positive ana speckled pattern 1:80, nucleolar pattern 1:160..worried. help!

My doctor has sent for further lab work. I have not initially been diagnosed. I read up on nucleolar pattern and I'm wxremely worried that I may have scleroderma. I have no skin symptoms. i was actually going to the doctor for headaches , dizziness, and jaw pain. My sides are sore somedays also. After reading up on the disease I'm nothing short of terrified. I'm 25 with three kids and all I can think is that I might not be around to watch them grow or I may be too sick. I am p retty much looking for reassurance at this point because I am sick with worry. Can people with scleroderma live normal lives? Long live? Does the yet I had mean I have the disease without a doubt?

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Test* not yet

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Hi-sorry you are going through this-it is always very worrisome to no know what you have going on. An ANA test is one test that will help look for an autoimmune disease-but the ANA test can be false and change-mine has been around 1:1280 for years and the last one was 1:120. A scleroderma specialist will look at your symptoms as well as run various tests. My first symptoms were Raynauds when I was in my teens-I have Limited Schleroderma. It has been very slow moving and only in the last 5 years has it slowed me down and caused more problems. In the meantime I have 5 children, I am still a foster parent-although I am finding it harder to do what I used to-I still plan on keeping a close eye on my health, reducing stress where i can and living to be around for my grandchildren-I may just have to do things differently than I originally planned. Good luck and keep positive-let us know how things go for you

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Thank you for your reply..I'm a worrier in the worst way and I want to try and be more calm because I have not even been diagnosed. Your story gives me hope though and I need all the hope I can get right now. I will definitely be updating my results when I get them next week.

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Dear Aizola25, First, try to remain as calm as you can be. Stress is not good, whether or not you have the disease, but particulary not good if you do have the disease.
Your ANA numbers are actually the lowest possible positive number that there is. That is a good thing.
You say you are symptomless. That is an even better thing.
This disease is only diagnosed after a combination of symptoms develop, and positive antibody testing with a positive nailfold capillaroscopy.
A positive ANA can be found a multitude of diseases that are NOT scleroderma.
Scleroderma treatment is a treatment of symptoms only. So no symptoms, no treatment! You lucked out!
There are people on this site who have been battling this disease for 20 to 30 years, some of them with little to no difficulty, and some with increasing difficulty as time goes on.
Keep track of various things that happen to you in your life, you may be one of those people who doesn't get diagnosed til 30 years down the line, or you may never develop any thing more!

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what exactly is ANA

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ANA stands for Antinuclear Antibody. Here is a link for explanation on Auto Antibodies and which of them are used for diagnosis of various diseases. http://labtestsonline.org/understanding/analytes/autoantibodies/?start=2
I don't know how to make it clicky, but if you copy it into your browser it will take you there.

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http://adam.about.net/encyclopedia/infectiousdiseases/Systemic-sclerosis-sc leroderma.htm
This is a link to an article that is easy to read, discussing some of the definitions and types of Scleroderma, it has links to pictures.

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Arzola,

When I first found out and was scared to death, I talked with a good doctor that told me this disease does not have to progress. If you find that you are positively diagnosed with scleroderma, you can take positive steps to be the healthiest you ever would have been. It has been three years since my diagnosis and I have no symptoms and I am not on any medications.

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thanks

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You are welcome, Gonnabeatit! If I can help you look up anything else, just let me know!

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Thank you for your responses..I feel at ease. I'm going to try and live life instead of worrying so much. I had a terrible panic attack yesterday. I need to calm down for my kids and remember other people have it worse. I appreciate the support. I will check in with my results soon.

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I don't think anyone that has been told they have SSc.. without a doubt.. first reaction.. is fear. I thought at first it was a death sentence for me... and for some of us.. it can be... but no matter what the outcome.. the best way to fight this thing is to have a positive attitude.. and to make sure you keep on top of every little tinge of something new you are feeling. Get a good doctor and above all... know you are not alone. Good luck and try not to be so afraid. My rheumy says... "live your life" Good advice!

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Sorry to hear you are going through all this stress. You are still in the early stages of diagnosis for a possible autoimmune illness. The ANA test itself is insufficient to provide all the information needed to help in the diagnosis and management of anyone with autoimmune symptoms (which you don't have). It is really generic information at this point. The titer is relatively low and the speckled pattern is the least specific staining pattern. The method of testing also needs to be considered. It is unknown what method the lab used. It could have been immunoflouorescence testing, which is the most widely used. False positive reactions are seen with this method in about 5-15% of indiviuals with no clinical autoimmune disease. While 60-90% of patients with scleroderma have a postive ANA, this does not mean that the same percentage of individuals with a positive ANA have scleroderma--does this make sense?
I'm obviously not a physician, but you have no symptoms of scleroderma that you state. 'Ofiddle' is correct, you don't treat test results or a disease, you only treat symptoms. I think your doctor is trying to solve the mystery of your symptoms--which is fine--and having found a positive test--is looking further--nothing wrong with that either. However, please take a deep breath and cease worrying while he (or she) is still detecting and enjoy your greatest gifts--your life and your kids! God Bless

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It seems that you have found a good doctor; take it slow and easy and try to be as calm as possible. I know it can be very stressful; especially if you have a lot to do every day. Try to break down your day and that may make your day easier, if that is possible.

Like the others have already written; your doctor will take care of symptoms; so please keep a diary of how you feel and bring a composite to your doctor(s) so he/she will know how you really feel and how you are dealing with any pain and or anxiety.

I wish you the best!

Please let us know how you are doing,
Stacey :)

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Thank you all for the replies. I guess I shouldn't jump to conclusions. I will try my best to be calm from here on out. Thanks for the information as well. Put me at ease a bit. I still have no symptoms besides maybe a sore jaw. I am a worrier at heart though. I will keep everyone updated.

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I understand the worrying part; as I am one also. I have found that if you write 3 things each day that have you are grateful for; or 3 things that have gone well that day; even little things like finding the lip balm that you need and not searching for 30 minutes for it.... and re reading some days when you are down...... it helps.............

Take care,
Stacey :)

take each day one minute by one minute if you are in pain or having a difficult day........

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I understand the worrying part; as I am one also. I have found that if you write 3 things each day that have you are grateful for; or 3 things that have gone well that day; even little things like finding the lip balm that you need and not searching for 30 minutes for it.... and re reading some days when you are down...... it helps.............

Take care,
Stacey :)

take each day one minute by one minute if you are in pain or having a difficult day........

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I understand the worrying part; as I am one also. I have found that if you write 3 things each day that have you are grateful for; or 3 things that have gone well that day; even little things like finding the lip balm that you need and not searching for 30 minutes for it.... and re reading some days when you are down...... it helps.............

Take care,
Stacey :)

take each day one minute by one minute if you are in pain or having a difficult day........

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