBS world. I had half my small intestine removed right before my 14th birthday because of a mesenteric congenital defect that wasn't found until an emergency laparotomy following ...

Life was good until.....

lilpeeps
  • By lilpeeps · New reply March 27, 2014
  • Journal · 1 reply
  • Here's another post on my blog... http://thrivingsbs.blogspot.com/2014/03/ life-was-good-until.html lilpeeps aka Michelle ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • Journal · 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

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The Short Bowel Syndrome Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Short Bowel Syndrome Foundation, an Inspire trusted partner.