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Juvenile scleroderma

Information and support for parents of children with scleroderma.

New and in need of any and all information/suggestions

vixnfaith
  • By vixnfaith · New reply 3:39 pm
  • 13 replies
  • Hello all, I just joined because my 13yr old daughter was recently diagnosed with systemic scleroderma. I posted a journal under another topic and though I might repost here. She has raynauds and her ...

Newly Diagnosed: Morphea/ Linear Scleroderma

Jynuine
  • By Jynuine · New reply November 5, 2009
  • 13 replies
  • Hi! My 10 yr old daughter was just recently diagnosed with Morphea/ Linear Scleroderma after 3 years of no answers on the mysterious painful rash on her neck. At first it was raised and ran along her ...

H1Ni shot and risk more out breaks Schlerderma Morphea

Concernedmom8
  • By Concernedmom8 · Posted November 3, 2009
  • 0 replies
  • What are the risks of getting the H1N1 shot and more problems with Schlerderma Morphea in children ...

Methotrexate question-need help

kirirae
  • By kirirae · New reply August 31, 2009
  • 20 replies
  • Hello, my 11 year old daughter was diagnosed last year. We realized something was wrong when she tried to do a cartwheel and her arms wouldn't hold her up. We asked her what was wrong and she said her ...

scleroderma: @bobobags74 Call 800-722-4673 and our receptionist will help you with names of doctors. You can also contact the chapter from our Web site.

scleroderma: Scleroderma Lung Study II Open! - 12 Scleroderma Lung Study Centers across the country. http://bit.ly/TbMZF

scleroderma: 2009 Scleroderma Foundation Capitol Hill Visit A Great Success http://bit.ly/21tvZt

scleroderma: Volunteers to Visit Capitol Hill on Oct 7 and 8. Please support our Advocacy Program. www.scleroderma.org/news/news2009/news2009caphill.shtm

scleroderma: Scleroderma Student Essay Contest. Tell friends and friends of friends. http://www.scleroderma.org/studentcontest.html

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