My husband was diagagnosed with scleroderma about 11 years ago. It hit mainly in his lungs but hands and face too. He developed PH last year and went down hill fast. He was put onFlolan it it stopped the deterioration but recently he has started to be more short of breath (he is on o2). Could his lungs be starting to get worse now? They have been stable for a long time. Could this be the beginning of the end? Has anyone else gone thru this? I am worried that we have been living on borrowed time and it is now starting to catch up.