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psjaquith
  • By psjaquith · Posted January 2, 2009
  • Discussion in Epilepsy · 0 replies
  • Wow, all the topics listed apply here. I hunted and did not find a seizure group earlier this week so thank you Inspire for giving me direct link. My daughter has metabolic related intractible seizure ...

Tearful

sophia0000
  • By sophia0000 · Posted December 24, 2008
  • Journal · 1 reply
  • Hello, For some time I have been thinking of joining a support group for people with seizure disorders. My son is 25 and has has suddenly developed seizures. They started about a year ago. He has been ...

It's been a while since I last posted

CanadaNuse
  • By CanadaNuse · Posted December 22, 2008
  • Journal · 1 reply
  • Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...

catamenial seizures in teen girls and women pls help!

crose
  • By crose · Posted December 14, 2008
  • Discussion in Raising a child with a seizure disorder · 1 reply
  • my teen is using medical cannabis for seizures its is helping but we still have problems with estrogen rises due to her period and because she has lennox-gastaut syndrome most of the pharmaceuticals eventually ...

does anyone use medical cannabis for treatment of seizures?

crose
  • By crose · Posted December 14, 2008
  • Discussion in Epilepsy · 0 replies
  • my teen is using medical cannabis for seizures its is helping but we still have problems with estrogen rises due to her period and because she has lennox-gastaut syndrome most of the pharmaceuticals eventually ...

Seizure Medications

jdawgrules2
  • By jdawgrules2 · Posted December 13, 2008
  • Discussion in Treatment · 0 replies
  • Has anyone taking tegretol found a better medicine with less side effects ...

New to the group

lovies10323
  • By lovies10323 · Posted December 11, 2008
  • Discussion in Living with seizures · 1 reply
  • Hello, nice to be here. I've had Epilepsy for 36 years. I have gone through yrs with no seizures until I started into the change of life. I started having them daily and received a VNS implant in June ...

Depakote in toddlers

gracie_momma
  • By gracie_momma · Posted November 26, 2008
  • Discussion in Raising a child with a seizure disorder · 3 replies
  • Hello, my name is Jennifer. My daughter Gracie will be 3 on the 13th of Dec. She has had seizure since she was 10 weeks old. She has been on meds everywhere from Phenobarb to keppra and so on. Currently ...

Spence's Story

Spence
  • By Spence · Posted November 23, 2008
  • Journal · 1 reply
  • I invite you to walk with us in our journey with Spence: http://www.shareyourstory.org/webx/.ef32 192 ...

New epilepsy DX for my son - anyone in the same boat?

mariav
  • By mariav · Posted November 20, 2008
  • Discussion in Raising a child with a seizure disorder · 5 replies
  • Hi everyone, I am new to this group and wanted to introduce myself and see if there were others out there raising young kids with E. Last week, my 18-month-old son was diagnosed with epilepsy after having ...

Feeling more lost then ever! with medical and education

CanadaNuse
  • By CanadaNuse · Posted November 17, 2008
  • Journal · 3 replies
  • A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...

My baby girl

mkheb27
  • By mkheb27 · Posted November 4, 2008
  • Journal · 2 replies
  • After the friends leave and the mess from pumpkin carving is cleaned up, its time to get the kids to bed. Its now 8:30pm and the girls are getting all set to go to sleep. My son is 10 and is allowed to ...

catching up----lets join in prayer together...see my email below

vickiec51
  • By vickiec51 · Posted October 24, 2008
  • Journal · 1 reply
  • I have moved from Houston area to San Angelo, Tx. I was able to pull myself up from what the dr was trying to do. He was not a good dr and didnt return my calls telling him that I was having drastic side ...

Infantile Spasms with my almost 2 year old. I NEED HELP !!!

Christina261982
  • By Christina261982 · Posted October 23, 2008
  • Journal · 1 reply
  • My son will be 2 in December and has been on all kinds of medications for his infantile spasms. They also think he has mitochondrial disorder. He is currently on Keppra and the doctor wants to take him ...

Its been a while since I last posted!

CanadaNuse
  • By CanadaNuse · Posted August 21, 2008
  • Journal · 2 replies
  • There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...

Tiring week and strange day.

Neodreams
  • By Neodreams · Posted June 24, 2008
  • Journal · 1 reply
  • With all the work and energy I am putting out for work, my business, Chloe, the house, year etc today I am tired, stressed and a little overwhelmed. Just got home from work a bit ago. I can't sleep when ...

Long days and longer nights

Neodreams
  • By Neodreams · Posted June 21, 2008
  • Journal · 1 reply
  • Though for the most part I have not had a lot of seizure activity that would limit me in a while I have been feeling it, as always, there and waiting to remind me that its still there. Some days it is ...

When will they learn?

tomthetwin
  • By tomthetwin · Posted June 3, 2008
  • Journal · 0 replies
  • June 3, 2008 (Any) School Attn: (Any teacher or instructor) (Any street address or P.O. Box) (Any City, State, and Zip code) Dear Citizen: My name is Tom. I’m an advocate with many local programs and ...

Sometimes we make mistakes

Brian
  • By Brian · Posted May 23, 2008
  • Journal · 35 replies
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

Why are we here?

Brian
  • By Brian · Posted April 11, 2008
  • Journal · 136 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

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