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Journals

A nice puszzle

gettingby
  • By gettingby · Posted November 20, 2009
  • 3 replies
  • Today being the 20th of November I am working on a puszzle of the ship Titanic. As I looked at the box it came in it came to me that even though we might be sick it could be worse. Know what I mean ...

GOOD NEWS BAD NEWS PULMONARY CHECK UP

Blkjewelz8960
  • By Blkjewelz8960 · Posted November 19, 2009
  • 23 replies
  • Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...

Do you know your hands are soft?

M_McF_M
  • By M_McF_M · Posted November 19, 2009
  • 4 replies
  • This was a rhetorical question; of course I know my hands are soft -- I've been holding them out for weeks now for my friends and family to touch, and squeeze. It's such a simple thing, but such a delight ...

So far, So good

gettingby
  • By gettingby · Posted November 19, 2009
  • 5 replies
  • It seems to me that everyone at this web site has as illness. So with that in mind I would like to tell a story I heard from a friend. There was a man who was very optimistic. Accidently he fell from ...

swine flu

meriterry
  • By meriterry · Posted November 18, 2009
  • 0 replies
  • My daughter let us know that the doctor told her husband not to come into the doctor's office, and to assume he has swine flu due to symptoms he reported. He has headache, achy, fever, coughing, but unless ...

Water or Coke? (or rather any carbonated drink)

meriterry
  • By meriterry · Posted November 18, 2009
  • 13 replies
  • This was sent to me by a friend: Focus on the hydration thing....... Water or Coke? I could not believe this..... Very interesting WATER #1. 75% of Americans are chronically dehydrated. (Likely applies ...

Bottoms of Feet Hurt - especially the Heel

Peggy59
  • By Peggy59 · Posted November 17, 2009
  • 41 replies
  • I've had a new development in the last couple of months in that the bottom of my feet hurt, especially the left heel. I brought it up with my apt with my rheumatologist in October and he said I may need ...

Beginning to End

gettingby
  • By gettingby · Posted November 17, 2009
  • 6 replies
  • Not sure if this is what I am supose to write here. Anyway my illness started in 1999. Was first Dig. with Raynaud's then it became Crest Syndrome from there to Diffuse scleroderma and now Pulmonary Hypertion ...

Thanksgiving Day Dilemma

sjess
  • By sjess · Posted November 16, 2009
  • 9 replies
  • What do I do for Thanksgiving day? I've been invited to my brother's family get-together which is over an hour away. There will be quite a few people there and children. And then I'm supposed to sing ...

leg cramping

marieclr78
  • By marieclr78 · Posted November 15, 2009
  • 5 replies
  • Recently ive been having horrible leg crampings that have kept me up at night. My feet are also painful to walk on immediately after waking up in the morning. My body seems to constantly ache. I have ...

Are White Skin Spots Scleroderma?

sjess
  • By sjess · Posted November 15, 2009
  • 6 replies
  • Over the past year, my forearms have had skin erruptions that turn into a thick patch of skin. Of course I pick at the patchy stuff and it turns into a sore. It takes quite a while, but eventually the ...

SWEATING, SURGERY & RECOVERY

JWALKER97756
  • By JWALKER97756 · Posted November 15, 2009
  • 5 replies
  • SWEATING IS A BIG PROBLEM BUT MINE TEND TO FLARE UP WHEN I'M STRESSED OUT, ANXIOUS AND OF COUSE AT NIGHT. IT SURE IS HARD TO HELP MY CUSTOMERS WHEN THE SHEEN OF THE UPPER LIP IS DISTRACTING ME AND THEM ...

My Website's Up

sjess
  • By sjess · Posted November 14, 2009
  • 2 replies
  • I put together a website for my singing. The address is: http://web.mac.com/s.jess if you are interested. There's a video on the site of me singing. Was worried today about fellas stopping over tomorrow ...

TO CLIMB OR NOT TO CLIMB

Blkjewelz8960
  • By Blkjewelz8960 · Posted November 13, 2009
  • 21 replies
  • Ok, last weekend I stored up enough energy to go to a friends housewarming. Was really looking forward to it because we went to high school together and had only seen each other just recently at a funeral ...

A SARCIE THANKSGIVING -- on a serious note

Blkjewelz8960
  • By Blkjewelz8960 · Posted November 13, 2009
  • 17 replies
  • Been a long time since I posted to my dear journal. Been so busy over on Facebook, but I haven't forgotten my first home. Even told them about Inspire and invited them over for a couple of non-caffiene ...

meds

toddsmylove
  • By toddsmylove · Posted November 12, 2009
  • 5 replies
  • well ... my husband and i went to the rheumy today and the news was not so good. his lungs have gone down to only 44% useage. his heart is good though, so that is a good thing but..... they gave him 2 ...

Dr. Hastings

meriterry
  • By meriterry · Posted November 12, 2009
  • 3 replies
  • Dr. Carl Named to CRN Board of Directors. Reliv Vice Chairman and Chief Scientific Officer Dr. Carl Hastings has been elected to the board of directors of the Council for Responsible Nutrition (CRN ...

Appointment at Johns Hopkins Scleroderma Center

besh61
  • By besh61 · Posted November 11, 2009
  • 11 replies
  • I am so happy to report that I have an appointment on November 17, 2009. I am so anxious about making the most of this appointment because I have so many concerns. Please wish me luck ...

Can't Keep Up

sjess
  • By sjess · Posted November 11, 2009
  • 11 replies
  • I look around my messy, dirty house and feel frustrated and overwhelmed. I get up to do something, and my leg muscles are weak and I'm quickly out of breath. I don't want to spend all my time cleaning ...

Complaining

Pawndy
  • By Pawndy · Posted November 10, 2009
  • 18 replies
  • It has been over a year since I was able to sleep in a bed. My husband has been commenting on how he wishes I would sleep in bed again. Since I am on so much pain medicine I decided for my afternoon nap ...

scleroderma: @bobobags74 Call 800-722-4673 and our receptionist will help you with names of doctors. You can also contact the chapter from our Web site.

scleroderma: Scleroderma Lung Study II Open! - 12 Scleroderma Lung Study Centers across the country. http://bit.ly/TbMZF

scleroderma: 2009 Scleroderma Foundation Capitol Hill Visit A Great Success http://bit.ly/21tvZt

scleroderma: Volunteers to Visit Capitol Hill on Oct 7 and 8. Please support our Advocacy Program. www.scleroderma.org/news/news2009/news2009caphill.shtm

scleroderma: Scleroderma Student Essay Contest. Tell friends and friends of friends. http://www.scleroderma.org/studentcontest.html

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