Has anyone experienced a negative ANA but have all the symptoms and physical appearances of Systemic Scleroderma? My rheumatologist examined me when my feet and lower legs were all purple, my skin is very hard and shiny. He said I have it in my arms, too. They are very leathery and stringy feeling, and on my upper chest. My fingers were purple and I have the spider web red blotcy skin. And if you have experienced this did you get a skin biopsy to determine a diagnosis?
I feel a little guilty about what I said to my doctors nurse when I called for the blood work results.
He told me basically every thing came back normal. I said to him if you use the word basically it means something came back not normal, right? He told me well you have a little protein in your urine and couple other items were a little elevated. And I said, "So you are saying I am perfectly healthy? " I have had so may people ask how my blood work came out and we all know how difficult it is to explain what scleroderma is and then to be told the tests are negative?!?!?!
I am totally frustrated. Number one I don't want to be treated for something I may not have. And I am wondering if anyone else has gotten false negatives like I did with the rheumatoid arthritis?
Any help will be apprecitated. Thank you