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Systemic scleroderma
Information and support for those diagnosed with systemic scleroderma (systemic sclerosis).
Destroying Her Life
- By reinwthme · New reply 2:38 pm
- 5 replies
- Hello; I have a beautiful friend, she once was full of life, happy, active, full of sunshine. She has been diagnosed with diffuse scleroderma and Raynaud's about 2 years now. We have been seening a Doctor ...
Remission?? Is it possible?
- By saranil · New reply 11:52 am
- 8 replies
- Hi all So I hear a lot of people throwing around the word remission and I must say that it gives me hope, but why do my doctors at least, basically say this is permanent and I will never gain back my ...
Reducing lip wrinkles and stretching mouth
- By JKVACM · New reply 9:48 am
- 7 replies
- Hi, I've had SS for several years and have gone through the fear, treatments, drugs and abandonment of a husband like a lot of you have. Now that I am single and feeling pretty good (for having SS) I ...
I'm having such a bad flare!!
- By samknow · New reply yesterday at 10:58 am
- 2 replies
- Hi everyone, I hope everyone is feeling good. Well i'm not doing so well, my SD has now spread to my right knee and leg. I forgot how much it can cause, since i've had my implant done for my arm, i don't ...
Is anybody feeling better? What meds helped?
- By jeanniej1515 · New reply November 20, 2009
- 36 replies
- Hi, My name is Jeannie. I've been sick since Oct 2008. I would just like to know if anybody's feeling better and what medications are working for you. I'm 46yrs old and scared to death that I will be ...
Lung involvement or Anemia?
- By keribear · New reply November 20, 2009
- 16 replies
- I live in central california and just visited a scleroderma specialist at UC San Francisco. I have Diffuse Scleroderma, it's been on my hands for about 4-5 years and of the last year it's hit my arms ...
heart disease
- By miss-lucy · New reply November 19, 2009
- 7 replies
- Good morning to all-- My question relates to heart disease and Scleroderma. I was diagnosed with limited Scleroderma 20 years ago. My first symptom was that my hands and feet would become numb when in ...
awareness
- By LiLLTleAnGeL · New reply November 15, 2009
- 4 replies
- Hello, My name is Ryan and I have a friend who discovered that her daughter who is 6 years old has systemic scleroderma. I havent known this friend for long but do know it has been hard on her and her ...
pain and scelederma
- By goldiinpain · New reply November 14, 2009
- 13 replies
- does anyone have pain with the scelederma? I mean body joint pain? I also have sjogrens and reynauds. my rhuematioid factor is always high. they are looking for documented reasons for my pain and I am ...
Scleroderma Dry Itchy Skin
- By Belair09 · New reply November 13, 2009
- 6 replies
- I have had systmeic sleroderma for 7 years and I am doing really good except for my skin. Just recently started itching bad. Anybody have any suggestions ...
Heart question
- By PeggyPansy · New reply November 11, 2009
- 5 replies
- I would like to know what kind of heart problems everyone has and if they have been positively linked to scleroderma. I was diagnosed w/scleroderma in the early 90's and have had very few problems. However ...
itchy skin
- By Coastiewife · New reply November 11, 2009
- 8 replies
- Hi there, I am kinda new here and haven't really introduced myself yet but I really need some help!! I am a female, 39, been dx with MCTD in 2005. With very strong SD symptoms, especially my skin. Recently ...
upper endoscopy
- By saranil · New reply November 8, 2009
- 13 replies
- Yikes! I had a check up today with my primary doc and she is insisting that I have an upper endoscopic exam. I am pretty sure this is a camera down my throat and I am absolutely terrified. I respect medical ...
Immurane
- By Belair09 · New reply November 8, 2009
- 3 replies
- I just found out my doctors wants to start me on Immuran. Has anyone taken this and has it helped ...
Disability Status Decision
- By stacyl531 · New reply November 8, 2009
- 7 replies
- Hi - I applied for Disability in August of this year. I just received an email stating a decision has been made on my claim and that I would be notified by mail. I called up the office to see if I could ...
New Drug for Pulmonary Fibrosis
- By ilene64 · New reply November 7, 2009
- 2 replies
- An announcement was made that the FDA is reviewing a drug called Pirfenidone by InterMune for Pulmonary Fibrosis. I recieved notice though the Coalition For Pulmonary Fibrosis. I don't know how to attatch ...
tooth extraction
- By ANA1965 · New reply November 6, 2009
- 10 replies
- Hi, Today the dentist told me that I have to have a tooth extracted because the cavity is too large. I am afraid, not only because I'm afraid of going to the dentist, but because with the scleroderma ...
rotator cuff tear and tendonitis
- By Adina · New reply November 5, 2009
- 12 replies
- I am suffering of terrible shoulder pain that it is getting worst at night and in the morning.I was diagnosed with rotator cuff tear . I would like to know if anybody else has this condition and if it ...
Swelling
- By Nikki333 · New reply November 4, 2009
- 5 replies
- Okay, I've had it with the swelling! It either my hands(rings can't come off) or my feet (toes hurt) or my cankles(lite rash and swelling) or my stomach( have gastroparesis so that doesn't help) or just ...
Alternative treatments to pulmonary fibrosis in sscl other than Cytoxan?
- By Lisandrav1 · New reply November 4, 2009
- 9 replies
- Are there other alternatives, besides Cytoxan, for pulmonary fibrosis in scleroderma ...
