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New
New and any in need of any and all information/suggestions
- By vixnfaith · Posted 5:42 am
- Discussion in Juvenile scleroderma · 2 replies
- Hello all, I just joined because my 13yr old daughter was recently diagnosed with systemic scleroderma. I posted a journal under another topic and though I might repost here. She has raynauds and her ...
Destroying Her Life
- By reinwthme · Posted yesterday at 9:41 pm
- Discussion in Systemic scleroderma · 4 replies
- Hello; I have a beautiful friend, she once was full of life, happy, active, full of sunshine. She has been diagnosed with diffuse scleroderma and Raynaud's about 2 years now. We have been seening a Doctor ...
Leg pain/ACE
- By pepgab95 · Posted yesterday at 10:53 am
- Discussion in General discussion · 1 reply
- Hi everyone, I was just wondering if anyone has tried Ace wraps for your legs for the severe pain? I was on Plaqunil but developed a whole body rash. My DR wants me to try and cut it down to a 1/2 pill ...
Remission?? Is it possible?
- By saranil · Posted November 20, 2009
- Discussion in Systemic scleroderma · 8 replies
- Hi all So I hear a lot of people throwing around the word remission and I must say that it gives me hope, but why do my doctors at least, basically say this is permanent and I will never gain back my ...
A nice puszzle
- By gettingby · Posted November 20, 2009
- Journal · 3 replies
- Today being the 20th of November I am working on a puszzle of the ship Titanic. As I looked at the box it came in it came to me that even though we might be sick it could be worse. Know what I mean ...
I'm having such a bad flare!!
- By samknow · Posted November 20, 2009
- Discussion in Systemic scleroderma · 2 replies
- Hi everyone, I hope everyone is feeling good. Well i'm not doing so well, my SD has now spread to my right knee and leg. I forgot how much it can cause, since i've had my implant done for my arm, i don't ...
GOOD NEWS BAD NEWS PULMONARY CHECK UP
- By Blkjewelz8960 · Posted November 19, 2009
- Journal · 23 replies
- Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...
Do you know your hands are soft?
- By M_McF_M · Posted November 19, 2009
- Journal · 4 replies
- This was a rhetorical question; of course I know my hands are soft -- I've been holding them out for weeks now for my friends and family to touch, and squeeze. It's such a simple thing, but such a delight ...
Bloated Belly
- By JoanCMD · Posted November 19, 2009
- Discussion in General discussion · 10 replies
- My upper belly has been bloated to the point that I look like I'm 7 months pregnant and carrying it very high. I still have a waist line on sides and in back. This has happened over the last year or so ...
Lines around the mouth
- By Belair09 · Posted November 19, 2009
- Discussion in Treatment options · 3 replies
- Has anyone had any kind of successful treatment for the lines around the mouth because of scleroderma ...
So far, So good
- By gettingby · Posted November 19, 2009
- Journal · 5 replies
- It seems to me that everyone at this web site has as illness. So with that in mind I would like to tell a story I heard from a friend. There was a man who was very optimistic. Accidently he fell from ...
Holiday Stress tips
- By SamDeTray-11 · Posted November 19, 2009
- Discussion in News · 0 replies
- Holidays can bring significant stress! Difficult relatives, too-busy schedules, endless gifts to buy--what causes you holiday stress? Have you found any holiday stress solutions that work well? Share ...
What to do when you can't sleep
- By SamDeTray-11 · Posted November 19, 2009
- Discussion in News · 0 replies
- Can't sleep? Many people find that when they're stressed, they can't sleep, or sleeping is more difficult. There are many reasons for this (read about stress and its role in sleep problems), and there ...
2 little items about Raynauds
- By martif · Posted November 18, 2009
- Discussion in General discussion · 3 replies
- #1. A few weeks ago I was watching "Flashforward". The premise is everyone had a vision 6 months into the future. But there is a group that didn't see anything, so they assume they will be dead in 6 months ...
Guttate Morphea
- By Terri304 · Posted November 18, 2009
- Discussion in Newly diagnosed · 4 replies
- I'm completely new to this, confused and worried. If anyone has advice or suggestions it would be greatly appreciated. My 13 year old daughter was just diagnosed with Guttate Morphea, I can only find ...
swine flu
- By meriterry · Posted November 18, 2009
- Journal · 0 replies
- My daughter let us know that the doctor told her husband not to come into the doctor's office, and to assume he has swine flu due to symptoms he reported. He has headache, achy, fever, coughing, but unless ...
Reducing lip wrinkles and stretching mouth
- By JKVACM · Posted November 18, 2009
- Discussion in Systemic scleroderma · 7 replies
- Hi, I've had SS for several years and have gone through the fear, treatments, drugs and abandonment of a husband like a lot of you have. Now that I am single and feeling pretty good (for having SS) I ...
I had lost a friend
- By SamDeTray-11 · Posted November 18, 2009
- Discussion in News · 0 replies
- (Tony) due to having complications of scleroderma. The amazing thing is his wife Amee was by his side all the time while dealing with her own health issues. tony passed away two days before his 44th birthday ...
Toledo Area Scleroderma and PH support
- By SamDeTray-11 · Posted November 18, 2009
- Discussion in News · 0 replies
- Meeting is tomorrow night from 7:00 to 9:00 pm @ St. Luke's Hospital 5901 Monclova Road Maumee, Ohio in room 2. We are having a speaker from Actelion, Kelly Howard will be discussing issues of having ...
Water or Coke? (or rather any carbonated drink)
- By meriterry · Posted November 18, 2009
- Journal · 13 replies
- This was sent to me by a friend: Focus on the hydration thing....... Water or Coke? I could not believe this..... Very interesting WATER #1. 75% of Americans are chronically dehydrated. (Likely applies ...
