I was diagnosed with MCTD 4 years ago (SSc, SLE, myositis, Sjogrens, RA, Hashimoto's, etc). So far it has affected my GI tract and skin, but I attribute the skin portion to my SLE more than anything else since it's not as severe a problem as some of you experience...mainly sun sensitivity, butterfly rash, and skin breakage here and there upon waking up (pressure sores depending on how I slept). In any case, to those of you who have been diagnosed with lung involvement, I was wondering what symptoms prompted you and/or your doctor to run the necessary tests to confirm it...last night I had an overwhelming feeling of "lung pain" (it was different than back pain as this felt as though it were coming from the inside and I had trouble breathing). And this morning I woke up, stretched, took my meds as usual (including some for pain) and while the lung pain is better, it's definitely still there - no deep breaths for me anytime soon :(
How do you differentiate from muscle/back strain, and was this symptom I describe sound familiar? I of course don't want to face the potential fact that my disease is progressing but I am worried - yet I don't want to make a big deal about it...thanks so much for any insight you could provide.