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No seizures in over a year

mcjune
  • By mcjune · Posted April 13, 2014
  • Journal · 0 replies
  • I have not had a seizure but I still have shakes in my hands. It takes a lot of effort to type sometimes and sometimes I have small head trimmers when I am in bed. Sometimes it is involuntary shakes and ...

My intro

satsujin
  • By satsujin · New reply April 13, 2014
  • Journal · 1 reply
  • This is my introduction to this site. I joined mainly because I am hoping to meet others with seizures particularly others with temporal lobe seizures. My seizures started around age 5 as petit mals ...

Forget about it

mcjune
  • By mcjune · New reply April 13, 2014
  • Journal · 6 replies
  • Let's face it...I am crazy ...

getting Vns

deedee103174
  • By deedee103174 · New reply March 23, 2014
  • Discussion in Treatment · 10 replies
  • Hi everyone. I have had Medial THE since I was 12. I am now 39. So I have been through over 12 meds and still get seizures. I went to the EMU four times now !!! Was considering the vns therapy cause I ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Dialog Patch

bandgeek7350 (Inactive)
  • By bandgeek7350 (Inactive) · Posted March 15, 2014
  • Discussion in In the news · 0 replies
  • http://www.artefactgroup.com/content/wor k/dialog/ check this out. seems pretty cool ...

Triggers

bandgeek7350 (Inactive)
  • By bandgeek7350 (Inactive) · New reply March 13, 2014
  • Discussion in Epilepsy · 9 replies
  • Hey guys, if you could comment below and tell me what your triggers are for your seizures (or your loved one who has epilepsy) I would greatly appreciate it. I am working on a video for epilepsy awareness ...

Using Albuterol

jdawgrules2
  • By jdawgrules2 · New reply March 11, 2014
  • Discussion in Living with seizures · 8 replies
  • Has anyone used Albuterol due to asthma or bronchitis? I had bronchitis last week, the Drs prescribed me an Albuterol inhaler. At times i felt kinda strange and had a bad stutter. Read on couple of sites ...

how do you know?

bandgeek7350 (Inactive)
  • By bandgeek7350 (Inactive) · New reply March 10, 2014
  • Discussion in Raising a child with a seizure disorder · 2 replies
  • parents, if you have a child with seizures are there any ways you notice that your child is about to have a seizure? like if they dont tell you they are going to or they feel weird, is there any way you ...

Is this normal?

TDavis712 (Inactive)
  • By TDavis712 (Inactive) · New reply March 10, 2014
  • Discussion in Epilepsy · 1 reply
  • Hi Everyone, I was just wondering how many of you actually experience this? I have recently been diagnosed with TLE and I have been having seizures since I was 17 or 18 years old. I have grand mals, simple ...

VNS Therapy-voice changes

Raelyyn
  • By Raelyyn · New reply March 3, 2014
  • Discussion in Other seizure disorders · 4 replies
  • I was diagnosed with partial seizures in2009, but was misdiagnosed with mental disorders from 2001 to 2009. I was also diagnosed with gastroperesis in 2011. [Unrelated, I think, also diagnosed with migraines ...

looking psuedo seizures

royp
  • By royp · New reply March 2, 2014
  • Journal · 13 replies
  • looking for someone to talk to who has psuedo seizures, or lives with someone who has them ...

Another sezure

Deannie58
  • By Deannie58 · New reply February 28, 2014
  • Discussion in Living with seizures · 2 replies
  • Living with my sezures is not easy. Some times I can tell when one is coming onbbut as oflate they cone out of nowhere. I recently had one just sitting and started watching TV and the next thing I knew ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

They are back----a lot more!!!!!!

emanuel8
  • By emanuel8 · Posted February 16, 2014
  • Discussion in Epilepsy · 0 replies
  • hello, Had sugery for my b. tumor. it was a successful sugery. they really cut back on the sez. Now this was on Aug 7. Now starting in about sept, October and November were going well Thwn December rolls ...

psycogenic non epileptic seizures

royp
  • By royp · New reply February 15, 2014
  • Journal · 1 reply
  • hi iam looking for some to talk to that has this disorder Roy ...

improving

BabsZ
  • By BabsZ · Posted February 15, 2014
  • Journal · 0 replies
  • It has been and still is a long dark winter. But I am making slow progress. I had another MRI a couple of weeks ago. Went to the neurologist last week. It was disapointing to hear the blood clot in my ...

Intranasal midazolam for acute seizure therapy

Janiecdk3
  • By Janiecdk3 · New reply February 13, 2014
  • Discussion in Epilepsy · 1 reply
  • The Dr just gave us this precription to use instead of the Diastat. I love the idea of a nasal spray instead of a rectal dose. I am finding it very hard to find a pharmacy that will fill it as they said ...

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