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First Day of Online Journal

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It has been 7 weeks my Mom has started her immunosuppressive therapy for her systemic scleroderma. She has already been in the hospital twice-one time for an entire week due to a fever. Turns out that one of the three medicines she is using the one named Septra/TMZ was causing the fever. They also lowered the dosage on Cyclophosphamide and Prednisone. She still coughs up and gets less sleep than normal but it was nowhere near bad before the treatment. She is using an oxygen tank and that helps. My sister and I chip to hire a woman who is has a background with preparing natural foods and she is real big help with cleaning my Mom's place as well as taking her to her doctor visits.

scleroderma: @bobobags74 Call 800-722-4673 and our receptionist will help you with names of doctors. You can also contact the chapter from our Web site.

scleroderma: Scleroderma Lung Study II Open! - 12 Scleroderma Lung Study Centers across the country. http://bit.ly/TbMZF

scleroderma: 2009 Scleroderma Foundation Capitol Hill Visit A Great Success http://bit.ly/21tvZt

scleroderma: Volunteers to Visit Capitol Hill on Oct 7 and 8. Please support our Advocacy Program. www.scleroderma.org/news/news2009/news2009caphill.shtm

scleroderma: Scleroderma Student Essay Contest. Tell friends and friends of friends. http://www.scleroderma.org/studentcontest.html

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