Systemic scleroderma
Information and support for those diagnosed with systemic scleroderma (systemic sclerosis).
Discussions
searching for specialist in NYC or LI
- By positive4U · New reply 12:56 pm
- 10 replies
- Diagnosed with systemic sclerosis and autoimmune hepatitis. Not sure if it's scleroderma, lupus or mixed connective tissue disorder and searching for a specialist in NYC or Long Island. Can anyone refer ...
wrist pain
- By coudretg · New reply 11:58 am
- 5 replies
- I have CREST & have been experiencing an achy pain in my left wrist. It will bother me for days then not hurt at all for weeks. Anti-inflamatories provide some relief. I type a lot at work. Could this ...
Painful intercourse!!!!!!!!!!!!!!!!! ):
- By Brandibear · New reply 10:54 am
- 13 replies
- I have the worst excruciating pain attempting intercourse, I literally vomit. It feels like acid burning razor blades, and when I gave birth our 1st son, I was given an episiodomy and intercourse has ...
What do you think about this Bed Wedge?
- By prog3 · New reply 10:44 am
- 22 replies
- http://www.contourliving.com/p-19-mattre ss-genie-adjustable-bed-wedge.aspx Just thought I ask before I jump out there and buy one. I understand the longer length issue. I'm 5'6" and I'm sure a ridge ...
Very Dry Throat
- By E-patticake · New reply 9:06 am
- 24 replies
- I've had Systemic Scleroderma for 17 yrs. Boy have I've been though it !! I've had dry throat for quite some time ,but now , Everytime I swallow , I start to choke and gag !! The dry throat has gotten ...
"Autoimmune diseases don't cause back pain"
- By mataki29 · New reply 8:21 am
- 29 replies
- I have had increasing back pain for the last year. It's in the muscles and connective tissue in my back, between the hips and ribs, very tight. I have limited systemic sclerosis. Nothing helps for this ...
Nausea and Vomiting
- By PamMKingGeorge · New reply 8:12 am
- 3 replies
- I have been giving myself IV Muscular injections of Zofran and Phenergan for the past year and half. I take the injections due to severe esophagus dysmobilty, and hiatal hernia issues. Does anyone know ...
negative ana test
- By ROSIE92 · New reply yesterday at 8:34 pm
- 6 replies
- I was diagnosed with Scleroderma through biopsy in 2000. the blood work came up negative at the rheum's office, but my derm did a biopsy due to her suspicisions; I had gone to her to ASK her about it ...
I think my fingernails are shrinking
- By Laura-in-Chicago · New reply yesterday at 3:24 pm
- 9 replies
- I have been looking at my fingernails this week and it seems to me that they are shrinking in length. My nails are much harder than they used to be, but they are growing normally. The difference that ...
Coming Home
- By tedtell1 · New reply yesterday at 1:14 am
- 8 replies
- Friends; I haven't posted recently but thought I would add a celebration. After spending most of the current year in the hospital/transitional care, Sue, my wife is coming home. During her current stay ...
Unsure and worried
- By Managrl13 · New reply May 18, 2013
- 5 replies
- So far I have no diagnosis. I have had a slightly positive ANA titer in the nucleolar pattern which I know is a common pattern for scleroderma, and a multitude of strange symptoms. I have no health insurance ...
Cardamom
- By britt0489 · New reply May 18, 2013
- 32 replies
- I have a friend who is a health nut and just introduced me to cardamom. I had never heard of it so I researched it and looks like it would help with my acid reflux and it also says it is an anti-inflammatory ...
Does anyone have a thought?
- By jorrtomotley · New reply May 18, 2013
- 5 replies
- My daughter-in-law, 43 yrs. old, recently has some crazy systems, which sounds to me like some sort of autoaummune disease. I have had SD for 6 years, and I don't think she has SD, but there are so many ...
Bed Wedge
- By prog3 · New reply May 18, 2013
- 4 replies
- Has anyone tried this bed wedge? http://www.contourliving.com/p-285-conto ur-folding-wedge-cushion.aspx?gclid=CImv -ubCm7cCFeLm7AodplwAxQ ...
scleroderma, osteoarthrits, degenerative disc disease
- By DaisyDo · New reply May 17, 2013
- 46 replies
- Recently we've had a discussion about the autoimmune nature of osteoarthritis (and degenerative disc disease), in which I posted some recent research supporting it as autoimmune. That doesn't mean that ...
Medical marijuana
- By ashley88 · New reply May 17, 2013
- 11 replies
- Does anyone know anything about medical maurijuana? I am getting my license for it to try it and see if it helps I have systemic and diffuse scleroderma!! I'm just tired of taking all these medications ...
Healing Scleroderma with Eckhart Tolle
- By Jarrob11 · New reply May 17, 2013
- 41 replies
- Living with Limited Scleroderma since 1997, I recently found Inspire website and have discovered many helpful ideas and suggestions to ease physical suffering from this disease. In particular, 3 months ...
Bosentan vs Iloprost
- By dizyblonde · New reply May 16, 2013
- 9 replies
- Hello I have pah, caused by the systemic scleroderma, I would be interested in hearing anyones views on the difference, I have been on Bosentan for 4 months and according to the 6 min walk test shows ...
Raised pressure on right side of heart
- By sootys · New reply May 16, 2013
- 29 replies
- I have been told that I have an estimated reading in the late 80's of pressure on the right side of my heart, although I have had Pulmanory Fibrosis since 1998 I have always been lucky to have normal ...
No appetite
- By browner · New reply May 16, 2013
- 20 replies
- I have been diagnosed with systemic sclerosis for 4 years and have a variety of symptoms but have never suffered with my appetite until now. I only weigh 49kgs so I don't have much room for weight loss ...
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