Toes?

I have noticed that on my left foot, I have my middle toe that is turning...I am assuming this is from the systemic scleroderma-correct? It is starting to "go under" the toe to the right of it and its starting to annoy me. Is there any exercises or splints I can use to slow this down? I have not heard much about this problem; so I thought I would ask. Any thoughts/suggestions would be appreciated.

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I wish I had an answer for you, but I don't. As you know, my hands were like that but I started going into remission before my feet and legs got as bad as my arms and hands.

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My specialist said that the tendons or ligaments are gradually being calcified when this happens. Supposedly (I wish I knew this 10 months ago) if the finger or toe is gradually stretched several times a day it will slow the progress. This is coming from a woman with hands like claws, though. Ha.

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Well I do exercises for my hands; they are curling, but it seems to help them so I can keep using them. So I will start working my toes in a similiar way and see what happens. Plus, when I see my rheumy next month, I will make him aware of the problem. Thanks deannagraham and Cubby1-I continue also to try to find some information on this issue.

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Check out YogaToes. I have the same toe problem and have tried them for about a week. They seem to help.
Good Luck ~John

http://www.yogapro.com/ts/toestretcher.html

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I have seen those yoga toes in a magazine that I have-I never even thought about using them. I will see what I do to order them.
Thanks
becjo

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I found mine on eBay for around half price.
Good Luck
John

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I still am awaiting confirmation for my diagnosis but the ligament on my left toe is very pronounced and makes my toe curl upward. Sometimes it feels numb. I also have big lumps on top of both my feet over the instep. I wonder if they are involved too. I never get any answers to any questions I ask about these things. This site is where I find out anything at all. Thanks.

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I found the yoga toes very helpful too!

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Most likely what is happening to your ligament in your toes is related to scleroderma. How are your hands? I have diffuse/systemic scleroderma and my hands are curling slowly; so far I can still use them, but that I feel is because I have been doing stretching& toning exercises everyday, 2x a day.
I pray the doctors can pinpoint what is totally going on and get treatment started asap. Hang in there and do not give up!
-becjo

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Thanks Mountainwomen; I am glad they help.
-becjo

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My hands are curling too. Actually so is my right foot. I see pronounced ligaments there too. This stuff has been going on for years. Maybe it is something else. But the more I read about the disease the surer I am that I have it. My ANA is normal, etc. Now I am waiting for the results of a blood test that I think, and I may be wrong, is specific for scleroderma. I have tendons in my ankle that rub together. All my weird stuff is making sense now. I had a TIA seven years ago that I was told was due to a hole in my heart, which has been repaired. I don't know what to think anymore. Doctors never seem to think out of the box at all. If it's not a cold or virus they have no idea.
Sorry to complain again.
Hope all of you out there are having a good day.

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this was a symtom that effected me in the 70's,my three inside toe's on my left foot curled up and pushed up,causeing me diffaculty walking and pain. the orthopedic surgeon called it hammer toe's related to the scleroderma. he surgically straighttened and pinned them,when healed removed the pins.no trouble with toe's since.one of the many strange symtoms you may or may not arquire living with scleroderma.

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Thanks hutch344, I will keep the surgery option as an option, probably last option, but an option. My rhuemy is concerned and has told me to work my toes like I do my hands and look at purchasing something like Yoga toes. So I am planning on trying the Yoga toes and the exercise first and then if they do not work, I will ask about the surgery you suggested. I am so glad you have not had trouble since...our toes are so very important!!
Take care and God Bless.
-becjo

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