Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Lucid Dreaming

satsujin
  • By satsujin · New reply 7:57 am
  • Discussion in Living with seizures · 1 reply
  • Anybody familiar with this? I have only recently started getting in to it and have heard that people with TLE can have some amazing experiences. Please let me know if you know what I'm talking about.....or ...

hello

Sareniti0123
  • By Sareniti0123 · New reply yesterday at 9:38 pm
  • Discussion in Raising a child with a seizure disorder · 1 reply
  • Hello, my name is Karisha Upshaw. I am a 37 year old mother of five one of which was born with seizures in 2006. I joined this group due to lack of family support concerning my child and her condition ...

no bully tolerance

Sareniti0123
  • By Sareniti0123 · New reply yesterday at 9:34 pm
  • Journal · 3 replies
  • My 8 year old daughter was born with seizures. while she was at school last Thursday, her teacher says she saw my daughter choke and slap another student for taking her place in line. I do not support ...

Craniotomy

Kristin-h
  • By Kristin-h · Posted April 22, 2014
  • Discussion in Epilepsy · 0 replies
  • I was diagnosed with epilepsy in my late 20's I'm now 44. I've been on almost every seizure medication with multiple side effects. This year it was recommended that I have a craniotomy of my right temporal ...

Triggers

bandgeek7350 (Inactive)
  • By bandgeek7350 (Inactive) · New reply April 20, 2014
  • Discussion in Epilepsy · 12 replies
  • Hey guys, if you could comment below and tell me what your triggers are for your seizures (or your loved one who has epilepsy) I would greatly appreciate it. I am working on a video for epilepsy awareness ...

I want to drive my car!

MJConner
  • By MJConner · New reply April 20, 2014
  • Discussion in Living with seizures · 3 replies
  • I had another seizure on March 31st at work. I was sitting at the front desk by myself. My co-worker had just went back to the break room. It hit me so fast I couldn't call for help. The next thing I ...

Sezures still

Deannie58
  • By Deannie58 · New reply April 18, 2014
  • Discussion in Living with seizures · 3 replies
  • Had another sezure night before last. This time myright side shook only aand I had a really bad headache and was sick on my stomach afterwards. Usually my husband has to help me around for a bit afterI ...

No seizures in over a year

mcjune
  • By mcjune · Posted April 13, 2014
  • Journal · 0 replies
  • I have not had a seizure but I still have shakes in my hands. It takes a lot of effort to type sometimes and sometimes I have small head trimmers when I am in bed. Sometimes it is involuntary shakes and ...

My intro

satsujin
  • By satsujin · New reply April 13, 2014
  • Journal · 1 reply
  • This is my introduction to this site. I joined mainly because I am hoping to meet others with seizures particularly others with temporal lobe seizures. My seizures started around age 5 as petit mals ...

Forget about it

mcjune
  • By mcjune · New reply April 13, 2014
  • Journal · 6 replies
  • Let's face it...I am crazy ...

getting Vns

deedee103174
  • By deedee103174 · New reply March 23, 2014
  • Discussion in Treatment · 10 replies
  • Hi everyone. I have had Medial THE since I was 12. I am now 39. So I have been through over 12 meds and still get seizures. I went to the EMU four times now !!! Was considering the vns therapy cause I ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Dialog Patch

bandgeek7350 (Inactive)
  • By bandgeek7350 (Inactive) · Posted March 15, 2014
  • Discussion in In the news · 0 replies
  • http://www.artefactgroup.com/content/wor k/dialog/ check this out. seems pretty cool ...

Using Albuterol

jdawgrules2
  • By jdawgrules2 · New reply March 11, 2014
  • Discussion in Living with seizures · 8 replies
  • Has anyone used Albuterol due to asthma or bronchitis? I had bronchitis last week, the Drs prescribed me an Albuterol inhaler. At times i felt kinda strange and had a bad stutter. Read on couple of sites ...

how do you know?

bandgeek7350 (Inactive)
  • By bandgeek7350 (Inactive) · New reply March 10, 2014
  • Discussion in Raising a child with a seizure disorder · 2 replies
  • parents, if you have a child with seizures are there any ways you notice that your child is about to have a seizure? like if they dont tell you they are going to or they feel weird, is there any way you ...

Is this normal?

TDavis712 (Inactive)
  • By TDavis712 (Inactive) · New reply March 10, 2014
  • Discussion in Epilepsy · 1 reply
  • Hi Everyone, I was just wondering how many of you actually experience this? I have recently been diagnosed with TLE and I have been having seizures since I was 17 or 18 years old. I have grand mals, simple ...

VNS Therapy-voice changes

Raelyyn
  • By Raelyyn · New reply March 3, 2014
  • Discussion in Other seizure disorders · 4 replies
  • I was diagnosed with partial seizures in2009, but was misdiagnosed with mental disorders from 2001 to 2009. I was also diagnosed with gastroperesis in 2011. [Unrelated, I think, also diagnosed with migraines ...

looking psuedo seizures

royp
  • By royp · New reply March 2, 2014
  • Journal · 13 replies
  • looking for someone to talk to who has psuedo seizures, or lives with someone who has them ...

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work