Right, don't really know where to start or quite what I'm writing to ask but stumbled across this site about 2 weeks ago and thought I need to get involved and have a chat with people who obviously know the score.
I suffer with lupus and amongst this I have severe raynauds...to which I'm thinking is now more sclero like. Also have other illnesses which form from this, psoriasis, lung issues and joint issues, etc.
I'm actually in hospital right now and suppose I'm looking for any help with what is going on with me right now, or if anyone is or has been in the same position as I'm going a little bit crazy waiting!!
Basically about 10 days ago I noticed one of my fingers had turned purply/black just from the tip down to about the first knuckle. I just assumed it was my raynauds so went about trying to warm them up like I usually do to get the bloody circulating again. After this didn't work and the following day It was still the same, I took myself to the docs which has resulted in me being in hospital on a drip of iloprost to try and get the blood flowing again. I was only due to be in for 3 days, but 8 days later I'm still here and my finger has not changed all that much. It has subsided a slight bit and I though I was on the mend, but it now seems to have remained the same for the last few days and I'm just a bit scared. I'm wondering if anyone else has had this and it's just taken time for it to return to normal or if theirs has got worse or what?
I'm just a bit confused as to what is going to happen and extremely worried. The specialists did talk at one point of amputating the finger if it got any worse, which has absolutely filled me with dread.
At first my fingers were getting worse and I was in excruciating pain with it at night, until it started getting better slowly and I don't really get much pain with it now, although the tip of the finger and slight bit underneath are still numb and pins and needles-y.
The doctors said that after nearly 10 days I should be seeing some progress by nowand they should be pink with the amount of iloprost iv have had pumped in me..which again worries me that even they don't know what to do with me.
Anyway, so sorry for the massive essay, don't really know what else to turn to as waiting is worrying the hell out of me.
So just wanna know really if anyone has been through this and it's just taken a while for fingers to return to normal, or if I'm now stuck with this black finger and if so, is it likely to get worse? I'm just hoping that due to my autoimmune disease, that it's just taking me longer to heal.
Any info appreciated. I'm only 28, and so very scared about losing digits:-(
Thanks so much for listening.