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Discussions
New and any in need of any and all information/suggestions
- By vixnfaith · Posted 5:42 am
- In Juvenile scleroderma · 4 replies
- Hello all, I just joined because my 13yr old daughter was recently diagnosed with systemic scleroderma. I posted a journal under another topic and though I might repost here. She has raynauds and her ...
Destroying Her Life
- By reinwthme · Posted yesterday at 9:41 pm
- In Systemic scleroderma · 5 replies
- Hello; I have a beautiful friend, she once was full of life, happy, active, full of sunshine. She has been diagnosed with diffuse scleroderma and Raynaud's about 2 years now. We have been seening a Doctor ...
Leg pain/ACE
- By pepgab95 · Posted yesterday at 10:53 am
- In General discussion · 1 reply
- Hi everyone, I was just wondering if anyone has tried Ace wraps for your legs for the severe pain? I was on Plaqunil but developed a whole body rash. My DR wants me to try and cut it down to a 1/2 pill ...
Remission?? Is it possible?
- By saranil · Posted November 20, 2009
- In Systemic scleroderma · 12 replies
- Hi all So I hear a lot of people throwing around the word remission and I must say that it gives me hope, but why do my doctors at least, basically say this is permanent and I will never gain back my ...
I'm having such a bad flare!!
- By samknow · Posted November 20, 2009
- In Systemic scleroderma · 2 replies
- Hi everyone, I hope everyone is feeling good. Well i'm not doing so well, my SD has now spread to my right knee and leg. I forgot how much it can cause, since i've had my implant done for my arm, i don't ...
Bloated Belly
- By JoanCMD · Posted November 19, 2009
- In General discussion · 14 replies
- My upper belly has been bloated to the point that I look like I'm 7 months pregnant and carrying it very high. I still have a waist line on sides and in back. This has happened over the last year or so ...
Lines around the mouth
- By Belair09 · Posted November 19, 2009
- In Treatment options · 3 replies
- Has anyone had any kind of successful treatment for the lines around the mouth because of scleroderma ...
Holiday Stress tips
- By SamDeTray-11 · Posted November 19, 2009
- In News · 0 replies
- Holidays can bring significant stress! Difficult relatives, too-busy schedules, endless gifts to buy--what causes you holiday stress? Have you found any holiday stress solutions that work well? Share ...
What to do when you can't sleep
- By SamDeTray-11 · Posted November 19, 2009
- In News · 0 replies
- Can't sleep? Many people find that when they're stressed, they can't sleep, or sleeping is more difficult. There are many reasons for this (read about stress and its role in sleep problems), and there ...
2 little items about Raynauds
- By martif · Posted November 18, 2009
- In General discussion · 3 replies
- #1. A few weeks ago I was watching "Flashforward". The premise is everyone had a vision 6 months into the future. But there is a group that didn't see anything, so they assume they will be dead in 6 months ...
Guttate Morphea
- By Terri304 · Posted November 18, 2009
- In Newly diagnosed · 4 replies
- I'm completely new to this, confused and worried. If anyone has advice or suggestions it would be greatly appreciated. My 13 year old daughter was just diagnosed with Guttate Morphea, I can only find ...
Reducing lip wrinkles and stretching mouth
- By JKVACM · Posted November 18, 2009
- In Systemic scleroderma · 8 replies
- Hi, I've had SS for several years and have gone through the fear, treatments, drugs and abandonment of a husband like a lot of you have. Now that I am single and feeling pretty good (for having SS) I ...
I had lost a friend
- By SamDeTray-11 · Posted November 18, 2009
- In News · 0 replies
- (Tony) due to having complications of scleroderma. The amazing thing is his wife Amee was by his side all the time while dealing with her own health issues. tony passed away two days before his 44th birthday ...
Toledo Area Scleroderma and PH support
- By SamDeTray-11 · Posted November 18, 2009
- In News · 0 replies
- Meeting is tomorrow night from 7:00 to 9:00 pm @ St. Luke's Hospital 5901 Monclova Road Maumee, Ohio in room 2. We are having a speaker from Actelion, Kelly Howard will be discussing issues of having ...
Gift Suggestions
- By DaisyDD · Posted November 17, 2009
- In General discussion · 12 replies
- Hello to all. I joined this group because one of my closest friends has scleroderma and with the holidays approaching, I am wondering if anyone can give me any gift suggestions for her. We exchange gifts ...
heart disease
- By miss-lucy · Posted November 16, 2009
- In Systemic scleroderma · 7 replies
- Good morning to all-- My question relates to heart disease and Scleroderma. I was diagnosed with limited Scleroderma 20 years ago. My first symptom was that my hands and feet would become numb when in ...
Is Your Skin Dry?
- By SamDeTray-11 · Posted November 13, 2009
- In News · 0 replies
- I had found this article on Scleroderma Foundation it was put in the eletter April O9, Is Your Skin Dry? Written by Hager, Angela – Living in the Rockies can produce dry and itchy skin. Lotion will ...
Just been acting weird
- By SamDeTray-11 · Posted November 13, 2009
- In General discussion · 2 replies
- for awhile I have not been doing what I like to do. I am not depressed but some people are starting to question what is going on with me,. Heck if I knew I would tell them, But don't I have the right ...
Does Prozac help Raynauds?
- By Paterottzi · Posted November 13, 2009
- In General discussion · 8 replies
- Has anyone been prescribed 10mg of Prozac to ease Raynauds. Does it work and are there any side affects to this treatment. Supposedly the Prozac makes you feel warm. Thanks ...
Cracked and hardened skin on toes and hands
- By I-Care · Posted November 13, 2009
- In Treatment options · 11 replies
- I have been having an ongoing problem with cracks on my fingers and feet. . I have built up hard skin(like calluses on my toes also. I have tried vaseline, lotions, etc. They just dont work. I am wondering ...
