Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Newly diagnosed
Information and support for those who have recently learned they have scleroderma.
Guttate Morphea
- By Terri304 · New reply 12:34 pm
- 4 replies
- I'm completely new to this, confused and worried. If anyone has advice or suggestions it would be greatly appreciated. My 13 year old daughter was just diagnosed with Guttate Morphea, I can only find ...
2 Yr Old Little Girl with Morphea
- By daniel2009 · New reply November 20, 2009
- 5 replies
- Does anyone out there have any experience with this horrible issue? She has this in her upper inside thigh. Is there anyone out there that specializes in this so rare form of Scleroderma? Please let us ...
Pulminary Hypertension
- By carmie-s · New reply November 19, 2009
- 6 replies
- I have recently been diagnosed with Pulminary Hypertension by heart cath. My pressures were 37 which I was told are not that high. I also have other lung issues and I am short of breath. My Drs are trying ...
Facial moisturizer suggestions - HELP
- By lemon_head · New reply November 18, 2009
- 35 replies
- I desperately need a facial moisturizer that will not break me out! I was recently diagnosed with scleroderma. Since having my small intestines removed last year (yuck! TMI?) I am unable to absorb nutrients ...
Scleroderma? Doctors cant answer my questions & they think Im crazy!
- By jasbarn88 · New reply November 2, 2009
- 17 replies
- I am now a 27-year-old female. I know this to be true: I have some type of scleroderma. What kind though? Doctors keep dismissing me! I just need some advise. PLEASE!!!! My symptoms have progressed as ...
Abbreviations
- By Dianemae · New reply November 2, 2009
- 1 reply
- Newly diagnosed patients can find wonderful info on this forum, but sometimes the abbreviations are a mystery. I am starting a list with just a few entries. If anyone is interested in adding to the list ...
Tired all the time
- By infusion · New reply October 30, 2009
- 14 replies
- I am a newly diagnosed patient and I am soooooo tired all the time, I think all the itching I am doing is keeping me awake. What can I do for tiredness ...
Facial skin changes
- By xpattycake · New reply October 28, 2009
- 14 replies
- I still have not been truly diagnosed yet- still seeing docs- but I have a question for anyone that has facial involvement. Prior to your skin thickening/hardening did anyone experience white head type ...
Dr. T & AP Questions
- By Tayook · New reply October 28, 2009
- 3 replies
- Hello All!! My father was recently diagnosed with SD and was instantly put on Priolsec (sp) and then an oral MTX. There has been talk of taking the next step in chemo and going to an IV treatment. Until ...
Does SCL-70 mean diffuse sc?
- By Dianemae · New reply October 19, 2009
- 20 replies
- I had my second visit with the rheum. today. The first time I went, he said I had limited scleroderma or CREST based on my symptoms (I had CRES, but no T - Raynaud's for many years, and just a little ...
Tiny blisters on my fingers
- By KOwens · New reply October 16, 2009
- 11 replies
- Hi - I've recently noticed that on the days that my index fingers feel the most sore that I have what appears to be a few tiny popped blisters on my skin. Almost like little pin-pricks. Does anyone else ...
New to this
- By SM77301 · New reply October 12, 2009
- 6 replies
- Concern daugther. My mother who will be turning 43 this month just found out that she tested postive for schlorderma. Fingers hurt, skin itchy, tight chest pain at times, new medication makes her tired ...
Dental involvment
- By Token09 · New reply October 12, 2009
- 6 replies
- I have not been diag, with sclero .although 2 years ago when I went to a Dr. for another matter ..she saw m hands,legs and was sure i did have the condition. The blood work did not support the findings ...
Need Help
- By I_Love_Life · New reply October 10, 2009
- 6 replies
- I have been diagnosed with Systemic Scleroderma and even though my local doctors are great, they can't give me much information about the disease. I have a family history and feel like I know more than ...
How to find a scleroderma doc
- By sderika · New reply October 9, 2009
- 2 replies
- Hi--I was just diagnosed with scleroderma by a dermatologist based on a skin biopsy. I think I also have some of the common non-skin symptoms too (like trouble swallowing and always feeling like there ...
question about scleroderma symptoms
- By 1Lauren · New reply October 7, 2009
- 14 replies
- By 1Lauren Today at 3:34 pm Hi everyone, I was hoping to hear if others had the same kind of symptoms and experiences as I do. I found out almost exactly one year ago today that I have the Anti-scl 70 ...
Hi, I'm new
- By bookwork46 · New reply October 6, 2009
- 12 replies
- New and scared. It has only been 2 1/2 weeks since my diagnoses and I just found out yesterday that I have lung involvement. My MD thought I had arthritis for a few years and treated me with Mobic. Then ...
Do I or dont I?
- By xpattycake · New reply September 30, 2009
- 15 replies
- Ok- my Doctor was adamant about testing me for sclerederma due to shiny skin on my hands, neck, face and feet, itching and overall fatigue. All my labs came back negative for any autoimmune issues. My ...
Mixed Connective Tissue Disease
- By Hollytravous · New reply September 27, 2009
- 10 replies
- I was first told I had SD but now they are calling it mixed connective tissue disease. A combo of Lupus, polymitosis, and scleroderma. Anyone else gotten similar disagnosis on this website? Not sure if ...
Trouble drinking cold liquids?
- By KOwens · New reply September 24, 2009
- 15 replies
- I have noticed that if I drink cold fluids it feels like my esophagus is going to spasm shut. Also, if I drink or eat something icy that my tongue doesn't want to form words properly. Has anyone experienced ...
