tendon friction rub

Hello!
Anybody out there who had this tendon frictions"prior diagnosis ?
Unfortunately it looks who had them will progress faster and actually have diffuse scleroderma.
Please inform me about this as my 18 year old son is going to do MRI tonight and we will know better what is the cause of his constant crepitus in both ankles.
Soon he will see orthopedic specialist and rheumy. I wish somebody there who had them will encourage me and give me little bit of hope.

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I am wondering how do people know if they have tendon friction rubs? A rheumie said my shoulders grind. And my right ankle makes a super loud cracking noise. It's like I move it and feel like it isn't doing it's full rotation and then when it does loud crack and sometimes pain. Before enbrel some of my joints were locking up so possibly tendon related. Maybe I just have sticky joints.

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Thanks for reply. When my son is rotating his foots there is no locking ,pain or cracking...but when he walks it is different story. Both ankles are making loud snapping sound and his X -ray and ultrasound were fine.
I hope this is not tendon friction rub but this is certainly not normal. Me and him are hyper mobile but I will occasionally crack or rather daily 10 times ...but his every step is loud and creepy. He didn't hurt himself as he is not into sport.

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Thank you Spook. I have searched for a sound bite of it and haven't found one plus the descriptions online are unhelpful.

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Hello!
My son was tested in November 12' and result was 1:40 speckled.
On document was written MCTD. Doctor told him to not go on the internet.
But I did. First rheumy check him for many things and result were fine.
But my son legs got noticeable thinner from knees down as well as one leg got thinner in the calf area . And then that clicking started without obvious reason. Thanks to this website I see that there are people who are fighting diffuse ...winning battle after battle... but it is also agonizing to read that tendon rubs can predict worst prognosis.
Spook can you explain me more when did you and what difference in you body was happening when they told you it is diffuse?
This morning my son is getting ready to have audition for one university in Toronto. He is too young for this...too young and full of life. It was supposed to be me ill with this alien disease. Sorry for venting but I am very and truly mad.

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I had friction rubs in my wrists and a couple of fingers within three months of my hands swelling which was first visible sign of this disease. My rh could put his thumb on the inside of my wrists and feel them. This is partly how he gave me a tentative dx of ss until my blood work came back. Actually I have never thought about the creaking in my ankles being a friction rub but it might be. This is much better but was very bad initially, ESP in the morning. I was put on cellcept and ivig infusions. The infusions take them away within days like magic. they come back to some degree until the next infusion. Hope this helps. This disease is so different though, so just press on for a dx without stressing about what it could be. I have learned to accept that it is what it is and pray to God for strength and healing. I don't know what the future holds and I'm not the way I was but my life so far has been tolerable and some days really good. The weather is perfect so this morning I played tennis. I pray that your son gets a good dx but regardless he will be ok.

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Thanks to all of you. I will post more about his results from MRI.
He doesn't have any skin hardening as yet and if this tendon rubs are suppose to bring fast and progressive type of disease I don't now what and when that will happened? Well nobody knows..but this is giving me little hope that maybe he doesn't have it. When this all started happening to you and do You have skin hardening?
O, My son is already tired of me... he can't pass by me if I don't pull his pants or sleeves up or checking redness around his fingernails. I am definitively going crazy.

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I have tendon rubs also and pre-diagnosos tendon rubs. I have the Limited antibody. Hope that makes you feel better! Going on 4 years now.

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Once more thanks for understanding.
I I know I have to be strong but I am asking myself was this my fault somehow.
I am originally from Croatia and as my mother taught me to cook and that was like basic Mediterranean kitchen never enough of olive oil plus garlic and parsley.
My son always love to eat everything from his early age.
He was indeed never in sport but because he was born 3 months earlier and his coordination were not the best we never pushed him into that.
When he was in incubator he was taking oxygen for a long time and once he developed high fever doctors were sure he had meningitis. They were mistaken. He is excellent student loved by entire class...and he wants to be an actor.
What makes me mad-I 'll go to library and there is none of the books for Scleroderma and MCTD. None.
My family or friends will tell me there are worse illnesses out there?? LIke witch one? :I'll ask.
So thanks again for this website and I hope that somebody will start to write a book ,make website or youtube page about their experiences with this illness.
People has to know about this illnesses because I personally never heard about scelroderma before.

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Actemra has completely wiped out my tendon friction rubs giving me more mobility in my joints and tendons. The effect was rather dramatic and quick. I am still gaining flexibility and strength little by little.

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Don't worry Spook.
I can just appreciate your answer cause it was passionate, supportive and educate..
Thanks. I follow what all of you suggested.

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Typically we don't know which way each body paterns itself. I have a friend in support group with the worst senairo. She was the first Sclerderma patient I had met and I thought I was doomed. She has heart, both lung diseases, was very very sick which is typical for the first yrs of diffuse. But she leveled off which is what diffuse does. She is on meds and lives a very fulling life. Limited is more progressive and we have so many new meds on the market. I have a little thickness on my left side of heart and I am not even worried. It is a wait and see and meds if needed down the road. I still do my treadmill but have slowed down in lifestyle because I am 54 and do get fatigued easy from disease. That is the worst thing for me. That is absolutely liveable. Scleroderma is a change of lifestyle, not a death sentence. It is shocking at first and everyone goes through that storm. My storm had Jesus in the boat with me. You guys will be fine, one day at a time. My son was diagnosed with type1 diabetes at age 9. and I became his nurse. He is still alive were not for the discovery of insulin in 1920. At first it was horrible and I also blamed myself. But I learned about bad anti-bodies early on and you can't control them. My son is now married waiting for their first child and going to med school and leading the high school church youth group! He deals with it one day at a time like we all have to. Love and prayers to you, Tina

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i have had tendon rub on and off for the last 6 months or so... the area was just abobe my ankle in the calf... with the rub there was so much pain.. i have diffuse was diagnoised a few weeks ago. this started last summer started as raunalds the swelling of hands now this. all my organs are fine thank god but i have so much skin tightness i can hardley walk..... tom

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I had friction rubs in the beginning of my diagnosis. They have disappeared for now and I hope they stay away. I was diagnosed with diffused 2 years ago with quickly progressing symptoms. I could barely move within 6 months of the diagnosis. With treatment though many of my symptoms have improved and hopefully will continue to improve. My life seems almost back to normal. My Dr. said my quick diagnosis and treatment have helped things improve. Hopefully your son will get relief from them.

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I had tendon rub in the wrists, elbows, seemed like everywhere just months after I was diagnosed. A hand therapist I saw at the time called it crepitus. Very similar story like kab80. They seemed to have disappeared, maybe because of treatment, or maybe remission. Best wishes for your son.

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Kab80 what was your treatment ?

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Mcohen17,
What kind of mediction is Actemra for friction rub and is it with a prescription?

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I think that what I've read is that crepitus is the crackly sound, whereas tendon friction rubs are a leathery shhhhing sound. Like leather rubbing on leather.

Meow, I have searched also online for an audio bite of the tendon friction rub sound, but like you I was unable to find a recording. You'd think that one of our many medical schools would have recorded it and put it online for their students! But NO!!

Anyway, with my stethoscope I can hear the leathery shhhing sound in my elbows, knees and ankles, but not with the unaided ears. So I guess I'm not headed for diffuse. I think you have to be able to hear it with the unaided ears, or at least feel it, in order for it to be considered a significant indicator for diffuse disease.

I also have the crackling crepitus, but who doesn't at this age?

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MY shoulder and elbows feel lile a tendon slips off the bone, It will sound like a pop sometimes. Can't lift shoulders to get dressed any longer but hey I just have Limited Antibody No worries says Rheumy. What an umbarrasment for him some day when he finds out the truth.

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Tina turner: actemra is an IV infusion given once a month. You do need a prescription and a hospital that will administer it.

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I thought it was knees left over from sports.

My Rhumy held a stethoscope on my knees and you could actually hear the tendon rubbing. Sounded like an old screen door at the cabin. It subsided after a couple years. No idea why, and really don’t care.

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