Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Treatment options
Share information and resources regarding scleroderma treatments.
A Word of Caution about AP
- By evanrb1 · New reply 6:03 pm
- 59 replies
- For those of you who are on AP and finding success with it, may I say fantastic, congratulations, and mazel tov. However, I urge caution in "selling" this alternative to others. Certainly, AP deserves ...
Lines around the mouth
- By Belair09 · New reply yesterday at 12:27 pm
- 3 replies
- Has anyone had any kind of successful treatment for the lines around the mouth because of scleroderma ...
Chang Shan / Halofuginone
- By evanrb1 · New reply November 20, 2009
- 4 replies
- Has anyone tried Chang Shan? I have been reading about positive effects of Halofuginone for systemic scleroderma. Halofuginone is derived from the Chinese herb Chang Shan, which is available over the ...
Cracked and hardened skin on toes and hands
- By I-Care · New reply November 14, 2009
- 11 replies
- I have been having an ongoing problem with cracks on my fingers and feet. . I have built up hard skin(like calluses on my toes also. I have tried vaseline, lotions, etc. They just dont work. I am wondering ...
Calcinosis
- By Tootsy · New reply November 13, 2009
- 2 replies
- After having a growth on my hip biopsied in June, I have had calcium formations develop in the biopsy site and it is not healing. The growth pathology came back as having fibrocistic strands and showed ...
Seeking SCOT participants
- By No-1-Optimist · Posted November 10, 2009
- 0 replies
- Hi! I am currently undergoing evaluation at Duke University for inclusion in the SCOT clinical trials. While I have fortunately connected with an individual who is about 20 months into the stem cell transplant ...
John Hopkins may validate AP
- By Christine-2 · New reply November 9, 2009
- 3 replies
- Hi All; It looks like AP will bein the news.Trouble is that they are crediting a Chinese researcher instead of DR. Brown who started this decades ago. http://www.jhunewsletter.com/home/index. cfm?event=displayArticle&ustory_id=63ceb ...
John Hopkins may validate AP
- By Christine-2 · New reply November 8, 2009
- 1 reply
- Hi All; It looks like AP will bein the news.Trouble is that they are crediting a Chinese researcher instead of DR. Brown who started this decades ago. http://www.jhunewsletter.com/home/index. cfm?event=displayArticle&ustory_id=63ceb ...
A/P TREATMENT
- By beetleee · New reply November 6, 2009
- 7 replies
- HI I WILL BE GOING ON A/P TREATMENT SHORTY. AND I WOULD LIKE TO KNOW if PEOPLE THAT HAVE BEEN ON IT, IF THEY HAD TO CHANGE THEIR DIET ...
Stopped AP
- By waimea · New reply November 4, 2009
- 15 replies
- My Rheumy asked me to stop taking my minocyclin and ordered new lab tests. I was doing quite well with all my symptoms from SD, water aerobics, lessening of painful skin stretching, coughing, etc. He ...
stem cell transplant or cytoxan
- By nikki7 · New reply November 4, 2009
- 19 replies
- I HAVE SEEN A NEW DOC AT NORTHWESTERN IN CHICAGO AND I WILL BE HAVING STEM CELL OR CYTOXAN FOR TREATMENT OF MY SYSTEMIC SCLERODERMA HAS ANYONE HAD EITHER OF THESE? IF SO CAN YOU TELL ME WHAT YOUR OUTCOME ...
Bone Marrow Transplant
- By Mariasmom · New reply October 31, 2009
- 11 replies
- Has anyone had to have a bone marrow transplant. If the Gleevec does not work for my daughter that is her next option. Maris has Pulmonary Fibrosis and Pulmonary Hypertension due to the Scleroderma ...
Exciting Possibilities
- By jasminne · New reply October 29, 2009
- 1 reply
- Hey everyone! Just saw this on the Scleroderma foundation website, check it out! It really does give me hope. http://www.genengnews.com/news/bnitem.as px?name=65688128 It's a link to an article about ...
pain relief for joint pain
- By 1Lauren · New reply October 27, 2009
- 16 replies
- Hi Everyone, I have Sscl/MCTD. I don't have any skin/organ involvement yet (so thankful!), but I have been having increasingly painful joints; fingers, toes, ankles, knees elbows, shoulders, lower back ...
Input on Plaquenil
- By Nikki333 · New reply October 27, 2009
- 13 replies
- My new doctor prescibed Plaquenil for my arthritis symptoms and swelling. The patient information sheet is scary. Can anyone give me any input on this medicine??? Nikki ...
Recent advances in the treatment of systemic sclerosis (January 2009)
- By ANA1965 · New reply October 25, 2009
- 13 replies
- I read the abstract of the article that Lauren posted not long ago,and I wrote to the author and asked him to send me the full article. This is it, it seems very interesting although I have not yet had ...
Medicinal Marijuana
- By LaurenM · New reply October 22, 2009
- 3 replies
- Medicinal Marijuana: oh so controversial. We are hearing about it in the news tonight with Obama's medical marijuana initiative, it's legal in 14 states and SoCal has more dispensaries than it has Starbucks ...
surgery for calcinosis
- By Dianemae · New reply October 19, 2009
- 13 replies
- Hi, I'm newly diagnosed with CREST, have only seen rheum once so far; initially saw ortho. surgeon for calcinosis on thumb tip. There was a lump that has fallen off, and remaining calcium going down to ...
Cellcept & IVIG Working
- By LaurenM · New reply October 17, 2009
- 22 replies
- I am so encouraged by how well I responded to to the combination of cellcept and IVIG. After 6 months of IVIG infusions and 1 year of Cellcept, I am in remisision and my skin has reversed back to how ...
Seeking people who have participated in SCOT
- By No-1-Optimist · Posted October 15, 2009
- 0 replies
- Next week I meet with the professionals at Duke University to start a conversation about participation in the SCOT trials. I have talked with individuals who have known others who have participated and ...
